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- Research: CFS: an emerging sequela in COVID-19 survivors? (Italy)
- Last few days of WAMES survey – tell us about your GP consultations
- Viewpoint: Weir & Speight – ME/CFS: Past, present & future
- Hypothesis: A paradigm for CFS… cranial venous outflow obstruction
- Research: Effect of dietary Coenzyme Q10 plus NADH supplementation on fatigue perception & health-related quality of life in ME/CFS
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Tag Archives: PACE trial
Video: Long COVID, Post Viral Fatigue Syndrome & ME/CFS
A new video from Broken Battery describes the overlap in symptoms between Long COVID, Post-Viral Fatigue Syndrome and ME/CFS. Video link: https://www.youtube.com/watch?v=_LOvXta5ZaA Excerpts from video: Research that monitored people over time found that many people with Post Viral Fatigue … Continue reading
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Tagged long Covid, PACE trial, PEM, Post-exertional malaise, post-viral fatigue syndrome, PVFS
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The PACE trial should be retracted because it was seriously unethical
The PACE trial should be retracted, because it was seriously unethical, and the lead investigators continue to deny that, by Dr Neil McFarlane in DrNMblog, 19 March 2021 This was submitted (December 2020) to NICE in response to the new … Continue reading
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Tagged anxiety, CBT, cognitive behavioural support, depression, Dr Neil McFarlane, NICE guideline ME/CFS, PACE trial, psychiatrist
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The concept of ‘illness without disease’ impedes understanding of CFS: a response to Sharpe & Greco
The concept of ‘illness without disease’ impedes understanding of chronic fatigue syndrome: a response to Sharpe and Greco, by Steven Lubet, David Tuller in BMJ Medical Humanities. Published Online First: 01 June 2020. [doi: 10.1136/medhum-2019-011807] Article abstract: In a … Continue reading
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Tagged biomedical research, CBT, cognitive behavioural therapy, GET, graded exercise therapy, Monica Greco, PACE trial, Prof David Tuller, Prof Michael Sharpe, psychosomatic, Steven Lubet
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GMC told to tell Dr Myhill reason for not investigating PACE complaint
Dr Myhill blog post, 1 Oct 2019: My Complaint to the GMC about the PACE authors 1 OCTOBER 2019 – UPDATE – ICO SLAPS DECISION NOTICE ON GMC! You can download the full Signed Decision Notice here – ICO Full … Continue reading
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Tagged Dr Sarah Myhill, Freedom of Information request, General Medical Council, GMC, Information Commissioner’s Office, PACE trial
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Dialogues for a neglected illness – a new project
Dialogues for a neglected illness project Dialogues for a neglected illness is a new project supported by an award from the Wellcome Public Engagement Fund 2018-2021. It will consist of a website with a series of short videos and … Continue reading
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Tagged Dialogues or a neglected illness, GET, graded exercise therapy, Josh Biggs, Natalie Boulton, PACE trial, videos
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Assessment of the scientific rigour of randomized controlled trials on the effectiveness of cognitive behavioural therapy & graded exercise therapy for patients with ME/CFS: a systematic review
Assessment of the scientific rigour of randomized controlled trials on the effectiveness of cognitive behavioural therapy and graded exercise therapy for patients with myalgic encephalomyelitis/chronic fatigue syndrome: A systematic review, by SA Ahmed, JC Mewes, HJM Vrijhoef in Journal of Health … Continue reading
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Tagged CBT, cognitive behavioural therapy, GET, graded exercise therapy, HJM Vrijhoef, JC Mewes, PACE trial, SA Ahmed
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Sharpe, Goldsmith & Chalder fail to restore confidence in the PACE trial findings
Response: Sharpe, Goldsmith and Chalder fail to restore confidence in the PACE trial findings, by Carolyn E Wilshire, Tom Kindlon in BMC Psychology 2019 7:19 [Published: 26 March 2019] Abstract: In a recent paper, we argued that the conclusions of the … Continue reading
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Tagged Carolyn E WIlshire, Kimberley Goldsmith, PACE trial, Prof Michael Sharpe, Prof Trudie Chalder, Tom Kindlon
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Responses in BMJ to Prof Sharpe on PACE trial
Pressure grows on Lancet to review “flawed” PACE trial On 22 August Ingrid Torjesen wrote a news item in the British Medical Journal about an article in the Times which highlighted the call to review the results of the PACE trial into … Continue reading
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Tagged BMJ, Dr Ellen CG Grant, Ingrid Torjesen, Jonathan Kerr, NAsim MArie Jafry, PACE trial, Prof Jonathan Edwards, Prof Michael Sharpe
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Trial By Error: Professor Edwards’ letter to MRC’s Fiona Watt
Virology blog post, by David Tuller, DrPH, 28 August 2018: Trial By Error: Professor Edwards’ Letter to MRC’s Fiona Watt Jonathan Edwards, an emeritus professor of medicine at University College London, recently sent a letter to Professor Fiona Watt, executive … Continue reading
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Tagged Medical Research Council, MRC, PACE trial, Prof Fiona Watt, Prof Jonathan Edwards, Times
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AfME apologises for its role in the PACE trial & clarifies its change of position
Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading
