the ME cover up
Many people with ME feel they are invisible to the outside world and that ME is not taken seriously.
“We may not be able to present ourselves to the world because of severe ill health but we want to be listened to and heard by the appropriate authorities and to receive services, and appropriate help.
We would also like to see more biomedical research undertaken, and cognisance taken of the body of biomedical research that exists at present.
We want the medical profession and general public to understand the seriousness of the illness and remember that underneath the sheet there is still a human being.”
- See pics of people covered up to highlight being invisible on the Stonebird and 25% ME Group websites. Post your own on the WAMES FB or twitter sites.
- You are invited to light virtual candles on the Severe ME 14 Group Page of the Gratefulness website, to remember those with severe ME. Candles stay alight for 48 hrs.
- You are invited to wear a black dress to raise awareness for those suffering in darkened rooms, and post a selfie on social media.
- Share your pictures and feelings on the Severe ME FB site
- Write to or email your local Health Board, or post a poster on their FB pages to highlight those invisible sufferers with severe ME.
