Tag Archives: survey
Survey of severe ME – help inform the NICE guidelines
Survey of severe ME Dr Keith Geraghty & Manchester University are conducting a study to better understand the needs and views of patients with severe ME/CFS. This project has been commissioned by the National Institute of Health and Care Excellence (NICE) … Continue reading
Take part in a research project: health conditions & employment
Investigating the impact of health conditions on employees’ experiences of work – a research project You are invited to take part in a research project looking into the impact explore whether having a health condition affects people’s experiences at work. … Continue reading
Healthcare services for people with ME & CFS in Wales – your views needed
Healthcare services for people with ME & CFS in Wales a clinical research study by a third-year medical student at Cardiff University Aim of the project: The aim of this project is to better understand healthcare services for people … Continue reading
Can you help design a Patient Reported Experience Measure (PREM) for neurological conditions?
If you have, or are affected by, a neurological condition, the Wales Neurological Alliance wants your views on how best to capture health care experiences of people who are affected by neurological conditions through creating a fit-for-purpose, Wales wide survey. With … Continue reading
30% of people with ME/CFS in Japan are severely affected
Article abstract: In 2014, the Japanese Ministry for Health, Labour, and Welfare commissioned a national patient survey of ME/CFS patients in Japan. Japan ME Association president Mieko Shinohara graciously summarizes the survey results here for us, which revealed that 30% of ME/CFS patients … Continue reading
Depression-like symptoms in ME research – invitation to participate
Prof Leonard Jason writes on Facebook, 14 October 2016: Our recent paper “Mortality in patients with ME and CFS” found patients are significantly at risk for earlier all-cause mortality with the top three causes of death being suicide, cardiovascular problems, and … Continue reading
Help improve info about raising a concern or complaint in NHS Wales
Putting Things Right leaflet – How to raise a concern or complaint about the NHS in Wales Gweithio i Wella – Sut i leisio pryder am y GIG yng Nghymru NHS Wales is reviewing the ‘Putting Things Right’ leaflet as part of … Continue reading
