Category Archives: Newyddion
Herpesvirus and parvovirus found in ME/CFS
A Latvian study was published in Advances in Virology: Association of active human herpesvirus-6, -7 and parvovirus b19 infection with clinical outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome. Abstract: Frequency of active human herpesvirus-6, -7 (HHV-6, HHV-7) and parvovirus … Continue reading
Disability & Benefits on TV Mon 30 July
Britain on the sick    (How sickness benefits claimants are assessed) Dispatches Ch 4      8 pm     More information Disabled or faking it?    (New tests – victimising those who deserve the most help) Panorama BBC2     8.30 pm  More information
UK Government questions on mitochondrial disease
Questions Asked by The Countess of Mar: 1. To ask Her Majesty’s Government why mitochondrial function testing is not generally available through the National Health Service.[HL684] 25 Jun 2012 : Column WA23:The Parliamentary Under-Secretary of State, Department of Health (Earl … Continue reading
Mitochondrial dysfunction found in ME/CFS
Abstract: The objectives of this study are to test the hypothesis that the fatigue and accompanying symptoms of Chronic Myalgic Encephalomyelitis/ Fatigue Syndrome are in part due to defects in energy provision at the cellular level, and to understand the … Continue reading
Michelle Penny – Living with ME for the last 17 years
For the last 17 years, Michelle Penny has been crippled by chronic fatigue and pain, which has left her virtually bed-bound. She tells Rachel Mainwaring what it’s like living with ME at Wales online. Excerpts: “I relapsed in October and … Continue reading
Disability Benefits survey
The Disability Benefits Consortium invites you to complete their survey if you are claiming (or have tried to claim) disability benefits. It asks about ESA, DLA and back to work support and should inform their work to influence Government benefits … Continue reading
Wheelchair service users’ experiences wanted
The Kafka Brigade, an independent organisation supporting NHS Wheelchair Services, has been commissioned to find out what service users value, and what service users think are the priorities for improvement. This project has been commissioned by the National Leadership and … Continue reading
Cardiff & Vale carers’ views wanted
Cardiff Council is working in partnership with Cardiff and Vale University Health Board and Vale of Glamorgan Council to put in place a strategy to make sure that they meet the needs of carers. Carers have told them that they … Continue reading
Dr Betty Dowsett 1920-2012 Eiriolwr dros ME
Gyda thristwch mawr yr ydym yn cyhoeddi marwolaeth Dr Betty Dowsett ar Fehefin 14 mewn cartref nyrsio yng Nghaergrawnt, yn 91 oed. Yn 2001, a hithau’n 80 oed, ac eisoes wedi ymddeol ers sawl blwyddyn, Dr Dowsett oedd y prif … Continue reading
Dr Myhill interview on Sky TV Tues 5 June
Theo Chalmers (Edge Media TV) will be screening his recent 2 hr interview with Dr Sarah Myhill again on Tuesday, 5th of June at 8 pm on Sky Channel 200 (or manual tune on Freesat). It is also possible to … Continue reading