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Latest News
- Characterization of post–exertional malaise in patients with ME/CFS
- An analysis of 2‐day cardiopulmonary exercise testing to assess unexplained fatigue
- Online talk: ME/CFS and long Covid in children & young people with Dr Nigel Speight, 24 Sep 2020
- Mitochondria & immunity in CFS
- Postviral fatigue syndrome and creatine: a piece of the puzzle?
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Tag Archives: NICE guideline ME/CFS
NICE ME/CFS Guideline consultation will begin 10 Nov 2020
Level 1A, City Tower Piccadilly Plaza Manchester M1 4BT www.nice.org.uk Tel: 0300 323 0140 Fax: 0845 003 7784 10/09/2020 Dear Colleague, RE: NICE guideline on Myalgic encephalomyelitis (or encephalopathy) /chronic fatigue syndrome: diagnosis and management. The economic plan, review questions … Continue reading
NICE ME/CFS guideline publication due April 21 2021
Level 1A, City Tower Piccadilly Plaza Manchester M1 4BT Tel: 0300 323 0140 Fax: 0845 003 7784 www.nice.org.uk 24/8/20 Dear stakeholder, Please note that the timeline for the Myalgic encephalomyelitis (or encephalopathy)/ chronic fatigue syndrome: diagnosis and management guideline has … Continue reading
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NICE Statement about graded exercise therapy in the context of COVID-19
Statement about graded exercise therapy in the context of COVID-19 NICE is aware of concerns about graded exercise therapy (GET) for people who are recovering from COVID-19. NICE’s guideline on ME/CFS (CG53) was published in 2007, many years before … Continue reading
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Tagged Coronavirus, COVID-19, GET, graded exercise therapy, ME Association, NICE guidance, NICE guideline ME/CFS
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Margaret, Countess of Mar, & ME advocate, retires
ME Research UK: The Countess of Mar – an Appreciation 1 May 2020 From 1st May 2020, when the Countess of Mar retires officially from the House of Lords after almost 45 years’ service, the ME community will be losing … Continue reading
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Tagged Countess of Mar, Forward ME Group, House of Lords, NICE guideline ME/CFS
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Survey of the experiences of children & young people with ME for NICE
The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading
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Tagged Action for ME, adolescents, AfME, children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, Oxford Brookes University, survey, teenagers, young people
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NICE call for evidence of management strategies & review methods for ME/CFS
NICE call for evidence NICE guidance: Myalgic encephalomyelitis (or encephalopathy)/ chronic fatigue syndrome: diagnosis and management In development [GID-NG10091] Expected publication date: 14 October 2020 Consultation: Call for evidence What we need: We need evidence from the areas listed below for … Continue reading
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CBT & GET patient survey – ends 31 Jan 2019
CBT and GET Patient Survey Forward ME has launched a survey, having been asked by the National Institute of Health and Care Excellence (NICE) to gather evidence and experiences of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). NICE … Continue reading
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Tagged CBT, cognitive behavioural therapy, Forward ME Group, GET, graded exercise therapy, National Institute for Health and Care Excellence, NICE guideline ME/CFS, survey
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Updated NICE guideline committee list
NICE added an updated (but still incomplete) committee membership list to their website on 1 November 2018. The Committee will operate as an advisory Committee to NICE’s Board, developing a guideline on ME/CFS. Membership list Chair Peter Barry, Consultant, Paediatric Intensivist, University Hospitals of Leicester Vice … Continue reading
Final ME/CFS NICE guideline scope published, Oct 2018
Communication RE: NICE guideline on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (Oct 2020) The final scope and equality impact assessment for this NICE guideline have now been published [Oct 16th], along with all the stakeholder comments that … Continue reading
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WAMES’ response to draft NICE ME/CFS guideline scope
NICE ME/CFS guideline consultation – WAMES’ response to draft scope Before work on the revised guidelines for ME/CFS can commence, the scope of the discussions needs to be agreed. On 26th July 2018 WAMES submitted final comments on the proposed … Continue reading
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