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Latest News
- Reduced heart rate variability predicts fatigue severity in individuals with CFS/ME
- Recovering from CFS as an intra-active process
- A neuro-inflammatory model can explain the onset, symptoms and flare-ups of ME/CFS
- Paediatric patients with ME/CFS value understanding & help to move on with their lives
- The role of low-grade inflammation in ME/CFS – associations with symptoms
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Tag Archives: children
Paediatric patients with ME/CFS value understanding & help to move on with their lives
Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054] Abstract: Aim: The aim of this study was to document … Continue reading
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Tagged children, education support, Katherine Rowe, paediatric ME, self management, teenagers, young people
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Paediatric CFS patients’ & parents’ perceptions of recovery
Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery, by Matthew Robert Harland, Roxanne Morin Parslow, Nina Anderson, Danielle Byrne, Esther Crawley in BMJ Paediatrics Open Vol 3, #1, Dec 2, 2019 Research abstract: What is known about the … Continue reading
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Tagged adolescents, children, Danielle Byrne, Dr Esther Crawley, Matthew Robert Harland, Nina Anderson, paediatric CFS, recovery, Roxanne Morin Parslow, teenagers
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Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2)
Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2), by by David Tuller, DrPH in Virology blog, 22 November 2019 WAMES has joined 55 clinicians & scientists and 63 other organisations in signing this protest … Continue reading
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Tagged BMJ, British medical Journal, children, David Tuller, Dr Esther Crawley, Lightning process, paediatric CFS, SMILE trial, Virology blog
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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME
Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading
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Tagged Alison Shaw, children, cognitive interviews, Dr Esther Crawley, Kirstie Haywood, paediatric CFS, Patient reported outcome measure, PROMS, Roxanne Morin Parslow, Three step test interview, TSTI
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Survey of the experiences of children & young people with ME for NICE
The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading
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Tagged Action for ME, adolescents, AfME, children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, Oxford Brookes University, survey, teenagers, young people
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Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review
Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: a scoping review, by Sarah S Collard, Jane Murphy in Journal of Child Health Care, 4 Aug 2019 [https://doi.org/10.1177/1367493519864747] Review abstract: Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) negatively impacts the quality … Continue reading
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Tagged adolescents, children, Jane Murphy, paediatric CFS, Sarah S Collard, teenagers
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Academics object to the continued publication of the Lightning Process for children study
Trial By Error: an open letter to Dr Godlee about BMJ’s ethically bankrupt actions, by David Tuller in Virology blog, 28 August 2019 I have sent the following letter to Dr Fiona Godlee, editorial director of BMJ, about Archives … Continue reading
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Tagged BMJ, British medical Journal, children, David Tuller, Dr Esther Crawley, Lightning process, paediatric CFS, Virology blog
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MAGENTA trial comment: ‘Targeting activity levels in ME/CFS
Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading
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Tagged adolescents, Amberly Brigden, boom and bust behaviour, children, Dr Esther Crawley, Emma Solomon-Moore, Lucy Beasant, MAGENTA trial, Michiel Tack, physical activity, Russell Jago, teenagers
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MicroRNAs as biomarkers of pain intensity in patients with CFS
MicroRNAs as biomarkers of pain intensity in patients with chronic fatigue syndrome, by Hadeel A Al‐Rawaf, Ahmad H Alghadir, Sami A Gabr in Pain Pract. 2019 Jul 8. doi: 10.1111/papr.12817. [Epub ahead of print] Research abstract: BACKGROUND: Numerous experimental models … Continue reading
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Tagged adolescents, Ahmad H Alghadir, children, chronic pain, Dr Sami A Gabr, gene expression, Hadeel A Al‐Rawaf, immune inflammatory genes, microRNAs, miRNAs, teenagers
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