Evert effort is made to ensure that the contents of the WAMES website are accurate and up to date. The information contained on the site is of a general nature and is intended to provide a public information service, free of charge. It is not intended to replace medical advice from a GP or specialist or any other qualified professional. The information should not be relied upon or used without first confirming its accuracy.

WAMES will not accept liability for any loss or damage or inconvenience caused by either the use of, or the inability to use its website information. There is no guarantee that the information given is exhaustive. Information on this website is subject to change without prior notice.

WAMES also accepts no responsibility for the contents of linked websites. Links should not be taken as an endorsement of any kind. Any references on this website to products, therapies, services or clinics do not constitute or imply endorsement by WAMES unless expressly stated.

Social media

The Welsh Association of ME & CFS Support – WAMES – has several active communities online, including, but not limited to, Facebook, Twitter, and blog pages. We encourage you to take a look at them and get involved. We appreciate open discussions and look forward to your comments, stories and experiences.

Before you post, please be aware that:

  • We monitor, moderate and will remove/alter inappropriate posts
  • WAMES does not necessarily agree with all the information, opinions and views shared on WAMES’ platforms.
  • Anything you post may be available online for years to come.
  • WAMES may use information you post (albeit anonymously) for purposes such as campaigning and fundraising.

For more information make sure to read the full Social Media Disclaimer below.

Social Media Disclaimer

We do make reasonable efforts to monitor participation to ensure that you stay on topic, are courteous and avoid making offensive comments. Please remember that information posted on any of our social media platforms should not be considered medical advice and should not replace a consultation with a health care professional. Information or “following” should not be considered an endorsement for the respective person, brand, or concept.

Please be aware that once you post something online, there is the potential for many people to read your words, even years from now. As a result, we suggest that you exercise caution when posting medical information on any of our social media sites and that you do not disclose personal identifiable information like your medical record number, financial information, etc.

The opinions and/or views expressed on WAMES’ social media platforms, represent the thoughts of individual bloggers, social media managers, and online communities, and not those necessarily of WAMES. The opinions and views expressed on these pages do not in any way reflect the views of the site they are posted on, other sites affiliated with the site, the people involved with maintaining the site or any members of the site.

While WAMES makes reasonable efforts to monitor and/or moderate content posted on its social media platforms, we do not moderate all comments and cannot always respond in a timely manner to online requests for information.

WAMES reserves the sole right to review, edit and/or delete any comments it deems are inappropriate. Comments including, but not limited to, the following may be deleted or edited by the moderators:

  • Abusive or hurtful comments about a blogger or another participant
  • Off-topic and redundant comments (this includes promotion of events, groups, pages, Web sites, organizations and programs not related to WAMES)
  • Comments that use foul language or “hate speech” (for example, including but not limited to racial, ethnic or gender bashing language)
  • Personal attacks or defamatory statements or comments (i.e., making negative personal or untrue comments about a participant), instead of constructive criticism of his/her posting, opinion or comments
  • Comments that violate the privacy of patients and their families

All links to other Web sites found linked from WAMES’ social media sites are provided as a service to readers, but such linkage does not constitute endorsement of those sites by WAMES, and as such we are not responsible for the content of external websites.

By submitting content to any of WAMES’ social media sites, you understand and acknowledge that this information is available to the public, and that WAMES may use this information for internal and external promotional purposes and fundraising purposes. Please note that other participants may use your posted information beyond the control of WAMES. If you do not wish to have the information you have made available via this site used, published, copied and/or reprinted, please do not post on our pages.

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