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Latest News
- Webinar 3 March 2021: Introduction to sensory apps
- Dysregulated provision of oxidisable substrates to the mitochondria in ME/CFS lymphoblasts
- Sex-based differences in plasma autoantibodies to CNS proteins in Gulf War veterans versus healthy & symptomatic controls
- Sick of the sick role: narratives of what ‘recovery’ means to people with CFS/ME
- Plasma proteomics publication shows disrupted cell-to-cell signaling in ME/CFS
Archives
Tag Archives: children
A qualitative analysis of teachers’ experiences of CFS/ME
‘It’s a medical condition … you need to support as much as possible’: A qualitative analysis of teachers’ experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), by Amberly Brigden, Alison Shaw, Esther Crawley in BMC Pediatrics Vol 21, #1, p 6, January 4, 2021 … Continue reading
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Tagged Alison Shaw, Amberly Brigden, children, Dr Esther Crawley, paediatrics, primary school, teachers
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NICE ME/CFS draft guideline: supporting people with ME/CFS in work, education & training
NICE ME/CFS draft guideline: supporting people with ME/CFS in work, education & training The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments … Continue reading
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Tagged children, disability employment, education, National Institute for Health and Care Excellence, NICE guideline ME/CFS, reasonable adjustments
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NICE ME/CFS draft guideline recommends annual reviews
NICE ME/CFS draft guideline: annual reviews of management plans The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in the … Continue reading
NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient
NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice. The draft NICE guideline is open … Continue reading
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Tagged children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, paediatric ME, severe ME, young people
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CFS/ME in children aged 5 to 11 years: a qualitative study
Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: a qualitative study, by Amberly Brigden, Alison Shaw, Emma Anderson, Esther Crawley in Clinical Child Psychology and Psychiatry Oct 2020 [doi:10.1177/1359104520964528] Research abstract: Treatments for paediatric chronic fatigue … Continue reading
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Tagged Alison Shaw, Amberly Bridgen, children, Dr Esther Crawley, Emma Anderson, paediatric CFS
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CFS in children population: current knowledge summary
Chronic Fatigue Syndrome in children population – current knowledge summary, by Monika Prylinska, Natalia Skierkowska, Weronika Topka, Małgorzata Kwiatkowska in Journal of Education, Health and Sport Vol 10, #9, 635-643, Sep 2020 Review abstract: Chronic Fatigue Syndrome/Myalgic Encephalomyelits (CFS/ME) … Continue reading
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Tagged adolescents, children, Małgorzata Kwiatkowska, Monika Prylinska, Natalia Skierkowska, paediatric CFS, Weronika Topka
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Online talk: ME/CFS and long Covid in children & young people with Dr Nigel Speight, 24 Sep 2020
Sheffield ME & FM Group: Online talk: ME/cfs in children and young people – Dr Nigel Speight This talk is especially relevant to families supporting young people and those not getting the support they need from schools and services. It will … Continue reading
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Tagged children, Dr Nigel Speight, long Covid, paediatric ME, Sheffield ME & FM Group, Tymes Trust, young people
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Severe ME in children
Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS] Guideline abstract current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the large … Continue reading
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Tagged CBT, children, cognitive behavioural therapy, Dr Nigel Speight, Fabricated or Induced Illness, GET, graded exercise therapy, immunoglobulin, paediatric ME, PEM, Pervasive Refusal Syndrome, Post-exertional malaise, severe ME
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A qualitative exploration of treatment preference in paediatric randomised control trials
A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading
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Tagged children, Lucy Beasant, paediatric CFS, Randomised Controlled Trials, RCT, treatment preference, young people
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Save4Children – helping children with ME in psychiatric wards
Save4Children – helping children with ME in psychiatric wards The charity Save4Children has been created by the editors of the ME Global Chronicle and helps parents whose children have been forced into psychiatric wards by authorities, to try and … Continue reading
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Tagged children, Global ME Chronicle, Karina Hansen, psychiatric misdiagnosis, Save4Children
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