Mendus is an online research lab where patients can take part in research trials and even suggest topics for study.
The aim of Mendus is to bring research within reach of those who need it.
patients can unite, discuss, and with the guidance of experienced research scientists, conduct their own research.
So far there are 4 patient communities:
- Pernicious Anaemia / B12 deficiency
- FM (Fibromyalgia)
- MS (Multiple Sclerosis)
There are 4 active CFS studies:
- CFS Diet Study
- D-Ribose Study
- Whey protein
6 studies are proposed:
- Low Dose Naltrexone (LDN)
- Vitamin B12
- AHCC (mushroom) StudyVitamin B1 Study
- Anaerobic Threshold Study
- Vitamin B1
- CFS Genetic Study(s)
Mendus is run by Joshua Grant, a neuroscientist with CFS, who has spent hours surfing the net looking for possible treatments that might help him. He discovered that many of the research studies are based on a modest number of participants. He decided that larger scale trials were needed and not all research needs to cost a lot of time and money.
How to get involved:
- Register anonymously on the site – all you need is an email address
- You will be asked to Complete the DePaul Symptom Questionnaire (devised by Dr Leonard Jason from the DePaul University, Chicago)
- You will be given an ID number and you can begin a study at any time, though may have to purchase items in order to take part.