Tag Archives: Dr Esther Crawley

Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2)

Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2), by by David Tuller, DrPH in Virology blog, 22 November 2019   WAMES has joined 55 clinicians & scientists and 63 other organisations in signing this protest … Continue reading

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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading

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Academics object to the continued publication of the Lightning Process for children study

Trial By Error: an open letter to Dr Godlee about BMJ’s ethically bankrupt actions, by David Tuller in Virology blog, 28 August 2019   I have sent the following letter to Dr Fiona Godlee, editorial director of BMJ, about Archives … Continue reading

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Depressive symptoms at age 9-13 & chronic disabling fatigue at aged 16

Depressive symptoms at age 9-13 and chronic disabling fatigue at age 16: a longitudinal study, by Simon M Collin, Tom Norris, Carol Joinson, Maria E Loades, Glyn Lewis, Stephen A Stansfeld, Esther Crawley in  Journal of Adolescence Vol 75, pp … Continue reading

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MAGENTA trial comment: ‘Targeting activity levels in ME/CFS

Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading

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“It’s not one size fits all”; the use of videoconferencing for delivering therapy in a Specialist Paediatric CFS Service

“It’s not one size fits all”; the use of videoconferencing for delivering therapy in a Specialist Paediatric Chronic Fatigue Service by Andrew Haig-Ferguson, Maria Loades, Charlotte Whittle, Rebecca Read, Nina Higson-Sweeney, Lucy Beasant, Jennifer Starbuck, Esther Crawley in Internet Interventions Volume 15, … Continue reading

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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME

Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with  adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading

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Using the internet to cope with CFS/ME in adolescence

Using the internet to cope with chronic fatigue syndrome/ myalgic encephalomyelitis in adolescence: a qualitative study, by Amberly Brigden, Julie Barnett, Roxanne Morin Parslow, Lucy Beasant, Esther Crawley in BMJ Paediatrics Open Vol. 2, #1 [Published: August 23, 2018] Background: Adolescents are increasingly using online resources … Continue reading

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Childhood sleep & adolescent CFS/ME

Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): evidence of associations in a UK birth cohort, by SM Collin, T Norris, P Gringras, PS Blair, K Tilling, E Crawley in Sleep Med. 2018 Jun;46:26-36. OBJECTIVE/BACKGROUND: Sleep abnormalities are characteristic of … Continue reading

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Pediatric CFS: Dr Crawley’s perspective

Article abstract: Pediatric chronic fatigue syndrome: current perspectives, by Esther Crawley in Dove Press  Vol 9, #4, pp 27—33 [Published March 29, 2018] Pediatric chronic fatigue syndrome is an important illness as it is relatively common and also very disabling with … Continue reading

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