Category Archives: News
Teenage kickboxer with CFS
Caerphilly teen kickboxer to defend world crown, by Caio Iwan in South Wales Argus online, Wednesday 5 August 2015 A TEENAGE kickboxer from Pontllanfraith is set to travel to Germany to defend her world crown – despite nearly having her … Continue reading
Severe ME day Saturday 8 August 2015
WAMES invites you to join with them and the 25% ME Group to raise awareness of the home care needs of people with severe ME. Many severely affected people in Wales struggle to help professionals understand the extent of their need … Continue reading
NHS Wales ME services development plan
The ME-CFS & FM Implementation Group, chaired by Prof Jonathan Richards (Cwm Taf Locality Clinical Director), has met twice during the first half of 2015. This Group gives Health Boards (HBs) a chance to share experiences and encourage each other … Continue reading
POTS
Research abstract: Postural tachycardia syndrome (POTS) is a form of chronic orthostatic intolerance for which the hallmark physiological trait is an excessive increase in heart rate with assumption of upright posture. The orthostatic tachycardia occurs in the absence of orthostatic … Continue reading
First Class student overcomes CFS to graduate in Bangor
Article from Bangor University website: A Psychology student who credits Bangor University for ‘taking a chance’ on her has graduated with a First Class Honours degree. Ashleigh Johnstone from Douglas on the Isle of Man has battled Chronic Fatigue Syndrome … Continue reading
Muscle weakness in arms & trunk in ME/CFS
ME Research UK comments on research into muscle weakness, July 21 2015: One of the key difficulties that ME/CFS patients face is standing (orthostasis), particularly standing still. For them, simply being upright can trigger a cluster of symptoms, such as … Continue reading
Mindfulness and ME/CFS
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is associated with physical, cognitive and emotional challenges, and much research suggests that mindfulness-based interventions (MBIs) can be helpful for these difficulties. It is reasonable to assume that living with ME/CFS influences how people … Continue reading
Dr Leonard Jason’s reflections on SEID
Article abstract: The Institute of Medicine (IOM) in the US has recently proposed that the term Systemic Exertion Intolerance Disease (SEID) replace Chronic Fatigue Syndrome (CFS). In addition, the IOM proposed a new case definition for SEID, which includes substantial … Continue reading
Accurate diagnosis of ME and CFS based on objective test methods for characteristic symptoms
Article abstract: Although myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are considered to be synonymous, the definitional criteria for ME and CFS define two distinct, partially overlapping, clinical entities. ME, whether defined by the original criteria or by the … Continue reading
Challenge & defence of name SEID and IOM’s definition
Fink and Schröder challenge the validity of the IoM’s new name and definition of ME/CFS: Redefining Myalgic Encephalomyelitis/Chronic Fatigue Syndrome To the Editor: The Institute of Medicine (IOM) proposed a new name (systemic exertion intolerance disease) and diagnostic criteria for myalgic encephalomyelitis/chronic … Continue reading
