Tag Archives: Prof Peter White

The International collaborative on fatigue following infection (COFFI)

Article abstract: The international collaborative on fatigue following infection (COFFI), by Ben Z Katz, Simon M Collin, Gabrielle Murphy, Rona Moss-Morris, Vegard Bruun Wyller, Knut-Arne Wensaas, Jeannine L.A. Hautvast, Chantal P Bleeker-Rovers, Ute Vollmer-Conna, Dedra Buchwald, Renée Taylor, Paul Little, … Continue reading

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Health care resource use by patients before & after a diagnosis of CFS/ME

Health care resource use by patients before and after a diagnosis of chronic fatigue syndrome (CFS/ME): A clinical practice research datalink study, by Simon Collin, Inger Bakken, Irwin Nazareth, Esther Crawley, & Peter D. White in BMC Family Practice. 18 20017 Research abstract: Background: Our … Continue reading

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Guided graded exercise self-help plus specialist medical care (GETSET)

A new research paper on a guided graded exercise programme has received much media coverage, some support and a lot of questions and criticisms. Links to a number of these follow. A summary of the paper’s conclusions can be found in … Continue reading

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Prof Peter White says: If my team’s research on ME is rejected, the patients will suffer

Guardian opinion piece, by Peter White, 20 September 2016: ‘If my team’s research on ME is rejected, the patients will suffer’ Sufferers of chronic fatigue syndrome have been neglected too long. But our Pace trials show the right talking and … Continue reading

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Exercise and therapy cure for ME is ‘seriously flawed’

Times article, by Tom Whipple, 28 September 2016: Exercise and therapy cure for ME is ‘seriously flawed’ A landmark study suggesting that ME could be treated with exercise and psychological intervention is seriously flawed, scientists have claimed. If correct, it … Continue reading

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ME/CFS Patient Organisations should be free to not promote CBT & GET for ME/CFS & the models underlying them

Facebook post  by Tom Kindlon, 24 July 2016: ME/CFS Patient Organisations should be free to not promote CBT and GET for ME/CFS and the models underlying them As somebody involved in running a myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patient organisation … Continue reading

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A UK based review of recommendations for the management of CFS

Research highlights: There were marked discrepancies between patient and professional sources’ views on treatment recommendations. Patient organisations preferentially recommended medicines, pacing and complementary treatments Medical organisations recommended rehabilitation therapies Research abstract: Objectives: Chronic fatigue syndrome (CFS) is a controversial illness, with … Continue reading

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Complementary & alternative healthcare use by participants in PACE trial

Research abstract: Background: Chronic Fatigue Syndrome (CFS) is characterised by persistent fatigue, disability and a range of other symptoms. The PACE trial was randomised to compare four non-pharmacological treatments for patients with CFS in secondary care clinics. The aims of this sub study … Continue reading

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PLOS One journal restates position on data sharing to Prof Coyne

In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting  an … Continue reading

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CFS symptom profiles in UK & Netherlands

Research highlights: • We explore chronic fatigue syndrome (CFS) phenotypes in two large clinical cohorts. • Adults with CFS may have one of 6 symptom-based phenotypes. • Phenotypes were associated with sex, duration of illness, and comorbidity. • Polysymptomatic patients … Continue reading

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