Author Archives: wames
People with ME/CFS don’t trust their GP to give them info on their condition
Healthwatch Trafford press release 17 March 2017: More than half of people in the UK with ME/CFS said they wouldn’t trust their GP to give them information on their condition A revealing new report released today by Healthwatch Trafford shows … Continue reading
Study shows that clinicians often overestimate potential benefits & underestimate harms
This review looked at the work of clinicians in general, not specifically in relation to ME or CFS. Key Points: Question: Do clinicians have accurate expectations of the benefits and harms of treatments, tests, and screening tests? Findings: In this systematic review of … Continue reading
Dr Ron Davis’s strategic approach to understand ME/CFS
Health rising blog post, by Cort Johnson, 8 March 2017: Ron Davis’s Strategic Approach To Understand Chronic Fatigue Syndrome (ME/CFS) The Open Medicine Foundation released two videos of Ron Davis talking about their work over the past couple of weeks. … Continue reading
Patients diagnosed with ME/CFS also fit SEID criteria
Research abstract: Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) remains undiagnosed in up to 91% of patients. Recently, the United States-based Institute of Medicine (IOM) developed new diagnostic criteria, naming it systemic exertion intolerance disease (SEID). Purpose: We examined how subjects fit SEID criteria … Continue reading
Cellular immune responses in post-giardiasis CFS
Research abstract: BACKGROUND: The role of pathogen specific cellular immune responses against the eliciting pathogen in development of post-infectious chronic fatigue syndrome (PI-CFS) is not known and such studies are difficult to perform. The aim of this study was to … Continue reading
WAMES AGM 1 April 2017 – your contribution invited
The WAMES AGM will take place on 1st April 2017. This will be a short business meeting to report on the activities of the past year and plan the priorities for the coming year. Attracting funding and volunteers is our … Continue reading
First Minister’s Question time addresses employment barriers for long term fluctuating conditions
National Assembly for Wales Recording of proceedings, 7 March 2017: 13:55 Mark Isherwood 3. Sut y mae Llywodraeth Cymru yn helpu i leihau’r rhwystrau i gyflogaeth ar gyfer pobl sydd â chyflyrau iechyd hirdymor cyfnewidiol? OAQ(5)0481(FM) 3. How is the … Continue reading
Selection bias & disease misclassification undermine the validity of ME/CFS studies
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome has been a controversial diagnosis, resulting in tensions between patients and professionals providing them with care. A major constraint limiting progress has been the lack of a ‘gold standard’ for diagnosis; with a number … Continue reading
Anxiety – autonomic nervous system in ME/CFS to blame?
Health rising blog post, by Cort Johnson, Dec 10, 2016: The Anxiety Question in Chronic Fatigue Syndrome and Fibromyalgia: Is the Autonomic Nervous System to Blame? Anxiety type symptoms are common in chronic fatigue syndrome (ME/CFS), fibromyalgia, Gulf War Ilness (GWI), … Continue reading
