Tag Archives: biomedical research

Petition to European Parliament by Evelien Van Den Brink (Dutch) on a request for funding for biomedical research on ME

European Parliament 2019-2024   –    Committee on Petitions 30.8.2019 NOTICE TO MEMBERS Subject: Petition No 0204/2019 by Evelien Van Den Brink (Dutch) on a request for funding for biomedical research on Myalgic Encephalomyelitis 1. Summary of petition The petitioner refers to … Continue reading

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How best to advance ME/CFS research

Responses to Request for Information: Soliciting Input on How Best to Advance Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research in the National Institute of Neurological Disorders and Stroke blog, USA, 20 Aug 2019 Purpose: In 2018 the National Institute of Neurological … Continue reading

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ME & CFS need rigorous science & respectful collaboration

ME & CFS need rigorous science & respectful collaboration. There has been a flurry of articles in the media recently accusing internet trolls of forcing a few researchers out of ME/CFS research. WAMES takes the view that all research should … Continue reading

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UK parliament Q&A: CFS Research

UK House of Commons Written Questions and Answers: Chronic Fatigue Syndrome: research: Written question – 221619, & 221620. 22 February 2019.   Question 1: Asked by Sharon Hodgson (MP Washington & Sunderland) 14 February 2019 To ask the Secretary of … Continue reading

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Neuroinflammation & cytokines in ME/CFS: a critical review of research methods

Neuroinflammation and  cytokines in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): a critical review of research methods, by Michael B VanElzakker, Sydney A. Brumfield and Paula S. Lara Mejia in Front. Neurol., 10 January 2019 Review article abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) … Continue reading

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Hope, disappointment and perseverance: reflections of people with ME/CFS & MS participating in biomedical research

Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study, by Eliana M. Lacerda, Clare McDermott, Caroline C. Kingdon, Jack Butterworth, Jacqueline M Cliff, … Continue reading

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The UK ME/CFS Biobank

The UK ME/CFS Biobank: A disease-specific biobank for advancing clinical research into myalgic encephalomyelitis/ chronic fatigue syndrome, by Eliana M. Lacerda, Kathleen Mudie, Caroline C. Kingdon, Jack D. Butterworth, Shennae O’Boyle, Luis Nacul in Frontiers in Neurology, 14 Nov 2018 [preprint Abstract: Myalgic encephalomyelitis/chronic … Continue reading

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Checking our blind spots: current status of research evidence summaries in ME/CFS

Checking our blind spots: current status of research evidence summaries in ME/CFS, by Todd E Davenport, Staci R Stevens, J Mark VanNess, Jared Stevens, Christopher R Snell in British Journal of Sports Medicine, July 2018 Editorial: The evidence-based practice (EBP) … Continue reading

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Status of research, treatment & perception of Myalgic Encephalomyelitis 2018

Invest in ME Research UK blog post, June 2018: Status of Research, Treatment and Perception of Myalgic Encephalomyelitis 2018 Accountability and Action “None of the recommendations from the CMO Working Group report have been fulfilled – a testament to the … Continue reading

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Video: Prof Komaroff on Hot topics in ME/CFS research

Solve ME/CFS Initiative video: “Hot Areas in ME/CFS Research: 2018” presented by Anthony L. Komaroff, MD, Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School and Senior Physician at Brigham and Women’s Hospital Published on 29 May 2018 Summary of contents: … Continue reading

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