Author Archives: wames

WAMES AGM & Volunteering info session 25 June 2016

WAMES AGM Saturday 25 June 2016 in Dinas Powys, Vale of Glamorgan You are invited to come and meet the WAMES team. Following a short AGM there will be a chance to find out more about volunteering opportunities in WAMES … Continue reading

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ME Awareness Q&A 4

Q. What is ME? A. All physical and mental exertion, even minor, can cause the body to stop working properly and increase symptoms, though the effect can be delayed by a day or more.   Get your blue ribbon from BRAME ME Awareness … Continue reading

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ME Awareness Q&A 3

Q. What is ME? A. There is an uneven blood flow to the brain. The brain then sends altered signals to the body and the body reacts abnormally to physical & mental stimuli. ME Awareness week 2016: 11-17 May ME … Continue reading

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ME Awareness Q&A 2

Q. What is ME? A. It is an injury to the Central Nervous System, (which controls how the body works) that is usually triggered by an infectious disease process, e.g. a virus, or by chemicals over stimulating the immune system. ME Awareness … Continue reading

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ME Awareness Q&A 1

Q. What is ME? A. ME can be called a “neuro- immune-endocrine” condition because it affects many of the body’s systems. (Classified by the WHO as neurological) ME Awareness week 2016: 11-17 May ME Awareness day: 12 May Awareness and … Continue reading

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Methods of evaluating ME interventions

Research abstract: INTRODUCTION The current study provides data from two patients with myalgic encephalomyelitis, who charted several of their symptoms over time. CASE PRESENTATION Each patient charted domains that were relevant to them, and they were attempting to assess the … Continue reading

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Are people with ME disabled?

TIPSFORME blog: Are you Disabled?, by Jenny, 15 April 2016 On Twitter there have been some interesting discussions this week about disability identity and ME. I think this is worth everyone with ME thinking about. For most of us ME is … Continue reading

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What I’m really thinking: the person with ME

Guardian article, by Anonymous, 16 April 2016: What I’m really thinking: the person with ME It is sometimes called chronic fatigue syndrome, but that’s a bit of a misnomer. I’m not just tired I have myalgic encephalomyelitis. If you think it … Continue reading

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Mortality in ME/CFS

Review article by ME Research UK, 19 February 2016: Mortality in ME/CFS Whether or not people with ME/CFS die earlier, for whatever reason, than the general population is an important question, and there are few good clues to the answer … Continue reading

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Post Activity Relapse (PAR) or PEM?

Another contribution to the discussion of the key characteristic of ME, Post Exertional Malaise (PEM), comes from Kasper Ezelius of the Sweish patient group ME-föreningen: Suggestion to replace PEM by PAR Deterioration after mental or physical exertion is often referred as … Continue reading

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