International Alliance for ME becomes the World ME Alliance

As a founding member of IAfME, WAMES is excited to be part of the development and launch of the World ME Alliance.

The Alliance is the only organisation in the world to bring together national ME/CFS organisations to advocate for better recognition and treatments for Myalgic Encephalomyelitis at an international level, with a particular aim of targeting the World Health Organization to bring greater focus to all post-viral illness.

Bringing myalgic encephalomyelitis out of the shadows


In addition, the World ME Alliance website and events will create a dedicated space for national ME/CFS organisation leaders to share the knowledge, experience and challenges they face in their countries.

This re-launch comes at an important time for ME/CFS globally. Long Covid has shone a light on post-viral disease that has long been missing. Other developments around ME/CFS, such as new guidance published in Mayo Clinic Proceedings and the UK’s much-anticipated National Institute for Health and Care Excellence guideline, will have an impact that reverberates around many countries.

Sonya Chowdhury, chair of the World ME Alliance, tells us:

“Our new website, name, logo and brand will help place us at the fore of international discussions around ME/CFS and other post-viral illnesses.

ME/CFS is a global health crisis, with hundreds of thousands more now being diagnosed with this illness and other post-viral illnesses in the wake of Covid-19.

By working collaboratively, we can expose the devastating impact of these illnesses, and begin to do justice to those desperately in need of research and care.”

The Alliance is currently made up of member organisations from countries including the UK, South Africa, Canada, Spain, Wales, New Zealand and the US. As part of its next steps, it is looking to expand this and bring in more organisations to help shape its future.

Find out more:    Read in a variety of languages, including Welsh

Twitter: @WorldMEAlliance

Sian Leary, Communications Officer

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