Tag Archives: ME awareness week

Gwyneth’s ME story part 3 – walking for ME

ME Awareness Week: Gwyneth’s ME story part 3 – walking for ME   Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is part 3 of her story. Part 1 … Continue reading

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Self-isolating with ME – Tell your story for ME Awareness week

Self-isolating with ME Tell your story for ME Awareness week   We’re hearing a lot about the joys and trials of being restricted to home when healthy or ‘at risk’. Many people with ME are however practised at ‘staying home’ … Continue reading

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BBC Wales news: ‘Humanitarian crisis’ for ME sufferers in Wales

BBC Wales News article, 11 May 2019: ‘Humanitarian crisis’ for ME sufferers in Wales “People thought I’d moved away or joined a nunnery”, said Marian Gray, who admits going “missing from life”. She disappeared because she was one of the … Continue reading

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Join #MillionsMissing virtual & visibility actions, May 2019

#MillionsMissing – a global campaign for health equality A global, grassroots network for people with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Join the virtual action in Wales on ME Awareness day – May 12th Sign up  to show you are … Continue reading

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ME Awareness Week, 6-12 May 2019- what can WE do?

WAMES in Awareness week From Saturday 6th to Friday 12th May – this year’s ME awareness week – WAMES will be continuing our efforts to raise awareness and inform doctors about ME, as part of our campaign to improve diagnosis … Continue reading

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Ask your MP to support ME Awareness Week Early Day Motion

Early day motion 1247: ME AWARENESS WEEK 2018 Carol Monaghan MP is asking for your help to encourage other MPs to sign this EDM so that it leads to a debate in the UK Parliament: That this House recognises Myalgic … Continue reading

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ME Awareness week 7-13 May 2018 – campaign season!

ME Awareness week 7-13 May 2018 – campaign season!   International ME Awareness day began in 1993. American Tom Hennessey chose the birthdate of Florence Nightingale, as she was stricken by an ME-type illness in her 30s and was often … Continue reading

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ME Awareness – Join the WAMES ‘Help NHS be ME aware’ campaign

ME Awareness – Join the WAMES #HelpNHSbeMEaware campaign   During ME Awareness week 2017 WAMES is launching a challenge to the Welsh Government and NHS Wales to help NHS staff become ‘ME aware’ by developing awareness and training programmes. Read … Continue reading

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ME Awareness week 2017 – WAMES asks NHS Wales: Help staff become ‘ME aware’!

ME Awareness week 8-14 May 2017  #HelpNHSbeMEaware   On behalf of an estimated 13,000 people affected by ME-CFS in Wales WAMES is asking NHS Wales to commit to raising awareness of ME-CFS amongst its staff. Patients tell us that while … Continue reading

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ME Awareness – Wear blue for awareness week 2017

ME Awareness week 8-14 May 2017 This is the week we tell people about ME. Wearing blue to match our blue ribbons is one of the ways we can attract attention and invite conversations about the debilitating illness that affects an … Continue reading

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