Author Archives: wames
Invest in ME Research conference report & videos
Watch IiME Conference talks now available The 15th Invest in ME Research International ME Conference 2023 – IIMEC15 – took place on 2nd June 2023 near Cambridge, UK. The theme was “An Update on Research into ME – Post-Pandemic – … Continue reading
Research: Brain fog in ME/CFS & long COVID
Cognitive impairment (Brain fog) in ME & LC US researchers led by Drs Suzanne Vernon and Lucinda Bateman investigated cognitive problems in people with ME acquired both recently and over 10 years previously. We believe that the closer to … Continue reading
Guide to involving people with ME & energy limiting conditions
Involving people with ME and other energy limiting conditions: a guide A new publication from the The World ME Alliance aims to promote inclusivity and empower individuals with energy limiting conditions. Involving people with lived experience of disability is … Continue reading
Biomarker research: a unique circular RNA expression pattern in ME/CFS
Australian researchers examined circRNAs in people with ME/CFS before and after 2 exercise tests. CircRNA plays a regulating role in gene expression, and an essential role in the process of biological development…, as well as a critical role in … Continue reading
WAMES AGM 2023 – signs of hope for the future!
WAMES AGM 2023: hope for the future Our annual business meeting on 17th June 2023 celebrated the first signs of hope that services for people with ME/CFS in Wales might be on the horizon. Many times over the years … Continue reading
More than one condition at a time – ME/CFS and comorbidities
What links conditions comorbid with ME/CFS? Comorbidity… describes the existence of more than one disease or condition within your body at the same time. Comorbidities are usually long-term, or chronic. They may or may not interact with each other. … Continue reading
Give donations ‘In lieu of gifts’
Give donations ‘In lieu of gifts’ Why not celebrate your next special occasion by asking your friends and family to lend support to people with ME/CFS? By asking your friends and family to donate to us instead of giving … Continue reading
Decode ME – more participants needed – spread the word!
Decode ME – the world’s largest DNA study of ME/CFS Led by Dr Chris Ponting the study aims to uncover whether the disease is partly genetic and, if so, help pinpoint what causes it. They need tens of thousands … Continue reading
Research: Fighting Post-COVID and ME/CFS – development of curative therapies
Developing curative therapies for Post-COVID and ME/CFS Prof Carmen Scheibenbogen and German colleagues believe there is a need to explore treatments for ME/CFS and long COVID even though research hasn’t yet uncovered the full cause/s of the conditions and … Continue reading
ME/CFS service development in Wales: an update
ME/CFS in Wales Since the new NICE guideline for the diagnosis and management of ME/CFS was published in October 2021 WAMES has been asking the 7 Health Boards in Wales if they plan to implement the guideline and how … Continue reading
