Tag Archives: GET

Safe Long COVID & ME/CFS rehabilitation

Safe Long COVID Rehabilitation a video from Long COVID Physio   Physiotherapists living with Long COVID have produced a short video [5 mins 15] for fellow physios explaining the importance of providing safe rehabilitation for people with LC and ME/CFS. … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on Safe Long COVID & ME/CFS rehabilitation

Cwm Taf Morgannwg UHB say they do not offer GET for ME/CFS

Cwm Taf Morgannwg UHB is “aware of the revised ME/CFS NICE guideline”   WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think … Continue reading

Posted in News | Tagged , , , , , , , | 1 Comment

The evidence base for physiotherapy in ME/CFS

The evidence base for physiotherapy in myalgic encephalomyelitis/chronic fatigue syndrome when considering post-exertional malaise: a systematic review and narrative synthesis, by Marjon E A Wormgoor & Sanne C Rodenburg in Journal of Translational Medicine vol 19, Article no: 1 (2021) … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on The evidence base for physiotherapy in ME/CFS

Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials

Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials: an in-depth look at exercise therapy for chronic fatigue syndrome by Michiel Tack, David M Tuller & Caroline Struthers in Fatigue: Biomedicine, Health & Behavior Vol 8, 2020 … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials

NICE draft ME/CFS guideline says NO to graded exercise therapy (GET) cure!

NICE draft ME/CFS guideline now out for consultation   The draft of the revised NICE guideline has been published on November 10th 2020. It will be open for consultation until December 22nd. As a stakeholder WAMES will be responding to … Continue reading

Posted in News | Tagged , , , | Comments Off on NICE draft ME/CFS guideline says NO to graded exercise therapy (GET) cure!

Graded Exercise Therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane Review

Graded Exercise Therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane review, by Mark Vink, Friso Vink-Niese in Work vol. 66, no. 2, pp. 283-308, 20 July 2020 [doi:10.3233/WOR-203174]   Research abstract: Background: Cochrane recently amended its … Continue reading

Posted in News | Tagged , , , , , , , , , | Comments Off on Graded Exercise Therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane Review

Severe ME in children

Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS]   Guideline abstract The current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the … Continue reading

Posted in News | Tagged , , , , , , , , , , , , | Comments Off on Severe ME in children

NICE Statement about graded exercise therapy in the context of COVID-19

Statement about graded exercise therapy in the context of COVID-19   NICE is aware of concerns about graded exercise therapy (GET) for people who are recovering from COVID-19. NICE’s guideline on ME/CFS (CG53) was published in 2007, many years before … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on NICE Statement about graded exercise therapy in the context of COVID-19

The concept of ‘illness without disease’ impedes understanding of CFS: a response to Sharpe & Greco

The concept of ‘illness without disease’ impedes understanding of chronic fatigue syndrome: a response to Sharpe and Greco, by Steven Lubet, David Tuller in BMJ Medical Humanities. Published Online First: 01 June 2020. [doi: 10.1136/medhum-2019-011807]   Article abstract: In a … Continue reading

Posted in News | Tagged , , , , , , , , , , | Comments Off on The concept of ‘illness without disease’ impedes understanding of CFS: a response to Sharpe & Greco

Rethinking the standard of care for ME/CFS

Rethinking the standard of care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Fred Friedberg, Madison Sunnquist, Luis Nacul in Journal of General Internal Medicine, Published online: 21 October 2019 [doi.org/10.1007/s11606-019-05375-y ]   Article abstract: For over two decades, the standard of … Continue reading

Posted in News | Tagged , , , , , , , , , , , | Comments Off on Rethinking the standard of care for ME/CFS