Category Archives: News
Physiotherapist warns about graded exercise therapy (GET) in ME/CFS
Physio Michelle Bull has a special interest in exercise for people with chronic fatigue – because her son has the condition I read the article about graded exercise therapy (GET) (Frontline, 20 March) with great interest as a physiotherapist and … Continue reading
Sleep disorders in CFS
Research Abstract Objectives: Despite sleep disturbances being a central complaint in patients with chronic fatigue syndrome (CFS), evidence of objective sleep abnormalities from over 30 studies is inconsistent. The present study aimed to identify whether sleep-specific phenotypes exist in CFS … Continue reading
Evidence from research into childhood CFS/ME is lacking
Review Abstract Purpose A range of interventions have been used for the management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in children and adolescents. Currently, debate exists as to the effectiveness of these different management strategies. The objective of this review … Continue reading
Diagnosis difficulties for black and minority ethnic people in UK
Research Abstract Aim This study aims to explore the possible reasons for the lower levels of diagnosis of chronic fatigue syndrome/myalgic encephalitis (CFS/ME) in the black and minority ethnic (BME) population, and the implications for management. BACKGROUND: Population studies suggest … Continue reading
A strategy for defining and distinguishing ME & CFS
Abstract The symptom spectrum of Myalgic Encephalomyelitis (ME) was first detailed in 1959 and later operationalised into a diagnostic protocol (Melvin Ramsey). In 1988 the Holmes case definition coined the term chronic fatigue syndrome (CFS). Fukuda’s Centers for Disease Control … Continue reading
Definitions of CFS/ME used in prevalence research
Abstract Purpose Prevalence estimates have been based on several case definitions of chronic fatigue syndrome (CFS). The purpose of this work is to provide a rigorous overview of their application in prevalence research. Methods A systematic review of primary studies … Continue reading
Increased 5-HT autoimmune activity in ME/CFS
Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is accompanied by activation of immuno-inflammatory pathways, increased bacterial translocation and autoimmune responses to serotonin (5-HT). Inflammation is known to damage 5-HT neurons while bacterial translocation may drive autoimmune responses. This study has … Continue reading
Caru James interview about ME on S4C
Caru James talks in Welsh on S4C’s Prynhawn Da about her experience of ME and employment with ME. Prynhawn Da episode 53 (available until 20 June) Caru’s interview begins at 27 minutes for 5 minutes.
ME recognition & care ‘lacking’ in Wales
An ITV news report on 13th May 2013 highlighted the problems faced by people with ME in finding health and social care in Wales: People with the condition ME in Wales say they suffer from an absence of specialist care, … Continue reading
Internet CBT no more effective long term than usual care
Abstract OBJECTIVE: Cognitive behavioral therapy (CBT) is known to be an effective treatment of adolescents with chronic fatigue syndrome (CFS), but its availability is limited. Fatigue in Teenagers on the Internet (FITNET), an Internet-based CBT program for adolescents with CFS, … Continue reading
