Tag Archives: ME Awareness

Poem: Words escape

ME Awareness week:       Words escape, a poem by Derryan Paul               ME affects the brain. Words escape. A sentence on a page is meaningless, and yet, you know there is a meaning somewhere … Continue reading

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Gwyneth’s ME story part 2 – my route to recovery

ME Awareness week:       Gwyneth’s ME story part 2 – the route to recovery   Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is part 2 of her story. … Continue reading

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‘Staying at home’ with ME – Sarah’s story

ME Awareness week: ‘Staying at home’ with ME – Sarah’s story   Having had ME for 27 years I’m not expecting to get better. Every day requires time spent lying down, experiencing pain in my muscles and joints and sensitivity … Continue reading

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No Lockdown fun for Melanie, just bedbound with ME

ME Awareness Week: No Lockdown fun for Melanie, just bedbound with ME   My daughter has had ME for the last 27 years, since she was 11 years old when she suffered a bad attack of glandular fever. She was … Continue reading

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‘Paused together’ or ‘left behind’ – Frances’ thoughts on Covid-19 & ME

ME Awareness week: ‘Paused together’ in Lockdown or Housebound with ME & ‘left behind’ – Frances’ thoughts on Covid-19 and ME   On having ME – Myalgic Encephalomyelitis Going from being active, well, independent and having a future with good … Continue reading

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Video: I got a virus, I didn’t die, but I never recovered

ME Awareness Week:       I got a virus, I didn’t die, but I never recovered     #MEAction network video, May 2020 A short film by people with ME and experts, warning of the long term consequences that viruses can … Continue reading

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Covid-19 or ME crash? – Kay’s story

ME Awareness Week:           Covid-19 or ME crash? – Kay’s story   ME and me, before C-19 I was first diagnosed with ME/CFS when I was in my teens, so I have lived with it for 25 years plus, with varying … Continue reading

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More to experience during Lockdown- Karen & Mike’s ME story

ME Awareness Week: More to experience during Lockdown – Karen & Mike’s ME story   I live with my husband in mid-Wales and we both have ME, having met because of it 23 years ago (through the ME Singles Group) … Continue reading

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Edwyn’s ME Lockdown

ME Awareness Week:         Edwyn’s thoughts on ME   This has ruined my life and I am disgusted that not enough money goes into research for ME.                                                                                                   Edwyn, 15 years old, Mid Wales Edwyn’s ME Lockdown view all day, every … Continue reading

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ME awareness – in the workplace

Explaining ME in the workplace Raising awareness of ME is always a good idea – yes?  But is telling others about your experience of ME always a good idea? There are many creative ways to describe to friends and family … Continue reading

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