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Tag Archives: PROMS
What matters to children with CFS/ME? devising a PROM
Research abstract: Background: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. Aim The aim of this study was to … Continue reading
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Tagged adolescents, children, Dr Esther Crawley, illness experience, Patient-Reported Outcome Measures, PROMS, teenagers
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Better ways of assessing severity of illness and treatment outcomes needed for children with CFS/ME
Abstract Chronic Fatigue Syndrome or Myalgic Encephalomyelitis (CFS/ME) in children is characterized by persistent or recurrent debilitating fatigue which results in a substantial reduction in activity. There is a growing interest in the use of questionnaires, or patient-reported outcome measures … Continue reading
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Tagged children, Dr Esther Crawley, Patient-Reported Outcome Measures, PROMS
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A review of PROMS for CFS/ME
Patient-Reported Outcome Measures (PROMS) are questionnaires that researchers and clinicians ask patients to complete to assess the value of a treatment. The limitation of these measures were highlighted in 2011 by critics of the PACE trial. Researchers from England have reviewed … Continue reading
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Tagged PACE, Patient-Reported Outcome Measures, PROMS, SF-36
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