Tag Archives: PROMS

What matters to children with CFS/ME? devising a PROM

Posted on 10/13/2015 by wames

Research abstract: Background: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. Aim The aim of this study was to … Continue reading →

Posted in News | Tagged , , , , , , | Comments Off on What matters to children with CFS/ME? devising a PROM

Better ways of assessing severity of illness and treatment outcomes needed for children with CFS/ME

Posted on 04/18/2014 by wames

Abstract Chronic Fatigue Syndrome or Myalgic Encephalomyelitis (CFS/ME) in children is characterized by persistent or recurrent debilitating fatigue which results in a substantial reduction in activity. There is a growing interest in the use of questionnaires, or patient-reported outcome measures … Continue reading →

Posted in News | Tagged , , , | Comments Off on Better ways of assessing severity of illness and treatment outcomes needed for children with CFS/ME

A review of PROMS for CFS/ME

Posted on 02/21/2012 by wames

Patient-Reported Outcome Measures (PROMS) are questionnaires that researchers and clinicians ask patients to complete to assess the value of a treatment. The limitation of these measures were highlighted in 2011 by critics of the PACE trial. Researchers from England have reviewed … Continue reading →

Posted in News | Tagged , , , | Comments Off on A review of PROMS for CFS/ME