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Latest News
- Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking
- CMRC conference (March) – tickets & programme available
- Changes in circulating microRNA after recumbent isometric yoga practice by patients with ME/CFS
- ME & CFS – no longer classified as ‘Bodily Distress Disorder’ (BDD)
- The impact of a Structured Exercise Programme upon cognitive function in CFS patients
Archives
Tag Archives: Dr Esther Crawley
Paediatric CFS patients’ & parents’ perceptions of recovery
Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery, by Matthew Robert Harland, Roxanne Morin Parslow, Nina Anderson, Danielle Byrne, Esther Crawley in BMJ Paediatrics Open Vol 3, #1, Dec 2, 2019 Research abstract: What is known about the … Continue reading
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Tagged adolescents, children, Danielle Byrne, Dr Esther Crawley, Matthew Robert Harland, Nina Anderson, paediatric CFS, recovery, Roxanne Morin Parslow, teenagers
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Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2)
Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2), by by David Tuller, DrPH in Virology blog, 22 November 2019 WAMES has joined 55 clinicians & scientists and 63 other organisations in signing this protest … Continue reading
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Tagged BMJ, British medical Journal, children, David Tuller, Dr Esther Crawley, Lightning process, paediatric CFS, SMILE trial, Virology blog
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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME
Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading
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Tagged Alison Shaw, children, cognitive interviews, Dr Esther Crawley, Kirstie Haywood, paediatric CFS, Patient reported outcome measure, PROMS, Roxanne Morin Parslow, Three step test interview, TSTI
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Academics object to the continued publication of the Lightning Process for children study
Trial By Error: an open letter to Dr Godlee about BMJ’s ethically bankrupt actions, by David Tuller in Virology blog, 28 August 2019 I have sent the following letter to Dr Fiona Godlee, editorial director of BMJ, about Archives … Continue reading
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Tagged BMJ, British medical Journal, children, David Tuller, Dr Esther Crawley, Lightning process, paediatric CFS, Virology blog
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Depressive symptoms at age 9-13 & chronic disabling fatigue at aged 16
Depressive symptoms at age 9-13 and chronic disabling fatigue at age 16: a longitudinal study, by Simon M Collin, Tom Norris, Carol Joinson, Maria E Loades, Glyn Lewis, Stephen A Stansfeld, Esther Crawley in Journal of Adolescence Vol 75, pp … Continue reading
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Tagged adolescents, ALSPAC, Avon Longitudinal Study of Parents and Children, Carol Joinson, chronic fatigue, depression, Dr Esther Crawley, Glyn Lewis, Maria E Loades, paediatrics, Simon M Collin, Stephen A Stansfeld, teenagers, Tom Norris, young people
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MAGENTA trial comment: ‘Targeting activity levels in ME/CFS
Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading
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Tagged adolescents, Amberly Brigden, boom and bust behaviour, children, Dr Esther Crawley, Emma Solomon-Moore, Lucy Beasant, MAGENTA trial, Michiel Tack, physical activity, Russell Jago, teenagers
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“It’s not one size fits all”; the use of videoconferencing for delivering therapy in a Specialist Paediatric CFS Service
“It’s not one size fits all”; the use of videoconferencing for delivering therapy in a Specialist Paediatric Chronic Fatigue Service by Andrew Haig-Ferguson, Maria Loades, Charlotte Whittle, Rebecca Read, Nina Higson-Sweeney, Lucy Beasant, Jennifer Starbuck, Esther Crawley in Internet Interventions Volume 15, … Continue reading
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Tagged adolescents, Andrew Haig-Ferguson, Charlotte Whittle, Dr Esther Crawley, Jennifer Starbuck, Lucy Beasant, Maria E Loades, Nina Higson-Sweeney, paediatric CFS service, Rebecca Read, Skype, teenagers, videoconferencing
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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME
Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading
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Tagged adolescents, Alison Shaw, children, Danielle Byrne, Dr Esther Crawley, Kirstie Haywood, Nina Anderson, paediatric ME, payback, relapse, Roxanne Morin Parslow, teenagers
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