Article abstract:
Once again, the PACE authors respond to concerns with empty answers, by David Tuller in Journal of Health Psychology [Published April 27, 2017]
In their response to Geraghty, the PACE investigators state that they have “repeatedly addressed” the various methodological concerns raised about the trial. While this is true, these responses have repeatedly failed to provide satisfactory explanations for the trial’s very serious flaws.
This commentary examines how the current response once again demonstrates the ways in which the investigators avoid acknowledging the obvious problems with PACE and offer non-answers instead—arguments that fall apart quickly under scrutiny.
WHY, When so many medical investigators/researchers (Glasgow and Dundee University Hospitals and many more) have found physical/biological abnormalities in the white blood cells ….. and more of patients with ME/CFS is research focassed only on CBT and GET? If I know these facts, so must the Pace authors?!
We appreciate that this long term illness must bring psychological problems for sufferers, but is not the cause of the illness, and CBT and GET should deffinitely NOT be the only treatment for ME/CFS. In fact over exertion can be so damaging for sufferers and can cause a long term relapse that can exacabate their symptoms; this is what happened to my daughter. It caused a relapse for many months.
It is about time there was government backed biological research and education. It is URGENT!
In the UK 250.000 people suffer this illness, AND 25% are SEVERE. We are talking about 60,000 people who are HOUSEBOUND or BEDRIDDEN. THE MEDICAL TREATMENT HAS NOT CHANGED IN ALL THE 25 YEARS SINCE MY DAUGHTER BECAME ILL with GLANDULAR FEVER AT THE AGE OF ELEVEN YEARS.
THE TRUE MEANING OF ME/CFS HAS BEEN REPEATEDLY AND UNJUSTLY IGNORED BY THE MEDICAL PEOPLE AND GOVERNMENTS, CAUSING UNTOLD SUFFERRING TO THOUSANDS.
We recognise that there is no official cure, but if there were CLINICS WITH EDUCATED DOCTORS, treatment could help sufferers to have a better quality of life, and become useful members of society, instead of being a DRAIN on the PUBLIC PURSE. AT PRESENT. THERE ARE VERY FEW APPROPRIATE CLINICS IN THE UK AND NOTHING ATALL IN WALES.
We are DESPERATE for an ME/CFS CLINIC IN WALES. GP’s have NOWHERE TO SEND PATIENTS WITH ME/CFS. Thank you for reading this. D P