Tag Archives: children

NICE ME/CFS draft guideline recommends annual reviews

NICE ME/CFS draft guideline: annual reviews of management plans   The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in the … Continue reading

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NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient

NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice.   The draft NICE guideline is open … Continue reading

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CFS/ME in children aged 5 to 11 years: a qualitative study

Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: a qualitative study, by Amberly Brigden, Alison Shaw, Emma Anderson, Esther Crawley in Clinical Child Psychology and Psychiatry Oct 2020 [doi:10.1177/1359104520964528]   Research abstract: Treatments for paediatric chronic fatigue … Continue reading

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CFS in children population: current knowledge summary

Chronic Fatigue Syndrome in children population – current knowledge summary, by Monika Prylinska, Natalia Skierkowska, Weronika Topka, Małgorzata Kwiatkowska in Journal of Education, Health and Sport Vol 10, #9, 635-643, Sep 2020   Review abstract: Chronic Fatigue Syndrome/Myalgic Encephalomyelits (CFS/ME) … Continue reading

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Online talk: ME/CFS and long Covid in children & young people with Dr Nigel Speight, 24 Sep 2020

Sheffield ME & FM Group: Online talk: ME/cfs in children and young people – Dr Nigel Speight   This talk is especially relevant to families supporting young people and those not getting the support they need from schools and services. It will … Continue reading

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Severe ME in children

Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS]   Guideline abstract  current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the large … Continue reading

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A qualitative exploration of treatment preference in paediatric randomised control trials

A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading

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Save4Children – helping children with ME in psychiatric wards

Save4Children – helping children with ME in psychiatric wards   The charity Save4Children has been created by the editors of the ME Global Chronicle and helps parents whose children have been forced into psychiatric wards by authorities, to try and … Continue reading

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Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center

Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center, by Anthony Staples, Nicolas R Thompson and Manikum Moodley in J Child Neurol. Vol 35, Issue 8, 2020 [doi: 10.1177/0883073820916260]   Research abstract: AIM: We characterize the pediatric postural orthostatic … Continue reading

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Interventions to treat pain in paediatric CFS/ME: a systematic review

Interventions to treat pain in paediatric CFS/ME: a systematic review, by Caitlin Ascough, Hayley Kin, Teona Serafimova, Lucy Beasant, Sophie Jackson, Luke Baldock, Anthony Edward Pickering, Jonathan Brooks, Esther Crawley in BMJ Paediatrics Open Vol 4, #1, March 2020     … Continue reading

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