Category Archives: News
Mindfulness and ME/CFS
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is associated with physical, cognitive and emotional challenges, and much research suggests that mindfulness-based interventions (MBIs) can be helpful for these difficulties. It is reasonable to assume that living with ME/CFS influences how people … Continue reading
Dr Leonard Jason’s reflections on SEID
Article abstract: The Institute of Medicine (IOM) in the US has recently proposed that the term Systemic Exertion Intolerance Disease (SEID) replace Chronic Fatigue Syndrome (CFS). In addition, the IOM proposed a new case definition for SEID, which includes substantial … Continue reading
Accurate diagnosis of ME and CFS based on objective test methods for characteristic symptoms
Article abstract: Although myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are considered to be synonymous, the definitional criteria for ME and CFS define two distinct, partially overlapping, clinical entities. ME, whether defined by the original criteria or by the … Continue reading
Challenge & defence of name SEID and IOM’s definition
Fink and Schröder challenge the validity of the IoM’s new name and definition of ME/CFS: Redefining Myalgic Encephalomyelitis/Chronic Fatigue Syndrome To the Editor: The Institute of Medicine (IOM) proposed a new name (systemic exertion intolerance disease) and diagnostic criteria for myalgic encephalomyelitis/chronic … Continue reading
Meanings of ME
Book abstract: Chronic fatigue syndrome (CFS or ME) is a problematic diagnosis, and much of the existing writing on the topic is dominated by questions of biology, psychology and causation. The focus on personal, interpersonal and public meanings in Meanings of ME signals … Continue reading
Gluten sensitivity isn’t a fad
Gluten sensitivity isn’t a fad—it’s a real problem, say scientists, Tuesday, July 07, 2015 from What doctors don’t tell you Not eating wheat is all the rage, and some sceptics regard it as a fashionable fad—but scientists have discovered that … Continue reading
Noncoeliac gluten sensitivity
Research abstract: The past 5 years have seen an increase in the use of a gluten-free diet outside a diagnosis of coeliac disease or IgE-mediated wheat allergy. This trend has led to the identification of a new clinical entity termed … Continue reading
ME/CFS: ethical and unethical uses of NLP
In this article by Nancy Blake, she argues that it is unethical and harmful to use Neuro Linguistic Programming (NLP) to persuade a person with ME to deny the biomedical realities of ME/CFS, to tell them that all will be well … Continue reading
ME/CFS & FM as functionally impairing as major diseases
Cort Johnson writes about research into Functionally Somatic Syndromes on June 1, 2015 in his blog Health Rising: The study urges the need for more research on FSS, a relatively neglected research area. Especially studies on a better understanding of the … Continue reading
Parent carers’ experiences with severe ME
Research abstract: Experiences of parents who care for sons or daughters with severe myalgic encephalomyelitis are rarely discussed within the literature. Narratives of parent-carers in Lost Voices from a Hidden Illness were analyzed using interpretative phenomenological analysis. This study aimed … Continue reading
