Category Archives: News

Why has the PACE Study’s “Sister Trial” been “Disappeared” and Forgotten?

David Tuller continues his analysis of research about treatments for CFS with an examination of the FINE trial.  A summary has been compiled by MEAction. Virology blog: Trial By Error, Continued: Why has the PACE Study’s “Sister Trial”been “Disappeared” and Forgotten? [9 … Continue reading

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Nature of fatigue in POTS

Research Abstract: Individuals with postural orthostatic tachycardia syndrome share many symptoms with those who have chronic fatigue syndrome; one of which is severe fatigue. Previous literature found that those with chronic fatigue syndrome experience many forms of fatigue. The goal … Continue reading

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Insomnia common in chronic diseases

Research abstract: Highlights Seventy-eight percent of US-based PatientsLikeMe respondents were at risk for National Sleep Foundation (NSF)-defined insomnia. Trouble falling asleep was the sleep symptom most likely to result in self-reporting insomnia. Forty-four percent awaken during the night and 42% … Continue reading

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BBC Generation 2016 deadline extend to Fri 13 Nov

The BBC have EXTENDED their deadline for applications for BBC Generation 2016 until the end of this week. They would like to receive applications by midnight Friday 13th November. They are still looking to reach the broadest possible range of … Continue reading

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Qigong exercise for bereaved persons with CFS-like illness

Research abstract: Bereavement may bring negative impacts on the mind, body, and spiritual well-being of grieving persons. Some bereaved persons with chronic fatigue syndrome- (CFS-) illness experience a dual burden of distress. This study investigated the effects of bereavement on … Continue reading

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Neuropathic pain treatments

Opinion statement abstract: Neuropathic pain is notoriously variable in its severity and impact on patients, as well as in its response to treatment. Certain therapies for neuropathic pain have better evidence for their use; however, it is apparent that although … Continue reading

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Increased risk of CFS in patients with migraine

Research abstract Highlights •The risk of CFS was 1.5-fold higher in the migraine cohort. •The risk was most prominent in the ≥65 years group with a 2.11-fold increased CFS. •CFS incidence appeared to increase with the frequency of migraine. Objective: The … Continue reading

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Sleep quality links found with intestinal microbiota imblance in CFS

Research abstract: Chronic Fatigue Syndrome (CFS) is a multisystem illness, which may be associated with imbalances in gut microbiota. This study builds on recent evidence that sleep may be influenced by gut microbiota, by assessing whether changes to microbiota in … Continue reading

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More PACE trial coverage

Following the publication of David Tuller’s damning critique of the PACE trial (Oct 21-23)and then further conclusions from the PACE trial team (Oct 27) the media debate has raged on. There has been much criticism of how the media has overstated … Continue reading

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Differences found in CFS/ME children & adults

Research abstract: OBJECTIVE: To investigate differences between young children, adolescents and adults with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). STUDY DESIGN: Comparison of clinical cohorts from 8 paediatric and 27 adult CFS/ME services in the UK and a paediatric randomised controlled … Continue reading

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