Author Archives: wames
Decode ME – more participants needed – spread the word!
Decode ME – the world’s largest DNA study of ME/CFS Led by Dr Chris Ponting the study aims to uncover whether the disease is partly genetic and, if so, help pinpoint what causes it. They need tens of thousands … Continue reading
Research: Fighting Post-COVID and ME/CFS – development of curative therapies
Developing curative therapies for Post-COVID and ME/CFS Prof Carmen Scheibenbogen and German colleagues believe there is a need to explore treatments for ME/CFS and long COVID even though research hasn’t yet uncovered the full cause/s of the conditions and … Continue reading
ME/CFS service development in Wales: an update
ME/CFS in Wales Since the new NICE guideline for the diagnosis and management of ME/CFS was published in October 2021 WAMES has been asking the 7 Health Boards in Wales if they plan to implement the guideline and how … Continue reading
Research: Alcohol intolerance & ME/CFS
Alcohol intolerance and myalgic encephalomyelitis/chronic fatigue syndrome Using questionnaires and statistical analysis Jason & Machiuch found that people with ME/CFS are more likely to experience alcohol intolerance. Those with alcohol intolerance had more symptoms, including orthostatic intolerance. Alcohol intolerance … Continue reading
Video lecture: Using wearable technology with Long COVID & ME/CFS
Wearable technology for long COVID and ME/CFS with Harry Leeming This video lecture by Harry Leeming is one of the Massachusetts ME/CFS & FM Association‘s May Sunday Conversations series. A former engineer, Harry Leeming has worked at multiple early-stage … Continue reading
Research review: ME/CFS & Long COVID share similar symptoms & biological abnormalities
ME/CFS and Long COVID share similar symptoms and biological abnormalities “In this review, we first compare the symptoms of ME/CFS and Long COVID, noting the considerable similarities and the few differences. We then compare in extensive detail the underlying … Continue reading
Conference videos: International ME/CFS Conference 2023 (Berlin)
Understand, Diagnose, Treat – International ME/CFS Conference 2023 Leading international ME/CFS experts exchanged their views on the current state of research at the conference held at the Charité Fatigue Center, Berlin on 11-12 May 2023. Here are links to … Continue reading
500 miles for ME: Carer Rob’s fundraising challenge!
500 miles for ME – Rob’s challenge Rob says: On 8th June I will begin my challenge – to walk, 500 miles for ME over the course of 100 days to greet the sunrise at Paxton’s Tower, near Carmarthen. … Continue reading
Carers Week 2023 – do you identify as a carer?
Carers Week 2023 campaign: Cross-Government action to identify and support carers New Carers Week research reveals 19 million people in the UK have provided unpaid care, but haven’t identified as a carer. Without proper identification, carers miss out on … Continue reading
