Tag Archives: e-petition

1,000 signatures in 12 hours! e-petition to remove GET & CBT from NICE guidance immediately

Posted on 02/23/2018 by wames

Change.org petition, started by Robin Brown, 23 Feb 2017: Stop harming ME/CFS patients – take CBT/GET out of NICE guidelines NOW Robin Brown started this petition to Director, Centre for Guidelines, NICE & director Prof. Mark Baker NICE has promised to … Continue reading →

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The NICE guidelines – starting again?

Posted on 01/24/2018 by wames

mrspoonseeker blog post, 21 Jan 2018: The NICE Guidelines – Starting Again? N.B. Please sign the NICE Guidelines Committee petition – see below. There was some encouraging feedback from the recent NICE ME/CFS Guidelines Stakeholder meeting, an early milestone in the long … Continue reading →

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Petition to develop disability access monitoring of buildings in Wales

Posted on 11/29/2017 by wames

National Assembly for Wales e-petition e-Petition: 23 Nov 2017: We call for all premises in Wales to be awarded an Access Certificate number similar to the Food Hygiene Certificate. We are calling for the Welsh Government to bring in an … Continue reading →

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E-petition asks UK Government to ensure eligible carers get state pension ‘Carer’s Credits’

Posted on 01/03/2017 by wames

UK Government and Parliament petition: Take action so that 237,000 eligible carers get state pension ‘Carer’s Credits’ The government must do more ensure approximately 237,000 carers receive National Insurance (NI) credits to their state pension. It’s estimated that as many … Continue reading →

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Petition to force action on the UNCRPD report citing violations of disabled rights

Posted on 11/29/2016 by wames

UK Government & Parliament Petition: Force the government to act on the eleven recommendations of the UNCRPD report As a result of being investigated by a United Nations committee for not fulfilling the terms of the UNCRPD, the government have … Continue reading →

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Dutch people with ME invite you to sign their petition – ME is not MUPS

Posted on 11/14/2016 by wames

Dutch ME Association ME/cvs Vereniging invites people in Wales to join them in signing a petition to the Dutch Health Council. They are concerned about attitudes to ME following the Dutch FITNET trial (which is now influencing research in the … Continue reading →

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MEGA ‘big data’ study Q&A

Posted on 10/06/2016 by wames

Change.org petition update: MEGA Questions and Answers, by M.E./CFS Epidemiology and Genomics Alliance (MEGA), 5 October 2016 Many of you have asked us questions about MEGA. We have not yet applied for funding and the patient advisory groups have not … Continue reading →

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MEGA research for M.E./CFS: pledge your support

Posted on 09/30/2016 by wames

Action for ME blog post, 28 Sep 2016: MEGA research for M.E./CFS: pledge your support Please add your voice to support a significant biomedical research project to investigate the biology of M.E. Launched at the UK CFS/M.E. Research Collaborative conference, the M.E./CFS Epidemiology … Continue reading →

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UK and global petitions to stop GET trials for ME/CFS

Posted on 09/14/2016 by wames

The ME Action network has launched a campaign to stop trials into Graded Exercise Therapy (GET): stopget.org UK citizens can sign a petition against all trials for GET on the UK government website: Suspend all trials of graded exercise therapy in children … Continue reading →

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UK Government says more high quality CFS/ME research proposals needed

Posted on 07/26/2016 by wames

A petition with 15,400 signatures calling for ‘good quality research into the root cause of the illness’  closed on 14 July 2016 and received the response that: ‘The Government supports research into CFS/ME through the MRC and the NIHR. High … Continue reading →

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