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Latest News
- Sleep problems in adolescents with CFS: a case-control study nested within a prospective clinical cohort
- Review of the quality control checks performed by current genome-wide & targeted-genome association studies on ME/CFS
- Systematic review of the epidemiological burden of ME/CFS across Europe: current evidence & EUROMENE research recommendations for epidemiology
- Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae
- The feasibility & acceptability of an early intervention in primary care to prevent CFS in adults
Archives
Tag Archives: NICE guideline ME/CFS
Margaret, Countess of Mar, & ME advocate, retires
ME Research UK: The Countess of Mar – an Appreciation 1 May 2020 From 1st May 2020, when the Countess of Mar retires officially from the House of Lords after almost 45 years’ service, the ME community will be losing … Continue reading
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Tagged Countess of Mar, Forward ME Group, House of Lords, NICE guideline ME/CFS
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Survey of the experiences of children & young people with ME for NICE
The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading
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Tagged Action for ME, adolescents, AfME, children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, Oxford Brookes University, survey, teenagers, young people
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NICE call for evidence of management strategies & review methods for ME/CFS
NICE call for evidence NICE guidance: Myalgic encephalomyelitis (or encephalopathy)/ chronic fatigue syndrome: diagnosis and management In development [GID-NG10091] Expected publication date: 14 October 2020 Consultation: Call for evidence What we need: We need evidence from the areas listed below for … Continue reading
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Tagged Call for evidence, NICE guidance, NICE guideline ME/CFS
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CBT & GET patient survey – ends 31 Jan 2019
CBT and GET Patient Survey Forward ME has launched a survey, having been asked by the National Institute of Health and Care Excellence (NICE) to gather evidence and experiences of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). NICE … Continue reading
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Tagged CBT, cognitive behavioural therapy, Forward ME Group, GET, graded exercise therapy, National Institute for Health and Care Excellence, NICE guideline ME/CFS, survey
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Updated NICE guideline committee list
NICE added an updated (but still incomplete) committee membership list to their website on 1 November 2018. The Committee will operate as an advisory Committee to NICE’s Board, developing a guideline on ME/CFS. Membership list Chair Peter Barry, Consultant, Paediatric Intensivist, University Hospitals of Leicester Vice … Continue reading
Final ME/CFS NICE guideline scope published, Oct 2018
Communication RE: NICE guideline on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (Oct 2020) The final scope and equality impact assessment for this NICE guideline have now been published [Oct 16th], along with all the stakeholder comments that … Continue reading
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WAMES’ response to draft NICE ME/CFS guideline scope
NICE ME/CFS guideline consultation – WAMES’ response to draft scope Before work on the revised guidelines for ME/CFS can commence, the scope of the discussions needs to be agreed. On 26th July 2018 WAMES submitted final comments on the proposed … Continue reading
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NICE ME/CFS guideline: consultation & invitation
NICE guideline on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (Oct 2020) Draft Scope The draft scope for this NICE guideline is now out for consultation. NICE is inviting registered stakeholders for their feedback by 5pm on Thursday … Continue reading
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NICE guideline update, May 2018
The NICE ME/CFS Guideline Scoping Workshop took place on Friday 25 May 2018 in London. WAMES was represented by Jan Russell. The participants were divided into 6 groups of 8-10 people, who discussed the draft scope i.e. what we thought … Continue reading
NICE Guideline ME/CFS Scoping Workshop, 25 May 2018
NICE Guideline ME/CFS Scoping Workshop On Friday 25 May WAMES will be representing people with ME and their families and carers at the NICE guideline scoping workshop in London. The meeting will last 2 ½ hours and we will be … Continue reading
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Tagged NICE guideline ME/CFS, Scoping Workshop
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