My Neuro survey 2021



People living with neurological conditions across the UK are being asked to take part in the largest neurological survey to help improve vital services and support.

Anybody, of any age, with a neurological condition or suspected neurological condition in England, Scotland, Wales and Northern Ireland can take part. The survey contains 41 questions and takes around 20 minutes to complete.

One in six people have a neurological condition – a condition that affects the brain, spine and/or nerves. There are over 600 neurological conditions, including dementia, ataxia, migraine, epilepsy, Tourette syndrome, Parkinson’s, multiple sclerosis, motor neurone disease and cerebral palsy and of course Myalgic Encephalomyelitis (ME).

The survey asks questions about daily life, mental wellbeing, diagnosis, treatment and support, and how the COVID-19 pandemic has impacted care.

  • fill out the survey online here 
  • or over the phone by calling survey partners Quality Health on Freephone 0800 7831775
  • you can also request the survey in large print, in Easy Read, or in any language by calling the above number.

Every response counts

Your experiences help to build an accurate picture of the quality of treatment, care and support for people with neurological conditions in the UK. They will help show where access to and quality of care is good, and where it is lacking or could be improved. The results will be used to call on UK governments and healthcare bodies for much needed support to reduce variation in care and support services to recover following the disruption caused by COVID-19.

Previous survey results have been used to improve services in hospitals, develop new specialist centres, and spark debate in parliament.

WAMES is a member of the Wales Neurological Alliance

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