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- ME support group meets in Montgomery 21 Aug 2019
- Depressive symptoms at age 9-13 & chronic disabling fatigue at aged 16
- Fatigue, Sleep, and Autoimmune and Related Disorders
- Fundraising campaign for research into distress caused by medical encounters
- Stress management course, begins Swansea 16 Aug 2019
Archives
Tag Archives: biomedical research
ME & CFS need rigorous science & respectful collaboration
ME & CFS need rigorous science & respectful collaboration. There has been a flurry of articles in the media recently accusing internet trolls of forcing a few researchers out of ME/CFS research. WAMES takes the view that all research should … Continue reading
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Tagged biomedical research, collaboration, cooperation
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UK parliament Q&A: CFS Research
UK House of Commons Written Questions and Answers: Chronic Fatigue Syndrome: research: Written question – 221619, & 221620. 22 February 2019. Question 1: Asked by Sharon Hodgson (MP Washington & Sunderland) 14 February 2019 To ask the Secretary of … Continue reading
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Tagged biomedical research, Caroline Skidmore MP, Medical Research Council, MRC, National Institute for Health Research, NIHR, Sharon Hodgson MP, Steve Brine MP
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Neuroinflammation & cytokines in ME/CFS: a critical review of research methods
Neuroinflammation and cytokines in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): a critical review of research methods, by Michael B VanElzakker, Sydney A. Brumfield and Paula S. Lara Mejia in Front. Neurol., 10 January 2019 Review article abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) … Continue reading
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Tagged biomedical research, cytokines, Dr Michael Van Elzakker, Neuroinflammation, Paula S Lara Mejia, Sydney A Brumfield
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Hope, disappointment and perseverance: reflections of people with ME/CFS & MS participating in biomedical research
Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study, by Eliana M. Lacerda, Clare McDermott, Caroline C. Kingdon, Jack Butterworth, Jacqueline M Cliff, … Continue reading
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Tagged biomedical research, Caroline C Kingdon, Clare McDermott, Clinical Understanding and Research Excellence in ME/CFS group, CureME, Dr Luis Nacul, Eliana M Lacerda, Jack D Butterworth, Jacqueline M Cliff, MS, Multiple Sclerosis, patient involvement
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The UK ME/CFS Biobank
The UK ME/CFS Biobank: A disease-specific biobank for advancing clinical research into myalgic encephalomyelitis/ chronic fatigue syndrome, by Eliana M. Lacerda, Kathleen Mudie, Caroline C. Kingdon, Jack D. Butterworth, Shennae O’Boyle, Luis Nacul in Frontiers in Neurology, 14 Nov 2018 [preprint Abstract: Myalgic encephalomyelitis/chronic … Continue reading
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Tagged biomedical research, Caroline C Kingdon, Dr Luis Nacul, Eliana M Lacerda, Jack D Butterworth, Kathleen Mudie, Shennae O'Boyle, UK ME/CFS Biobank
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Checking our blind spots: current status of research evidence summaries in ME/CFS
Checking our blind spots: current status of research evidence summaries in ME/CFS, by Todd E Davenport, Staci R Stevens, J Mark VanNess, Jared Stevens, Christopher R Snell in British Journal of Sports Medicine, July 2018 Editorial: The evidence-based practice (EBP) … Continue reading
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Tagged biomedical research, CBT, Christopher R Snell, GET, Jared Steven, PACE trial, Prof Mark VanNess, Staci R Stevens, Todd E Davenport
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Status of research, treatment & perception of Myalgic Encephalomyelitis 2018
Invest in ME Research UK blog post, June 2018: Status of Research, Treatment and Perception of Myalgic Encephalomyelitis 2018 Accountability and Action “None of the recommendations from the CMO Working Group report have been fulfilled – a testament to the … Continue reading
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Tagged biomedical research, Invest in ME
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Video: Prof Komaroff on Hot topics in ME/CFS research
Solve ME/CFS Initiative video: “Hot Areas in ME/CFS Research: 2018” presented by Anthony L. Komaroff, MD, Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School and Senior Physician at Brigham and Women’s Hospital Published on 29 May 2018 Summary of contents: … Continue reading
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Tagged biomedical research, James Moore, Margaret Williams, Prof Anthony Komaroff
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CFS – it’s worse than Multiple Sclerosis
Health rising blog post, by Cort Johnson, 16 April 2018: Chronic Fatigue Syndrome – It’s Worse than Multiple Sclerosis – and Fibromyalgia is No Walk in the Park Either Multiple sclerosis (MS) is a dreaded disease. About ten years into … Continue reading
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Tagged biomedical research, Cort Johnson, Fibromyalgia, FM, MS, Multiple Sclerosis, Prof Leonard Jason
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Scottish Government & AFME to fund ME research
BT news, 22 Feb 2018: A new PhD studentship will seek to improve understanding of the debilitating condition Myalgic Encephalomyelitis. Funding of £90,000 has been announced for research into the causes, diagnosis and treatment of a little-understood illness that blights the lives … Continue reading
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Tagged Action for ME, AfME, biomedical research, Scottish Government
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