Category Archives: News
Negotiating trust on health-related online forums
Research abstract: The internet is increasingly being used as a source of health advice and information by individuals with long term conditions (LTCs). Specifically, online forums allow people to interact with others with similar conditions. However, it is not clear … Continue reading
The ‘all in the mind’ myth of ME/CFS
Nursing in practice article, by Dr Keith Geraghty, 27 June 2016: The ‘all in the mind’ myth of myalgic encephalomyelitis/chronic fatigue syndrome Health professionals should be made aware that ME/CFS is not a psychological illness and in order to improve … Continue reading
The difficulties of studying whether negative illness beliefs contribute to maintenance of CFS symptoms
Review abstract: PURPOSE: Chronic fatigue syndrome (CFS) is characterized by severe and debilitating fatigue. Studies based on self-report measures suggest negative illness representations, related symptom interpretations, and heightened symptom focusing are maintaining factors of fatigue. This study reviews studies which … Continue reading
Activity pacing is associated with better & worse symptoms in long term conditions
Research abstract: Background: Activity pacing has been associated with both improved and worsened symptoms, and its role in reducing disability among patients with long-term conditions has been questioned. However, existing studies have measured pacing according to uni-dimensional subscales, and therefore the empirical evidence for … Continue reading
Gastric enterovirus infection: a possible cause of gastroparesis
Research abstract: BACKGROUND: Gastroparesis (GP) is a disabling chronic gastroenterologic disorder with high morbidity that severely impacts patients’ quality of life. GP can present acutely after a viral-like gastrointestinal illness resulting in speculation that in some patients, neurologic damage caused … Continue reading
Indicator of CFS found in gut bacteria
Cornell Chronicle blog post by Krishna Ramanujan, 24 June 2016: Indicator of chronic fatigue syndrome found in gut bacteria Physicians have been mystified by chronic fatigue syndrome, a condition where normal exertion leads to debilitating fatigue that isn’t alleviated by rest. … Continue reading
Research project to evaluate daily activity patterns and heart rate
Newswise Stony Brook University blog post, by …, 23 June 2016: Getting to the Heart of Chronic Fatigue Syndrome Stony Brook researcher receives $1.5 million NIH grant to evaluate daily activity patterns and heart rate of those who suffer from … Continue reading
CFS following low-level radiation exposure
2 articles about the effects of low-level radiation are on the National CFIDS Foundation website at Health of Liquidators (Clean-up Workers) 20 Years after the Chernobyl explosion Chronic Fatigue Syndrome is one of the most important consequences of radioecological disaster resulting … Continue reading
PACE trial cost-effectiveness conclusions faulty
Health rising blog post, by Cort Johnson, 31 May 2016: Another Ball Drops in PACE Controversy: Cost-effectiveness Conclusions Faulty – Plus Update Some past efforts to clear up the controversies around the now notorious PACE trials have requested that the … Continue reading
Circulatory Impairment in ME
ME Advocacy Blog post extract, 14 June 2016: Circulatory Impairment in Myalgic Encephalomyelitis: A Preliminary Thesis, by Maryann Spurgin, Ph.D. Here is my proposal: For many years, I have followed and collated research on Myalgic Encephalomyelitis (ME), in particular on … Continue reading
