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- Illness duration, mood and symptom impact in adolescents with CFS/ME
- ME Support group meets Llanelli 22 June 2019
- Orthostatic intolerance in CFS
- Clinical symptoms & markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection
- Abnormal blood lactate accumulation during repeated exercise testing in ME/CFS
Archives
Tag Archives: survey
Healthcare services for people with ME & CFS in Wales – your views needed
Healthcare services for people with ME & CFS in Wales a clinical research study by a third-year medical student at Cardiff University Aim of the project: The aim of this project is to better understand healthcare services for people … Continue reading
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Tagged Cardiff University, Dr Nina Muirhead, healthcare services, survey
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CBT & GET patient survey – ends 31 Jan 2019
CBT and GET Patient Survey Forward ME has launched a survey, having been asked by the National Institute of Health and Care Excellence (NICE) to gather evidence and experiences of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). NICE … Continue reading
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Tagged CBT, cognitive behavioural therapy, Forward ME Group, GET, graded exercise therapy, National Institute for Health and Care Excellence, NICE guideline ME/CFS, survey
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DBC Universal Credit survey – your experiences needed
Universal Credit survey launched! October 31, 2018 The Disability Benefits Consortium has launched a Universal Credit survey #UCandme so that we can find out more about the experiences of disabled people and people with long term health conditions. [WAMES is a … Continue reading
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Tagged Benefits, DBC, Disability Benefits Consortium, survey, Universal credit
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One Simple Thing’ survey to improve NHS communication in Wales
One Simple Thing – Communication with the NHS “Tell us One Simple Thing that could be done to make communication with the NHS easier and better?” Community Health Councils in Wales want to hear about your experience around communication with … Continue reading
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Tagged CHC, Community Health Councils, NHS Wales, One simple thing campaign, survey
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Working carers’ survey 2017-18: give your views
Carers Wales Campaign 2017/18: Working Carers Survey As the working population ages and our loved ones are living longer, supporting carers who work is becoming increasingly important. More and more of us will be juggling caring responsibilities at home alongside work. … Continue reading
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Tagged carers, Carers Wales, employment, survey
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Have you been offered Direct payments? Give your experience to Disability Wales
Disability Wales Direct Payments survey Do you have Direct payments or been offered it but turned it down? Disability Wales needs your views – help them design a new project. The survey results will remain anonymous and will be used to … Continue reading
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Tagged Direct Payments, Disability Wales, survey
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Can you help design a Patient Reported Experience Measure (PREM) for neurological conditions?
If you have, or are affected by, a neurological condition, the Wales Neurological Alliance wants your views on how best to capture health care experiences of people who are affected by neurological conditions through creating a fit-for-purpose, Wales wide survey. With … Continue reading
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Tagged Patient reported experience measures, PREMS, survey, Wales neurological alliance
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Big Benefits Survey 2017
Big Benefits Survey 2017: The Disability Benefits Consortium (of which WAMES is a member) wants to find out more about disabled people’s experiences of applying for and getting benefits. This will help us campaign to make sure the system is fair for … Continue reading
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Tagged Benefits, DBC, Disability Benefits Consortium, survey
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Men’s sheds Cymru Project – men’s views invited
Men’s Sheds Cymru Project This project helps men who are lonely, isolated or just have time on their hands to set-up up a Men’s Shed – a community space for men where they can pursue activities, get involved with local … Continue reading
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Tagged Men's Sheds Cymru, survey
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Take part in a survey of the experiences of disabled & sick children
Every disabled child matters survey The Disabled Children’s Partnership are getting closer and closer to launching their Every Disabled Child Matters campaign. campaign this summer. But they can’t do it without you! Their campaign is all about sharing the experiences of disabled children and those caring … Continue reading
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Tagged children, every disabled child matters, survey
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