Category Archives: News

NIH report: advancing ME/CFS research

ME Research UK comment, 17 June 2015: The prestigious US scientific journal Annals of Internal Medicine has just published a position paper – Advancing the research on ME/CFS – which summarizes the conclusions of the ‘Pathways to Prevention’ Workshop organized … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on NIH report: advancing ME/CFS research

ME parents’ fury at child abuse claims

Article in Sunday Express by Caroline Wheeler,  June 21, 2015: Hundreds of parents whose children suffer from a crippling illness that leaves them permanently exhausted have been falsely accused of child abuse. Charities have helped hundreds of families of children with … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on ME parents’ fury at child abuse claims

Autoimmune disorders in patients with POTS

Research abstract: Objective: In recent years, there have been a number of studies suggesting that POTS may have an autoimmune etiology. This study examined whether the prevalence of antinuclear antibodies (ANA), other markers of autoimmunity and co-morbid autoimmune disorders is … Continue reading

Posted in News | Tagged , , , , , , , , , , | Comments Off on Autoimmune disorders in patients with POTS

Former Llanelli serviceman inspired by ME sufferer mum

Former Llanelli serviceman to take on 11 physical challenges inspired by ME sufferer mum, in Llanelli Star, June 10, 2015 A former serviceman from Llanelli is pushing his body to the limit — taking on 11 gruelling gruelling physical challenges in a … Continue reading

Posted in News | Comments Off on Former Llanelli serviceman inspired by ME sufferer mum

Gwyn Hopkins walks over 1,000 miles for ME research

First published Tuesday 16 June 2015  in Tivyside advertiser by Enfys Bosworth: Gwyn Hopkins is about to pass the one thousand mile mark on her walk to raise money and awareness for ME research. She set off from Cardigan Castle on … Continue reading

Posted in News | Tagged , , , | Comments Off on Gwyn Hopkins walks over 1,000 miles for ME research

Powerful anti-herpes drug: hope for ME/CFS/FM patients

Powerful anti-herpes drug moves forward: hope for ME/CFS/FM patients by Cort Johnson, June 8, 2015. The “IT” drug for herpesviruses Chimerix has been producing the “it” herpesvirus drug under production. Brincidofovir (formerly CM001) is another example of technology moving forward. … Continue reading

Posted in News | Tagged , , , , , | Comments Off on Powerful anti-herpes drug: hope for ME/CFS/FM patients

Quantum leap in viral detection could impact ME/CFS & FM

Breakthrough findings in an individual disorder are special, but developing new technology that expands our ability to understand many diseases is something else entirely. It provides the potential to make a difference on a truly vast scale. Those types of … Continue reading

Posted in News | Tagged , , | Comments Off on Quantum leap in viral detection could impact ME/CFS & FM

Natural killer cytotoxicity in CFS

 Research abstract: Natural killer (NK) cytotoxicity of chronic fatigue syndrome (CFS) patients is decreased, as reported by several laboratories. This observation led us to query whether the NK cells also lack antibody-dependent cell-mediated cytotoxicity (ADCC). NK cells have the IgG … Continue reading

Posted in News | Tagged , , , | Comments Off on Natural killer cytotoxicity in CFS

The relationship between IBS, dyspepsia, chronic fatigue and overactive bladder syndrome

Research article abstract: Background: To investigate in a cohort with previous gastrointestinal infection and a control group the prevalence of overactive bladder syndrome (OAB), and how it was associated with three other functional disorders; irritable bowel syndrome (IBS), functional dyspepsia … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on The relationship between IBS, dyspepsia, chronic fatigue and overactive bladder syndrome

Fatigue is prevalent and debilitating in patients with mitochondrial disease

Highlights Perceived fatigue is a prominent and often debilitating symptom in patients with mitochondrial disease. Perceived fatigue correlates with disease severity but not genotype. Excessive sleepiness is prevalent but dissociated with perceived fatigue in patients with mitochondrial disease. Perceived fatigue … Continue reading

Posted in News | Tagged , , , | Comments Off on Fatigue is prevalent and debilitating in patients with mitochondrial disease