Tag Archives: NICE guideline ME/CFS

NICE publishes ME/CFS guideline: evidence says GET & CBT cannot cure!

NICE ME/CFS guideline outlines steps for better diagnosis and management   NICE has today published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). 29 October 2021   It is estimated that there … Continue reading

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NICE will announce guideline decision next week

NICE announces next steps for publication of its guideline on ME/CFS   NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). … Continue reading

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House of Lords Q&A: NICE & ME/CFS

The House of Lords, Tuesday 12 October 2021   Oral questions: Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome Lord Kamall, the Parliamentary Under-Secretary of State, Department of Health and … Continue reading

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Legal challenge to NICE ME/CFS Guideline delay

Legal challenge to NICE ‘pause in publication’   On the 1st October a legal action was launched against NICE, claiming the failure to publish the final guideline for ME/CFS was unlawful – that NICE failed to follow it’s own rules … Continue reading

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NICE releases further details of ME/CFS roundtable meeting

NICE roundtable agenda   Ahead of the roundtable meeting on 18 October, NICE has today (12 October 2021) released details of the agenda and how the meeting will be run.   Publication of the NICE guideline on the diagnosis and … Continue reading

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Non-disclosure order for NICE 18 Oct Roundtable participants

NICE ME/CFS Guideline Roundtable discussion still ‘under wraps’   On 21 September NICE announced the Roundtable would be held on Monday 18th October in London and they would be inviting: “relevant professional organisations to attend the meeting, plus representatives from … Continue reading

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NICE delays Roundtable – no invite for WAMES!

NICE ME/CFS guideline publication delay drags on…   Another delay in the revision process to the ME/CFS guideline was announced on 10th September: Updated: 10th September, to change the month of the meeting from September to October. A NICE spokesperson said: “In … Continue reading

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WAMES responds to NICE ’roundtable’ announcement

WAMES writes to NICE re ‘Roundtable event’   On 27th August, 10 days after publication of the ME/CFS guideline was ‘paused’, NICE made another announcement. Yet again this gave the bare minimum of information – their plan to invite stakeholders … Continue reading

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NICE announces ‘next steps’ for ME/CFS guideline!

NICE’s ‘next steps’ – a roundtable discussion in September   NICE has finally announced what happens next – more talking – with no explanation of the rules and regulations that are governing this move or how the next revision can … Continue reading

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NICE ‘pauses’ publication – links to articles & comments

Links to articles and comments on the ‘pausing’ of the publication of the 2021 NICE ME/CFS guideline.   WAMES receives letter from NICE with the announcement  17 August WAMES writes to NICE  18 August WAMES ponders the NICE guideline shockwave  … Continue reading

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