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Tag Archives: NICE guideline ME/CFS
Welsh Government responds & asks if NICE is being implemented
Welsh Government replies to WAMES WAMES wrote to the Health Minister on 8 February asking why an announcement had been made about services for recent patients with long COVID, but not about services for people who have been living … Continue reading
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Tagged #ImplementNICEmecfs, Eluned Morgan MS, Health Minister, long Covid, NHS Wales, NICE guideline ME/CFS, post-viral illness, Welsh Government
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NICE will announce guideline decision next week
NICE announces next steps for publication of its guideline on ME/CFS NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). … Continue reading
House of Lords Q&A: NICE & ME/CFS
The House of Lords, Tuesday 12 October 2021 Oral questions: Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome Lord Kamall, the Parliamentary Under-Secretary of State, Department of Health and … Continue reading
Legal challenge to NICE ME/CFS Guideline delay
Legal challenge to NICE ‘pause in publication’ On the 1st October a legal action was launched against NICE, claiming the failure to publish the final guideline for ME/CFS was unlawful – that NICE failed to follow it’s own rules … Continue reading
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Tagged legal challenge, NICE guideline ME/CFS, Steve Topple, Valerie Eliot Smith
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NICE releases further details of ME/CFS roundtable meeting
NICE roundtable agenda Ahead of the roundtable meeting on 18 October, NICE has today (12 October 2021) released details of the agenda and how the meeting will be run. Publication of the NICE guideline on the diagnosis and … Continue reading
Non-disclosure order for NICE 18 Oct Roundtable participants
NICE ME/CFS Guideline Roundtable discussion still ‘under wraps’ On 21 September NICE announced the Roundtable would be held on Monday 18th October in London and they would be inviting: “relevant professional organisations to attend the meeting, plus representatives from … Continue reading
NICE delays Roundtable – no invite for WAMES!
NICE ME/CFS guideline publication delay drags on… Another delay in the revision process to the ME/CFS guideline was announced on 10th September: Updated: 10th September, to change the month of the meeting from September to October. A NICE spokesperson said: “In … Continue reading
WAMES responds to NICE ’roundtable’ announcement
WAMES writes to NICE re ‘Roundtable event’ On 27th August, 10 days after publication of the ME/CFS guideline was ‘paused’, NICE made another announcement. Yet again this gave the bare minimum of information – their plan to invite stakeholders … Continue reading
NICE announces ‘next steps’ for ME/CFS guideline!
NICE’s ‘next steps’ – a roundtable discussion in September NICE has finally announced what happens next – more talking – with no explanation of the rules and regulations that are governing this move or how the next revision can … Continue reading
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Tagged NICE guideline ME/CFS
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