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Video: ME & PEM (Post Exertional Malaise)
ME & PEM: English language video from Norway This 3 minute film will give you an introduction to PEM (Post Exertional Malaise). Once you’ve understood what PEM is about, you’ll know a lot more about the debilitating chronic disease … Continue reading
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Tagged Ketil Jakobsen, Norway, PEM, Post-exertional malaise, Prof Kristian Sommerfelt, video
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Norwegian Rituximab studies update
Helse Bergen blog post, 29 Sep 29017: RituxME B-lymphocyte depletion using the anti-CD20 antibody rituximab (Mabthera®) in Myalgic Encephalopathy/Chronic Fatigue Syndrome (“RituxME”) RituxME is a multicentre study conducted in five study centres in Norway: the Oncology Department at Haukeland University … Continue reading
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Tagged antibodies, Dr Oystein Fluge, Norway, Prof Olav Mella, rituximab, RituxME
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Adults’ experiences of the illness trajectory in post-infectious fatigue syndrome in Norway
Research abstract: From good health to illness with post-infectious fatigue syndrome: a qualitative study of adults’ experiences of the illness trajectory, by Eva Stormorken, Leonard A. Jason and Marit Kirkevold in BMC Family Practice 2017 18:49 [PNorwayublished: 27 March 2017] Background: Municipal drinking water contaminated with the parasite Giardia lamblia in Bergen, Norway, … Continue reading
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Tagged Eva Stormorken, Giardia lamblia, illness trajectory, Marit Kirkevold, Norway, post-infectious fatigue syndrome, Prof Leonard Jason
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UK Rituximab trial collaboration between Norway & UK featured on BBC
BBC Look East video clip, 26 January 2017: Research in Norwich could offer ME/CFS breakthrough Researchers in Norwich are teaming up with researchers from Norway to collaborate on ME/CFS research. The researchers say they believe that ME is reversible, and … Continue reading
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Tagged BBC Look East, Dr Oystein Fluge, Invest in ME, Norway, Norwich, Prof Simon Carding, rituximab, video
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Experiences of GP continuity among women with CFS/ME in Norway
Research abstract: Background: Continuity of care is important for patients with chronic illness in need of coordinated healthcare services from multiple providers. Little is known about how patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) experience continuity of GP care. This study explores how … Continue reading
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Tagged Continuity of patient care, Norway
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Diagnosis & symptoms of CFS/ME in children in Norway
Research abstract: Background: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is a complex condition. Causal factors are not established, although underlying psychological or immunological susceptibility has been proposed. We studied primary care diagnoses for children with CFS/ME, with children with another hospital … Continue reading
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Tagged adolescents, children, diagnosis, epidemiology, Inger J. Bakken, Norway, primary care, symptoms, teenagers
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New rituximab trial results from Norway
Research abstract: Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) is a disease of unknown etiology. We have previously suggested clinical benefit from B-cell depletion using the monoclonal anti-CD20 antibody rituximab in a randomized and placebo-controlled study. Prolonged responses were then demonstrated in … Continue reading
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Tagged B-cell, Dr Oystein Fluge, Norway, Prof Olav Mella, rituximab, T-cell
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A robot-avatar: easier access to education & reduction in isolation?
Research abstract: This paper presents a qualitative study of deployment and use of a robot as a sick child’s avatar at school. Many children and youth suffer from a range of chronic illnesses that make them, often for long stretches … Continue reading
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Tagged adolescents, children, education, isolation, Norway, robot avatar, teenagers
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Unexpected findings & promoting monocausal claims, a cautionary tale
Article abstract: Stories of serendipitous discoveries in medicine incorrectly imply that the path from an unexpected observation to major discovery is straightforward or guaranteed. In this paper, I examine a case from the field of research about chronic fatigue syndrome (CFS). In Norway, … Continue reading
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Tagged causal complexity, evidence based medicine, monocausal, Norway, rituximab
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The social media experiences of long-term patients with ME in Norway
Research abstract: The present article investigates the meanings of social media use for long-term patients, focusing on a group of Norwegian bloggers diagnosed with myalgic encephalomyelitis (ME). This severe illness can confine patients to their homes for long periods of … Continue reading
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Tagged narrative identity, Norway, online communities, social media
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