Tag Archives: children

A qualitative exploration of treatment preference in paediatric randomised control trials

A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading

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Save4Children – helping children with ME in psychiatric wards

Save4Children – helping children with ME in psychiatric wards   The charity Save4Children has been created by the editors of the ME Global Chronicle and helps parents whose children have been forced into psychiatric wards by authorities, to try and … Continue reading

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Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center

Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center, by Anthony Staples, Nicolas R Thompson and Manikum Moodley in J Child Neurol. Vol 35, Issue 8, 2020 [doi: 10.1177/0883073820916260]   Research abstract: AIM: We characterize the pediatric postural orthostatic … Continue reading

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Interventions to treat pain in paediatric CFS/ME: a systematic review

Interventions to treat pain in paediatric CFS/ME: a systematic review, by Caitlin Ascough, Hayley Kin, Teona Serafimova, Lucy Beasant, Sophie Jackson, Luke Baldock, Anthony Edward Pickering, Jonathan Brooks, Esther Crawley in BMJ Paediatrics Open Vol 4, #1, March 2020     … Continue reading

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Can linguistic analysis be used to identify whether adolescents with a chronic illness are depressed?

Can linguistic analysis be used to identify whether adolescents with a chronic illness are depressed?, by Lauren Stephanie Jones, Emma Anderson, Maria Loades, Rebecca Barnes, Esther Crawley in Clin Psychol Psychother. 2019 Dec 15. [doi: 10.1002/cpp.2417]   Research abstract: Comorbid depression … Continue reading

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The prevalence of pediatric ME/CFS in a community‑based sample

The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome  in a community‑based sample, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler & Shaun Bhatia in Child & Youth Care Forum, 23 January 2020 [doi.org/10.1007/s10566-019-09543-3]   Research … Continue reading

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Paediatric patients with ME/CFS value understanding & help to move on with their lives

Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054]   Abstract: Aim: The aim of this study was to document … Continue reading

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Paediatric CFS patients’ & parents’ perceptions of recovery

Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery, by Matthew Robert Harland, Roxanne Morin Parslow, Nina Anderson, Danielle Byrne, Esther Crawley in BMJ Paediatrics Open Vol 3, #1, Dec 2, 2019   Research abstract: What is known about the … Continue reading

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Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2)

Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2), by by David Tuller, DrPH in Virology blog, 22 November 2019   WAMES has joined 55 clinicians & scientists and 63 other organisations in signing this protest … Continue reading

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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading

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