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Latest News
- WAMES Facebook interruption
- Environmental accommodations for university students affected by ME/CFS
- DecodeME DNA Study Management Team webinar video
- Two-Day cardiopulmonary exercise testing in females with a severe grade of ME/CFS: comparison with patients with mild & moderate disease
- “That’s why they don’t believe you, you don’t look sick!”: creating medical credibility & patient visibility for ME/CFS through television
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Tag Archives: survey
Survey of severe ME – help inform the NICE guidelines
Survey of severe ME Dr Keith Geraghty & Manchester University are conducting a study to better understand the needs and views of patients with severe ME/CFS. This project has been commissioned by the National Institute of Health and Care Excellence (NICE) … Continue reading
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Tagged Dr Keith Geraghty, National Institute for Health and Care Excellence, NICE, severe ME, survey
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Nurse staffing levels – what is your experience?
Nurse staffing levels in Wales The Royal College of Nursing Wales are currently assessing the experience of patients / carers in respect of nurse staffing levels. This is linked to the Nurse Staffing Levels (Wales) Act which became law in … Continue reading
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Tagged nurses, Royal College of Nursing Wales, safe staffing campaign, survey
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Survey of the experiences of children & young people with ME for NICE
The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading
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Tagged Action for ME, adolescents, AfME, children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, Oxford Brookes University, survey, teenagers, young people
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Take part in a research project: health conditions & employment
Investigating the impact of health conditions on employees’ experiences of work – a research project You are invited to take part in a research project looking into the impact explore whether having a health condition affects people’s experiences at work. … Continue reading
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Tagged disability employment, Kings College Business school, Kings College London, research study, survey
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Healthcare services for people with ME & CFS in Wales – your views needed
Healthcare services for people with ME & CFS in Wales a clinical research study by a third-year medical student at Cardiff University Aim of the project: The aim of this project is to better understand healthcare services for people … Continue reading
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Tagged Cardiff University, Dr Nina Muirhead, healthcare services, survey
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CBT & GET patient survey – ends 31 Jan 2019
CBT and GET Patient Survey Forward ME has launched a survey, having been asked by the National Institute of Health and Care Excellence (NICE) to gather evidence and experiences of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). NICE … Continue reading
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Tagged CBT, cognitive behavioural therapy, Forward ME Group, GET, graded exercise therapy, National Institute for Health and Care Excellence, NICE guideline ME/CFS, survey
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DBC Universal Credit survey – your experiences needed
Universal Credit survey launched! October 31, 2018 The Disability Benefits Consortium has launched a Universal Credit survey #UCandme so that we can find out more about the experiences of disabled people and people with long term health conditions. [WAMES is a … Continue reading
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Tagged Benefits, DBC, Disability Benefits Consortium, survey, Universal credit
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One Simple Thing’ survey to improve NHS communication in Wales
One Simple Thing – Communication with the NHS “Tell us One Simple Thing that could be done to make communication with the NHS easier and better?” Community Health Councils in Wales want to hear about your experience around communication with … Continue reading
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Tagged CHC, Community Health Councils, NHS Wales, One simple thing campaign, survey
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Working carers’ survey 2017-18: give your views
Carers Wales Campaign 2017/18: Working Carers Survey As the working population ages and our loved ones are living longer, supporting carers who work is becoming increasingly important. More and more of us will be juggling caring responsibilities at home alongside work. … Continue reading
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Tagged carers, Carers Wales, employment, survey
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Have you been offered Direct payments? Give your experience to Disability Wales
Disability Wales Direct Payments survey Do you have Direct payments or been offered it but turned it down? Disability Wales needs your views – help them design a new project. The survey results will remain anonymous and will be used to … Continue reading
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Tagged Direct Payments, Disability Wales, survey
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