Category Archives: News

Research review: Immune dysfunction in susceptible people leads to the post-viral fatigue syndromes ME/CFS & Long COVID

Immune dysfunction, ME/CFS and long COVID   This review of research by the New Zealand research team led by Prof Warren Tate looks at immunological factors that may explain why some patients never recover from viral infections. It argues that … Continue reading

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Poem: This road, by Rachel Hazelwood

This Road: (I have walked this road before…..) By Rachel Hazlewood   Somewhere faintly whispering in the shadows of my mind Through an erstwhile firmly shuttered door A distant thought – a memory I’d hoped I’d never find I remember: … Continue reading

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WAMES says #ImplementNICEmecfs in Wales

WAMES supports NICE guideline implementation in NHS Wales   Graded Exercise Therapy and the PACE trial have raised their ugly heads again in an article by Prof Trudie Chalder and friends. They have launched a scathing attack on the ability … Continue reading

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NICE ME/CFS guideline is robust & globally supported

WAMES joins global support for ME/CFS NICE guideline   On 11th July, a new study was published in the Journal of Neurology, Neurosurgery and Psychiatry purporting to demonstrate flaws in the NICE ME/CFS guideline review process. The World ME Alliance strongly rebuts … Continue reading

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ME the illness: “Mourning the life we’ve lost”  

ME the illness: “Mourning the life we’ve lost”   The Messenger family have translated the article about them Cyflwr ME: ‘Galaru am fywyd ry’n wedi’i golli‘ posted on Cymru Fyw.   “The harmful effect of ME on patients and on … Continue reading

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Research review: urinary biomarkers in ME/CFS

Urinary biomarkers for ME/CFS?   Although urine would be an easy sample to collect from patients this study found that research into its use as a biomarker for ME/CFS was inconsistent. Studies were limited in size, susceptible to variables, used … Continue reading

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Invest in ME Research conference report & videos

Watch IiME Conference talks now available   The 15th Invest in ME Research International ME Conference 2023 – IIMEC15 – took place on 2nd June 2023  near Cambridge, UK. The theme was “An Update on Research into ME – Post-Pandemic – … Continue reading

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Research: Brain fog in ME/CFS & long COVID

Cognitive impairment (Brain fog) in ME & LC   US researchers led by Drs Suzanne Vernon and Lucinda Bateman investigated cognitive problems in people with ME acquired both recently and over 10 years previously. We believe that the closer to … Continue reading

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Guide to involving people with ME & energy limiting conditions

Involving people with ME and other energy limiting conditions: a guide   A new publication from the The World ME Alliance aims to promote inclusivity and empower individuals with energy limiting conditions. Involving people with lived experience of disability is … Continue reading

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Biomarker research: a unique circular RNA expression pattern in ME/CFS

  Australian researchers examined circRNAs  in people with ME/CFS before and after 2 exercise tests. CircRNA plays a regulating role in gene expression, and an essential role in the process of biological development…, as well as a critical role in … Continue reading

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