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ME, CFS & SEID: three distinct clinical entities?
Article abstract: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Systemic Exertion Intolerance Disease: Three Distinct Clinical Entities, by Frank N M Twisk in Open Access Challenges 2018, 9(1), 19 [Published: 13 April 2018] Many researchers consider chronic fatigue syndrome (CFS) to be a synonym … Continue reading
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Tagged case definitions, clinical guidelines, diagnosis, diagnostic criteria, Frank Twisk, Systemic exertion Intolerance Disease
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A comparison of case definitions for ME & CFS
Research abstract: A Comparison of Case Definitions for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome, by Madison Sunnquist, Leonard A Jason, P Nehrke, Ellken M Goudsmit in Chronic Dis Manag. 2017;2(2). pii: 1013. Epub 2017 May 21 Many professionals have described the … Continue reading
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Tagged case definitions, Dr Ellen Goudsmit, Institute of Medicine, IOM, Madison L Sunnquist, P Nehrke, Prof Leonard Jason, revised London criteria, SEID, Systemic exertion Intolerance Disease
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Scientific progress stumbles without a valid case definition
OUP blog post, by Leonard A. Jason, August 20th 2017: Scientific progress stumbles without a valid case definition Current estimates from the Centers for Disease Control and Prevention (CDC) of the number of people in the United States with chronic … Continue reading
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Tagged case definitions, misdiagnosis, Prof Leonard Jason
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Is SEID comparable to research case definitions of CFS?
Two groups of American researchers debate the appropriateness of using case definitions for research purposes. Article abstract: Mistaken conclusions about systemic exercise intolerance disease being comparable to research case definitions of CFS: a rebuttal to Chu et al., by Leonard A. Jason, Madison Sunnquist, Kristen … Continue reading
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Tagged case definitions, Dr Jose Montoya, Dr Lily Chu, Ian Valencia, Institute of Medicine, IOM, Kristen Gleason, Madison L Sunnquist, Pamela Fox, Prof Leonard Jason, SEID, Systemic exertion Intolerance Disease
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Video lecture on clinical case definitions by Prof Jason
Youtube video published 17 March 2017: Leonard Jason’s Presentation on Case Definitions to European Network The issue of research and clinical case definitions were discussed in this 30 min March 2-017 talk, and then the European scientists asked questions for the remaining 30 … Continue reading
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Tagged case definitions, diagnostic criteria, Prof Leonard Jason
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Standard research criteria would aid ME/CFS research
Research abstract: Background: The Institute of Medicine (IOM) recently developed clinical criteria for what had been known as chronic fatigue syndrome. Given the broad nature of the clinical IOM criteria, there is a need for a research definition that would … Continue reading
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Tagged case definitions, Elin B Strand, Madison L Sunnquist, Prof Julia Newton, Prof Leonard Jason, research criteria, Stephanie L McManimen
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Differing case definitions point to the need for an accurate diagnosis of ME/CFS
Research article: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is characterised by unexplained and persistent or recurrent incapacitating fatigue accompanied by a variety of symptoms and substantial reductions in previous levels of occupational, educational, social and/or personal activity [1,2]. Given the absence … Continue reading
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Tagged case definitions, diagnosis, Dr Luis Nacul
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Developing case definitions for ME and CFS using practical experience and consensus
Research abstract: Background: There has been considerable controversy regarding how to name and define the illnesses known as myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). The Institute of Medicine (IOM) report has proposed new clinical criteria and a new name for this … Continue reading
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Tagged case definitions, diagnosis, Prof Julia Newton, Prof Leonard Jason, subgroups
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Issues in estimating rates of paediatric CFS & ME
Research abstract: Background: There is a need to examine the prevalence of pediatric chronic fatigue syndrome (CFS) and Myalgic Encephalomyelitis (ME) in the general community, as well as the relative frequency of CFS and ME among various groups (e.g., different … Continue reading
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Tagged case definitions, children, epidemiology, paediatric ME, Prof Leonard Jason
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4 key characteristics of ME identified in 3 countries
Research abstract: The present study attempted to identify critical symptom domains of individuals with Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS). Using patient and control samples collected in the United States, Great Britain, and Norway, exploratory factor analysis (EFA) was … Continue reading
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Tagged case definitions, DePaul Symptom Questionnaire, Dr Leonard Jason, Prof Julia Newton, symptoms
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