Six myths and facts everyone should know about Myalgic Encephalomyelitis (ME) 

Myalgic encephalomyelitis (ME), also known as ME/CFS, is a debilitating illness that affects millions of people worldwide. However, persistent myths and misunderstandings hinder its recognition and treatment.

For World ME day on May 12th 2025 WAMES is joining with the World ME Alliance (WMEA) and countries around the world to debunk six of the most common myths about ME and share the medical facts everyone should know.

Challenge the myths, champion the facts!

In the run up to World ME Day we will be releasing images to share

Myth:  ME is a mental health condition

Fact: ME is a biological illness that disrupts the metabolism and impairs the brain, immune system and autonomic nervous system

Myth: ME is just about feeling tired

Fact: The defining symptom of ME is Post-Exertional Malaise (PEM)

– an extreme worsening of symptoms after even minor physical or mental exertion. While there is no cure for ME, there are compassionate ways to help patients manage their symptoms, in addition to pacing to prevent PEM.

Myth: You can exercise your way to recovery from ME

Fact: Exercise can be dangerous for people with ME

Unlike other chronic conditions where exercise can help, structured exercise programs often make ME symptoms worse as patients end up pushing themselves too far.

Myth: Only certain groups of people can develop ME

Fact: ME affects people of all races, genders, ages, and socioeconomic backgrounds

Myth: Doctors cannot help people with ME

Fact:  Doctors can help people manage ME symptoms

While there is no cure for ME, there are compassionate ways to help patients manage their symptoms, in addition to pacing, to prevent PEM.

Myth: Long COVID is entirely different from ME

Fact: Many Long COVID patients have symptoms that match ME

#WorldMEDay      #MyalgicE       #MEAwareness