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Latest News
- EPP self-management courses in North Wales, Jun-July 2019
- Comparison of differential metabolites in urine of the middle school students with CFS before & after exercise
- Altered erythrocyte biophysical properties in CFS
- Webinar: Whole genome sequencing & analysis of ME/CFS, 28 May 2019
- Assessment of the scientific rigour of randomized controlled trials on the effectiveness of cognitive behavioural therapy & graded exercise therapy for patients with ME/CFS: a systematic review
Archives
Tag Archives: children
Millions of parents missing millions of moments
Millions of parents Missing millions of moments Missing due to lack of research and care for people with myalgic encephalomyelitis Do not let them miss a moment more #MillionsMissing
Social Services can threaten families of children with Chronic Fatigue (ME)
Online blog Broadly highlights the fact that one in five children with ME are investigated by social services, with some even being forcibly placed in a hospital or foster homes, with destructive effects on their health. Social services can threaten … Continue reading
Challenging claims that fearful avoidance beliefs about activity in ME & CFS can be targeted with CBT/GET.
Cognitive-behavorial and graded exercise therapies for chronic fatigue (syndrome) are associated with lower levels of work/school attendance, by Frank N M Twisk in J Behav Med [Published online 28 March 2019] Psychological and demographic factors associated with fatigue and social … Continue reading
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Tagged CBT, children, cognitive behavioural therapy, fear avoidance, Frank NM Twisk, GET, graded exercise therapy, Lucy Adamczyk, Mary Burgess, Prof Trudie Chalder, Sheila Ali, young people
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Epidemiology of paediatric CFS in Australia
Epidemiology of paediatric chronic fatigue syndrome in Australia, by Sarah Knight, Shane Elders, Jill Rodda, Adrienne Harvey, Lionel Lubitz, Kathy Rowe, Colette Reveley, Sabine Hennel, Susan Towns, Kasia Kozlowska, Donald N Payne, Sonya Marshall-Gradisnik, Adam Scheinberg in Archives of Disease … Continue reading
Posted in News
Tagged Adam Schienberg, Adrienne R Harvey, Australia, children, Colette Revely, Donald N Payne, Dr Sarah Knight, Dr Sonya Marshall-Gradisnik, epidemiology, incidence, Jill Rodda, Kasia Kozlowska, Katherine S Rowe, Lionel Lubitz, paediatric CFS, Sabine Hennel, Shane Elders, Susan Towns
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Long term follow up of young people with CFS attending a pediatric outpatient service.
Long term follow up of young people with Chronic Fatigue Syndrome attending a pediatric outpatient service, by Katherine S. Rowe in Front. Pediatr. 21 February 2019 Research abstract: Objective: To describe the functional and educational long-term outcomes, predictive factors … Continue reading
Posted in News
Tagged adolescents, children, functional ability, long-term follow-up, paediatric ME, teenagers
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The importance of accurate diagnosis of ME/CFS in children & adolescents: a commentary
The importance of accurate diagnosis of ME/CFS in children and adolescents: a commentary, by Keith J Geraghty and Charles Adeniji in Frontiers in Pediatrics [Preprint December 31, 2018] Article abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic illness that causes … Continue reading
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Tagged adolescents, Charles Adeniji, children, diagnosis, Dr Keith Geraghty, epidemiology, paediatric ME, teenagers
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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME
Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading
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Tagged adolescents, Alison Shaw, children, Danielle Byrne, Dr Esther Crawley, Kirstie Haywood, Nina Anderson, paediatric ME, payback, relapse, Roxanne Morin Parslow, teenagers
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Understanding ME & CFS symptoms in children – take part in research project!
Symptomatology of pediatric ME & CFS – research project The Center for Community Research at DePaul University in the USA, led by Prof Leonard Jason says: There is currently little research on children with myalgic encephalomyelitis (ME) and chronic fatigue … Continue reading
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Tagged children, Madison L Sunnquist, paediatric ME, Prof Leonard Jason, questionnaire, research, young people
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School nurses can improve the lives of students with ME/CFS
School nurses can improve the lives of students with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, by Kenneth J. Friedman, Beth Mattey, Faith Newton in NASN School Nurse [First Published September 15, 2018] Article abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic illness that … Continue reading
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Tagged Beth Mattey, children, Dr Faith Newton, Dr Kenneth J Friedman, school nurse, special educational needs
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Videos: Prof Peter Rowe & Dr Nigel Speight, discuss paediatric ME/CFS
Paediatric ME/CFS (from Voices from shadows website) Two world renown ME/CFS paediatricians, Prof Peter Rowe and Dr Nigel Speight, discuss paediatric ME/CFS diagnosis and management in two short videos for medical professionals, following publication of the comprehensive manual Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome … Continue reading
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Tagged children, Dr Nigel Speight, Dr Peter Rowe, paediatric ME
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