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People with ME/CFS have long been told it’s all in their head – these scientists disagree
The Canary blog, 8 June 2016, by Conrad Bower: CFS have long been told it’s all in their head – these scientists disagree A conference bringing together the brightest minds in Myalgic Encephalomyelitis a.k.a Chronic Fatigue Syndrome (ME/CFS) research, presented … Continue reading
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Tagged biomedical research, Dr Ian Gibson, gut microbiome, Invest in ME, rituximab, Severely Ill-BIG DATA Study, The Canary
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The Microbe Discovery Project
The Microbe Discovery Project makes a plea for donations. It is a patient-led initiative supporting Dr. Ian Lipkin & Dr. Mady Hornig’s ME/CFS research at the Columbia University Center for Infection and Immunity, Mailman School of Public Health, New York. “ME/CFS … Continue reading
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Tagged biomedical research, Dr Daniel Peterson, Dr Jose Montoya, Microbe Discovery Project, Prof Ian Lipkin, Prof Mady Hornig
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the Solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which he co-authored, and which highlights some of the most promising biomedical research on ME/CFS. Phoenix rising blog post, 12 May 2016: Professor & patients’ paper on the solvable biological … Continue reading
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Tagged biomedical research, Prof Jonathan Edwards, Simon McGrath
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MEGA: new UK research alliance announces ‘big data’ study
MEGA: ME/CFS Epidemiology and Genomics Alliance: On the 13th and 14th of April 2016, experts from multiple fields came together for a ‘grand challenge’ workshop to discuss how to advance research in understanding CFS/ME. It was agreed that: Very large … Continue reading
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Tagged biomedical research, ME/CFS Epidemiology and Genomics Alliance, MEGA, research, UK CFS/ME Research Collaborative, UK CMRC
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The biological challenge of ME/CFS: a solvable problem
Article introduction: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is comparable to multiple sclerosis, diabetes or rheumatoid arthritis in prevalence (∼0.2% to 1%), long-term disability, and quality of life,[1–5] yet the scale of biomedical research and funding has been pitifully limited, as … Continue reading
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Tagged Adrian Baldwin, Andrew Kewley, biomedical research, Mark Livingstone, Prof Jonathan Edwards, Simon McGrath
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A list of ME abnormalities & research citations
Paradigm change blog article, 4 April 2016: ME medical abnormalities More than 500 peer-reviewed articles have been published demonstrating a wide variety of physiological abnormalities in patients with “Chronic Fatigue Syndrome” (a broader condition that currently encompasses patients with the more … Continue reading
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Tagged biomedical research, media coverage, Paradigm change
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New US CFS research initiative announced
NIH announces new effort to tackle chronic fatigue syndrome in the Washington Post, by Lenny Bernstein, October 29 The director of the National Institutes of Health announced a new initiative Thursday to find a cause and treatment for chronic fatigue … Continue reading
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Tagged biomedical research, National Institutes of Health, NIH
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Dr Alan Light video lecture on new developments in ME/CFS research
SolveCFS video: New Developments in ME/CFS Research [Published Oct 15, 2015] Presented by Dr. Alan R. Light, Research Professor of Anesthesiology and Neurobiology and Anatomy at the University of Utah. Download Powerpoint for lecture. Dr. Light received his PhD from … Continue reading
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Tagged Alan R Light, biomedical research, Solve ME/CFS Initiative
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Patients’ ME research priorities
Research abstract: Background: The aim of this work was to involve patients in setting future priorities for myalgic encephalomyelitis (M.E.) research. Methods: A national on-line survey was developed collecting structured and unstructured data. Respondents were asked what they considered Action … Continue reading
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Tagged Action for ME, AfME, biomedical research, Prof Julia Newton
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US medical research agency urges biomedical research into ME/CFS
An independent panel convened by the National Institutes of Health concluded that ME/CFS is a complex, multifaceted disorder characterized by extreme fatigue and many other symptoms (including impairment of memory or concentration, post-exertional malaise, and pain) which can result in … Continue reading
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Tagged biomedical research, Dr Carmen R Green, National Institutes of Health, NIH
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