Author Archives: wames
Conference videos: International ME/CFS Conference 2023 (Berlin)
Understand, Diagnose, Treat – International ME/CFS Conference 2023 Leading international ME/CFS experts exchanged their views on the current state of research at the conference held at the Charité Fatigue Center, Berlin on 11-12 May 2023. Here are links to … Continue reading
500 miles for ME: Carer Rob’s fundraising challenge!
500 miles for ME – Rob’s challenge Rob says: On 8th June I will begin my challenge – to walk, 500 miles for ME over the course of 100 days to greet the sunrise at Paxton’s Tower, near Carmarthen. … Continue reading
Carers Week 2023 – do you identify as a carer?
Carers Week 2023 campaign: Cross-Government action to identify and support carers New Carers Week research reveals 19 million people in the UK have provided unpaid care, but haven’t identified as a carer. Without proper identification, carers miss out on … Continue reading
Prof Brian Hughes: 2021 NICE guideline myths
Getting it Right: Addressing myths about the 2021 NICE guideline for ME/CFS Brian Hughes is an academic psychologist and university professor in Galway, Ireland with a blog called the Science bit. On World ME Day 2023 he spoke to … Continue reading
Research review: Biomarkers for ME/CFS
Biomarkers for ME/CFS: a systematic review Australian researchers found 101 key studies in ME/CFS that varied in efficacy, quality, and potential to be developed into a diagnostic biomarker. Most were blood-based and measured a range of dysfunction. “Many of … Continue reading
Review: Exercise intolerance in ME/CFS & PASC: more in common than not?
Exercise Pathophysiology in ME/CFS and PASC This review finds the mechanisms of systemic blood flow, ventilatory control, hemodynamic and gas exchange derangements to be involved in exercise intolerance in both conditions. Exercise Pathophysiology in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and … Continue reading
Pacing my way through Pain Clinic
Avoiding PEM by pacing my way through Pain Clinic PF gives her experience of an ME/CFS friendly way of attending a Pain Clinic in south Wales. As my referral to the Pain Clinic was made during Covid lockdown I … Continue reading
Poem: PEM at 2am
PEM at 2 am by Ffion For World ME Day, 12th May 2023 “M.E. – the disease where pushing harder can make you sicker” Shattered… Battered… Shell-shocked… Dazzled… Detonated from sleep… By explosion in my brain. Perspiration… Prostration… Nausea… … Continue reading
Poem about PEM: The Cost of Living
The Cost of Living: from and to, or… Thoughts from my bed by Rachel Hazlewood I try to live my life – and then I find I’m back in bed again: Exhausted, drained, wrung out and weak; Too tired … Continue reading
Top Tips handout for GPs
Top tips handout for GPs from Doctors with ME A new handout for GPs from Doctors with ME: outlines what ME/CFS is and is not gives the key symptoms of ME highlights Post-Exertional Malaise (PEM) or Post Exertional Symptom … Continue reading
