-
Latest News
Archives
Tag Archives: NICE guideline ME/CFS
NICE will announce guideline decision next week
NICE announces next steps for publication of its guideline on ME/CFS NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). … Continue reading
House of Lords Q&A: NICE & ME/CFS
The House of Lords, Tuesday 12 October 2021 Oral questions: Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome Lord Kamall, the Parliamentary Under-Secretary of State, Department of Health and … Continue reading
Legal challenge to NICE ME/CFS Guideline delay
Legal challenge to NICE ‘pause in publication’ On the 1st October a legal action was launched against NICE, claiming the failure to publish the final guideline for ME/CFS was unlawful – that NICE failed to follow it’s own rules … Continue reading
Posted in News
Tagged legal challenge, NICE guideline ME/CFS, Steve Topple, Valerie Eliot Smith
Comments Off on Legal challenge to NICE ME/CFS Guideline delay
NICE releases further details of ME/CFS roundtable meeting
NICE roundtable agenda Ahead of the roundtable meeting on 18 October, NICE has today (12 October 2021) released details of the agenda and how the meeting will be run. Publication of the NICE guideline on the diagnosis and … Continue reading
Non-disclosure order for NICE 18 Oct Roundtable participants
NICE ME/CFS Guideline Roundtable discussion still ‘under wraps’ On 21 September NICE announced the Roundtable would be held on Monday 18th October in London and they would be inviting: “relevant professional organisations to attend the meeting, plus representatives from … Continue reading
NICE delays Roundtable – no invite for WAMES!
NICE ME/CFS guideline publication delay drags on… Another delay in the revision process to the ME/CFS guideline was announced on 10th September: Updated: 10th September, to change the month of the meeting from September to October. A NICE spokesperson said: “In … Continue reading
WAMES responds to NICE ’roundtable’ announcement
WAMES writes to NICE re ‘Roundtable event’ On 27th August, 10 days after publication of the ME/CFS guideline was ‘paused’, NICE made another announcement. Yet again this gave the bare minimum of information – their plan to invite stakeholders … Continue reading
NICE announces ‘next steps’ for ME/CFS guideline!
NICE’s ‘next steps’ – a roundtable discussion in September NICE has finally announced what happens next – more talking – with no explanation of the rules and regulations that are governing this move or how the next revision can … Continue reading
Posted in News
Tagged NICE guideline ME/CFS
Comments Off on NICE announces ‘next steps’ for ME/CFS guideline!
NICE ‘pauses’ publication – links to articles & comments
Links to articles and comments on the ‘pausing’ of the publication of the 2021 NICE ME/CFS guideline. WAMES receives letter from NICE with the announcement 17 August WAMES writes to NICE 18 August WAMES ponders the NICE guideline shockwave … Continue reading
