Tag Archives: NICE guideline ME/CFS

Survey of the experiences of children & young people with ME for NICE

The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading

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NICE call for evidence of management strategies & review methods for ME/CFS

NICE call for evidence NICE guidance: Myalgic encephalomyelitis (or encephalopathy)/ chronic fatigue syndrome: diagnosis and management In development [GID-NG10091] Expected publication date: 14 October 2020 Consultation: Call for evidence What we need: We need evidence from the areas listed below for … Continue reading

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CBT & GET patient survey – ends 31 Jan 2019

CBT and GET Patient Survey Forward ME has launched a survey, having been asked by the National Institute of Health and Care Excellence (NICE) to gather evidence and experiences of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). NICE … Continue reading

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Updated NICE guideline committee list

NICE added an updated (but still incomplete) committee membership list to their website on 1 November 2018.  The Committee will operate as an advisory Committee to NICE’s Board, developing a guideline on ME/CFS. Membership list Chair Peter Barry, Consultant, Paediatric Intensivist, University Hospitals of Leicester Vice … Continue reading

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Final ME/CFS NICE guideline scope published, Oct 2018

Communication RE: NICE guideline on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (Oct 2020) The final scope and equality impact assessment for this NICE guideline have now been published [Oct 16th], along with all the stakeholder comments that … Continue reading

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WAMES’ response to draft NICE ME/CFS guideline scope

NICE ME/CFS guideline consultation – WAMES’ response to draft scope Before work on the revised guidelines for ME/CFS can commence, the scope of the discussions needs to be agreed. On 26th July 2018 WAMES submitted final comments on the proposed … Continue reading

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NICE ME/CFS guideline: consultation & invitation

NICE guideline on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (Oct 2020) Draft Scope The draft scope for this NICE guideline is now out for consultation. NICE is inviting registered stakeholders for their feedback by 5pm on Thursday … Continue reading

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NICE guideline update, May 2018

The NICE ME/CFS Guideline Scoping Workshop took place on Friday 25 May 2018 in London. WAMES was represented by Jan Russell. The participants were divided into 6 groups of 8-10 people, who discussed the draft scope i.e. what we thought … Continue reading

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NICE Guideline ME/CFS Scoping Workshop, 25 May 2018

NICE Guideline ME/CFS Scoping Workshop On Friday 25 May WAMES will be representing people with ME and their families and carers at the NICE guideline scoping workshop in London. The meeting will last 2 ½ hours and we will be … Continue reading

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