Tag Archives: IOM

12 US organisations lobby CDC about PACE trial

Posted on 11/23/2015 by wames

Solve ME/CFS Initiative Calls for Review of PACE Trial  20 Nov 2015 The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for … Continue reading →

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Dr Leonard Jason’s reflections on SEID

Posted on 07/21/2015 by wames

Article abstract: The Institute of Medicine (IOM) in the US has recently proposed that the term Systemic Exertion Intolerance Disease (SEID) replace Chronic Fatigue Syndrome (CFS).  In addition, the IOM proposed a new case definition for SEID, which includes substantial … Continue reading →

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World Federation of Neurology writes about ME/CFS

Posted on 07/16/2015 by wames

Article extract: In summary, ME/CFS (SEID) is a serious, chronic, complex and systemic disease that often significantly limits the day-to-day activities of those affected. It is characterized by a prolonged, significant decrease in function; fatigue; post-exertional malaise; unrefreshing sleep; difficulties … Continue reading →

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Challenge & defence of name SEID and IOM’s definition

Posted on 07/14/2015 by wames

Fink and Schröder challenge the validity of the IoM’s new name and definition of ME/CFS: Redefining Myalgic Encephalomyelitis/Chronic Fatigue Syndrome To the Editor: The Institute of Medicine (IOM) proposed a new name (systemic exertion intolerance disease) and diagnostic criteria for myalgic encephalomyelitis/chronic … Continue reading →

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ME/CFS: a real illness

Posted on 07/03/2015 by wames

Comment on the US Institute of Medicine’s report and choice of new name SEID by Prof Anthony Komaroff: Chronic fatigue syndrome (named by some as myalgic encephalomyelitis/chronic fatigue syndrome [ME/CFS]) frustrates many physicians. That is understandable because there are no … Continue reading →

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IOM report comment

Posted on 05/16/2015 by wames

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An IOM Report on Redefining an Illness, by Ellen Wright Clayton MD JD in JAMA March 17, 2015, Vol 313, No. 11 Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multisystem and often long-lasting disorder, with … Continue reading →

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New name & diagnostic criteria for ME/CFS recommended in US

Posted on 02/10/2015 by wames

The committee formed by the Institute of Medicine in the USA to examine diagnostic criteria in ME/CFS released its 280-page report on Tuesday 10th February. Its primary message is that the disease is serious, chronic, complex and multisystem, and that … Continue reading →

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Scientific American highlights brain inflammation studies

Posted on 05/20/2014 by wames

Researchers might soon redefine the mysterious condition, while the latest findings point to the role of brain inflammation by Katherine Harmon Courage in Scientific American, May 16, 2014 More than one million people in the U.S. suffer from a poorly … Continue reading →

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