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Prof Ron Davis outlines key research needs for ME/CFS
OMF blog post, 1 July 2016: Open Medicine Ron Davis’ response to the NIH Request For Information (RFI): Input for New Research Strategies for ME/CFS. We would like to share the information that Dr. Ron Davis sent in response to … Continue reading
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Tagged biomedical research, NIH, Open Medicine Foundation, Prof Ronald W Davis, Stanford ME/CFS Initiative, Trans-National Institutes of Health (NIH) ME/CFS Working Group
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Webinar with Dr Avindra Nath, lead for the NIH intramural ME/CFS study
Solve ME/CFS Webinar with Avindra Nath, M.D. published on Apr 21, 2016 Onward through the fog blog post, by Erica Verillo, 21 April 2016: Reductio ad Absurdum: A Webinar with Dr. Avi Nath [In rhetoric, the device known as reductio ad … Continue reading
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Tagged Dr Avindra Nath, Erica Verillo, NIH, Solve ME/CFS Initiative, webinar
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Major proposed US study acknowledges CFS is physical, not mental
Blog article: CDC study finds CFS is physical, not mental, by Russell Logan 7 March 2016 Also the NIH has dropped the FMD component of its clinical study of post-infectious ME/CFS: Despite decades of suggesting otherwise, the CDC has just … Continue reading
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Tagged CDC Grand Rounds event, Centers for Disease Control and Prevention, Dr Elizabeth Unger, mental, NIH
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US NIH plans in-depth ME/CFS study
Simon McGrath reports on: the most in-depth, comprehensive and innovative ME/CFS studies ever proposed: it’s the first fruit of Director Dr Francis Collins’s ‘new start’ for ME/CFS at the US National Institutes of Health (NIH). Dr Nath, who is Chief … Continue reading
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Tagged National Institutes of Health, NIH, research, Simon McGrath
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Tuller believes there is hope for CFS treatment & research in US
Health affairs blog article by David Tuller, February 4 2016: Re-examining Chronic Fatigue Syndrome Research And Treatment Policy In recent months, two developments have provided some degree of optimism to people with the illness variously called chronic fatigue syndrome, myalgic … Continue reading
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Tagged David Tuller, Institute of Medicine, IOM, LO, National Institutes of Health, NIH, PACE trial
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Medline Plus removes PACE paper
Solve ME/CFS Initiative announces on 5 Dec 2015 that the US National Institutes of Health (NIH) has removed an article on the UK PACE study from Medline Plus, its website for patients. The PACE study reported that ‘cognitive behavioral therapy and graded exercise therapy are among … Continue reading
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Tagged MEAction, Medline Plus, National Institutes of Health, NIH, PACE trial, Solve ME/CFS Initiative
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New US CFS research initiative announced
NIH announces new effort to tackle chronic fatigue syndrome in the Washington Post, by Lenny Bernstein, October 29 The director of the National Institutes of Health announced a new initiative Thursday to find a cause and treatment for chronic fatigue … Continue reading
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Tagged biomedical research, National Institutes of Health, NIH
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White on Pathways to Prevention and PACE
Comment published on 30 June 2015 in the Annals of Internal Medicine on the following article: Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome By PD White, MD, DJ Clauw, MD, JWM van der Meer, MD, R Moss-Morris, PhD, RR Taylor, PhD … Continue reading
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Tagged CBT, cognitive behavioural therapy, GET, graded exercise therapy, JWM van der Meer, NIH, Pathways to prevention workshop, Prof Peter White, R Moss-Morris
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Diagnostic methods for ME/CFS: a review
Research abstract: Background: The diagnosis of myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) is based on clinical criteria, yet there has been no consensus regarding which set of criteria best identifies patients with the condition. The Institute of Medicine has recently … Continue reading
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Tagged case definitions, diagnosis, diagnostic criteria, National Institutes of Health, NIH, Pathways to prevention workshop
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US medical research agency urges biomedical research into ME/CFS
An independent panel convened by the National Institutes of Health concluded that ME/CFS is a complex, multifaceted disorder characterized by extreme fatigue and many other symptoms (including impairment of memory or concentration, post-exertional malaise, and pain) which can result in … Continue reading
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Tagged biomedical research, Dr Carmen R Green, National Institutes of Health, NIH
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