Author Archives: wames
Pacing my way through Pain Clinic
Avoiding PEM by pacing my way through Pain Clinic PF gives her experience of an ME/CFS friendly way of attending a Pain Clinic in south Wales. As my referral to the Pain Clinic was made during Covid lockdown I … Continue reading
Poem: PEM at 2am
PEM at 2 am by Ffion For World ME Day, 12th May 2023 “M.E. – the disease where pushing harder can make you sicker” Shattered… Battered… Shell-shocked… Dazzled… Detonated from sleep… By explosion in my brain. Perspiration… Prostration… Nausea… … Continue reading
Poem about PEM: The Cost of Living
The Cost of Living: from and to, or… Thoughts from my bed by Rachel Hazlewood I try to live my life – and then I find I’m back in bed again: Exhausted, drained, wrung out and weak; Too tired … Continue reading
Top Tips handout for GPs
Top tips handout for GPs from Doctors with ME A new handout for GPs from Doctors with ME: outlines what ME/CFS is and is not gives the key symptoms of ME highlights Post-Exertional Malaise (PEM) or Post Exertional Symptom … Continue reading
Diagnosing ME/CFS in people with Long COVID: US CCC statement
Diagnosing ME/CFS in People with Long COVID The US ME/CFS Clinician Coalition have produced a Consensus Statement about Long COVID. Since 2020, we’ve been seeing people with Long COVID whose symptoms overlap with ME/CFS. We recommend you consider ME/CFS … Continue reading
Safe Long COVID & ME/CFS rehabilitation
Safe Long COVID Rehabilitation a video from Long COVID Physio Physiotherapists living with Long COVID have produced a short video [5 mins 15] for fellow physios explaining the importance of providing safe rehabilitation for people with LC and ME/CFS. … Continue reading
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective I guess you’ve probably heard of Myalgic Encephalomyelitis – by its abbreviation ‘ME’. Maybe you’ve got an idea that it’s about being tired all the time. That … Continue reading
Video: Post-Exertional Malaise
Video: Post Exertional Malaise – triggers, symptoms, management Post Exertional Malaise is the hallmark symptom of ME/CFS and is also common in Long Covid. This short video from Broken Battery explains the abnormal response to exertion – triggers, symptoms … Continue reading
World ME Day: making PEM visible
World ME Day – 12 May 2023 This year for World ME Day people living with ME want to make post-exertional malaise (PEM) visible. What is post-exertional malaise, and why are we focusing on it? Post-exertional malaise (PEM) is … Continue reading
Video yourself for World ME Day 2023!
Call-to-action: Video yourself for World ME Day 2023! Follow Holly’s example and tell the world what happens when pushing harder makes you sicker, for World ME Day on May 12th. ME, or Myalgic Encephalomyelitis, is a debilitating disease that affects … Continue reading
