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Latest News
- It’s still ME – Kara Jane’s album launched for Severe ME Day
- Severe ME resources for health and social care professionals
- Severe ME Day – 8 August 2020
- Autonomic phenotypes in CFS are associated with illness severity: a cluster analysis
- Autoantibodies to Beta-Adrenergic & muscarinic cholinergic receptors in ME patients – a validation study in plasma & cerebrospinal fluid from two Swedish cohorts
Archives
Tag Archives: ME Awareness
Poem: Words escape
ME Awareness week: Words escape, a poem by Derryan Paul ME affects the brain. Words escape. A sentence on a page is meaningless, and yet, you know there is a meaning somewhere … Continue reading
Gwyneth’s ME story part 2 – my route to recovery
ME Awareness week: Gwyneth’s ME story part 2 – the route to recovery Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is part 2 of her story. … Continue reading
‘Staying at home’ with ME – Sarah’s story
ME Awareness week: ‘Staying at home’ with ME – Sarah’s story Having had ME for 27 years I’m not expecting to get better. Every day requires time spent lying down, experiencing pain in my muscles and joints and sensitivity … Continue reading
No Lockdown fun for Melanie, just bedbound with ME
ME Awareness Week: No Lockdown fun for Melanie, just bedbound with ME My daughter has had ME for the last 27 years, since she was 11 years old when she suffered a bad attack of glandular fever. She was … Continue reading
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Tagged ME Awareness, Melanie
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‘Paused together’ or ‘left behind’ – Frances’ thoughts on Covid-19 & ME
ME Awareness week: ‘Paused together’ in Lockdown or Housebound with ME & ‘left behind’ – Frances’ thoughts on Covid-19 and ME On having ME – Myalgic Encephalomyelitis Going from being active, well, independent and having a future with good … Continue reading
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Tagged Frances Lewis, ME Awareness
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Video: I got a virus, I didn’t die, but I never recovered
ME Awareness Week: I got a virus, I didn’t die, but I never recovered #MEAction network video, May 2020 A short film by people with ME and experts, warning of the long term consequences that viruses can … Continue reading
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Tagged Dr Nina Muirhead, ME Awareness, MEAction, Prof Chris Ponting, video
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Covid-19 or ME crash? – Kay’s story
ME Awareness Week: Covid-19 or ME crash? – Kay’s story ME and me, before C-19 I was first diagnosed with ME/CFS when I was in my teens, so I have lived with it for 25 years plus, with varying … Continue reading
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Tagged Coronavirus, COVID-19, Kay, Lockdown, ME Awareness
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More to experience during Lockdown- Karen & Mike’s ME story
ME Awareness Week: More to experience during Lockdown – Karen & Mike’s ME story I live with my husband in mid-Wales and we both have ME, having met because of it 23 years ago (through the ME Singles Group) … Continue reading
Edwyn’s ME Lockdown
ME Awareness Week: Edwyn’s thoughts on ME This has ruined my life and I am disgusted that not enough money goes into research for ME. Edwyn, 15 years old, Mid Wales Edwyn’s ME Lockdown view all day, every … Continue reading
ME awareness – in the workplace
Explaining ME in the workplace Raising awareness of ME is always a good idea – yes? But is telling others about your experience of ME always a good idea? There are many creative ways to describe to friends and family … Continue reading
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Tagged disability employment, ME Awareness, reasonable adjustments
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