Tag Archives: Tymes Trust

ME charity responses to NICE consultation

Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME   25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading

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TYMES trust publishes their concerns about MEGA study

MEGA statement from Tymes Trust: a study too far , 13 November 2016 Let us establish at the start, that Tymes Trust does not endorse or support MEGA. Fatigue is not ME, and ME is not fatigue. What disease does … Continue reading

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MAGENTA trial – PACE for children

Dr Esther Crawley’s study of activity management and Graded Exercise Therapy in children started in September 2015 and is due to end in August 2016 Tymes Trust comments when calling for an investigation into the PACE trial data: “We are frequently … Continue reading

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ME parents’ fury at child abuse claims

Article in Sunday Express by Caroline Wheeler,  June 21, 2015: Hundreds of parents whose children suffer from a crippling illness that leaves them permanently exhausted have been falsely accused of child abuse. Charities have helped hundreds of families of children with … Continue reading

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NICE corrects classification of CFS/ME

From Tymes Trust: Tyme Trust discovered over the parliamentary recess that NICE had listed the CFS/ME Guideline under mental health. We immediately alerted Patron the Countess of Mar, of whose Forward-ME  group we are a member. NICE’s listing could already have … Continue reading

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Child abuse allegations in ME unfounded

Abstract There is no cure for ME (Myalgic Encephalomyelitis). In its absence, management regimes are prescribed, typically based on cognitive behavioural therapy (CBT) and graded exercise therapy (GET). In the case of children this may involve the application of Child … Continue reading

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Good practice guide to education for children with ME

Tymes Trust’s new document to celebrate their 1st June anniversary is for GPs, schools and families. It includes key information from government statutory guidelines on education for sick children in England, and helpful quotes from NICE. GP Dr Nigel Hunt writes: … Continue reading

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Dr Dowsett on ME relapses

To commemorate the life of Dr Betty Dowsett the Young ME Sufferers Trust has posted online an article by her about ME relapses. There’s No Smoke Without Fire! Some comments on the tendency to replase in ME She lists the … Continue reading

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