Author Archives: wames
Video: Post-Exertional Malaise
Video: Post Exertional Malaise – triggers, symptoms, management Post Exertional Malaise is the hallmark symptom of ME/CFS and is also common in Long Covid. This short video from Broken Battery explains the abnormal response to exertion – triggers, symptoms … Continue reading
World ME Day: making PEM visible
World ME Day – 12 May 2023 This year for World ME Day people living with ME want to make post-exertional malaise (PEM) visible. What is post-exertional malaise, and why are we focusing on it? Post-exertional malaise (PEM) is … Continue reading
Video yourself for World ME Day 2023!
Call-to-action: Video yourself for World ME Day 2023! Follow Holly’s example and tell the world what happens when pushing harder makes you sicker, for World ME Day on May 12th. ME, or Myalgic Encephalomyelitis, is a debilitating disease that affects … Continue reading
OMF StudyME – register of willing research participants
StudyME – research participant registry The Open Medicine Foundation (OMF) in the US invites you to help speed up the research process! StudyME is a participant registry which will connect those who want to participate in research studies (wherever you … Continue reading
MRC invites ME/CFS research applications
Researching ME/CFS: highlight notice The Medical Research Council (MRC) invites applications from researchers that address 1 or more of the research areas identified by the ME/CFS Priority Setting Partnership for ME/CFS research: post-exertional malaise use of existing drugs for … Continue reading
Make a social media poster for World ME Day 2023!
Call to action: Make your own World ME day poster Demonstrate the reality of living with ME for World ME Day 2023 on May 12th 2023. Let’s make post-exertional malaise visible Share the reality of how pushing harder can … Continue reading
NHS 111 Wales web page on ME/CFS has been updated
ME/CFS on the NHS 111 Wales website Following a request from WAMES the Welsh Ambulance Services NHS Trust has updated the information page on ME/CFS on the NHS 111 Wales website ME/CFS, to take account of the 2021 NICE … Continue reading
Movement for Good nomination
Please help WAMES win £1,000! WAMES has been nominated for a £1,000 donation from charitable donor the Benefact Group through the Movement for Good programme. We have been entered into a draw which will take place 3 times during … Continue reading
Research: Post-exercise fatigue and function in men & women with ME/CFS
This US pilot study was surprised to find that a six-minute walk test didn’t produce as many post-exercise abnormalities in people with ME/CFS and no major differences between men and women. Healthy people’s hearts returned to a slow rate in … Continue reading
New fact sheet on ME from the WMEA
Myalgic Encephalomyelitis factsheet WAMES has been working with ME organisations around the world to produce a new fact sheet on Myalgic Encephalomyelitis (ME), with a particular focus on post-exertional malaise (PEM). Available in a growing number of languages, we … Continue reading