Author Archives: wames

Patients’ experiences and effects of non-pharmacological treatment for myalgic encephalomyelitis/chronic fatigue syndrome – a scoping mixed methods review

Patients’ experiences and effects of non-pharmacological treatment for myalgic encephalomyelitis/chronic fatigue syndrome – a scoping mixed methods review, by Anne Marit Mengshoel, Ingrid Bergliot Helland, Mira Meeus, Jesus Castro-Marrero, Derek Pheby & Elin Bolle Strand in International Journal of Qualitative Studies … Continue reading

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A systematic review of metabolomic dysregulation in CFS/ME/SEID

A systematic review of metabolomic dysregulation in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis/Systemic Exertion Intolerance Disease (CFS/ME/SEID), by Teilah Kathryn Huth, Natalie Eaton-Fitch, Donald Staines & Sonya Marshall-Gradisnik in Journal of Translational Medicine vol 18, no. 198 (2020) Review abstract: Background: Chronic … Continue reading

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Difficulties of living with an illness not considered a “Disease”: focusing on the illness behavior of ME/CFS patients

Difficulties of living with an illness not considered a “Disease”: Focusing on the illness behavior of myalgic encephalomyelitis/chronic fatigue syndrome patients, by Natsuko Nojima in Departmental Bulletin Paper, Osaka Human Sciences Vol.6   Paper abstract: This paper focuses on the … Continue reading

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Save4Children – helping children with ME in psychiatric wards

Save4Children – helping children with ME in psychiatric wards   The charity Save4Children has been created by the editors of the ME Global Chronicle and helps parents whose children have been forced into psychiatric wards by authorities, to try and … Continue reading

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New ME/CFS training module for doctors & medical students

New CPD: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, May 13, 2020   A new training module for doctors and medical students has been developed by the CMRC Medical Education Group led by Dr Nina Muirhead, and leads to the award of 1 … Continue reading

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My ME lockdown with the invisible “terrible triplets”

ME Awareness week: My ME lockdown with the invisible “terrible triplets”   I have been living in ME lockdown on my own, yet it doesn’t feel as though I am alone.  My lockdown experience started long before Covid-19 appeared on … Continue reading

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Poem: Words escape

ME Awareness week:       Words escape, a poem by Derryan Paul               ME affects the brain. Words escape. A sentence on a page is meaningless, and yet, you know there is a meaning somewhere … Continue reading

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Gwyneth’s ME story part 3 – walking for ME

ME Awareness Week: Gwyneth’s ME story part 3 – walking for ME   Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is part 3 of her story. Part 1 … Continue reading

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Gwyneth’s ME story part 2 – my route to recovery

ME Awareness week:       Gwyneth’s ME story part 2 – the route to recovery   Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is part 2 of her story. … Continue reading

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What’s the difference between Covid-19 and ME?

ME Awareness:         What’s the difference between Covid-19 and ME?   It is hard not to see many glaring differences between the attitudes to the illness I have struggled with for years and the latest public health threat. Covid-19 is … Continue reading

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