-
Latest News
Archives
Tag Archives: online communities
Privacy on long term condition health discussion forums
Research abstract: Background: The ethics of research into online communities is a long-debated issue, with many researchers arguing that open-access discussion groups are publically accessible data and do not require informed consent from participants for their use for research purposes. However, … Continue reading
Posted in News
Tagged Caroline Sanders, Ellen Brady, internet forums, Julia Segar, long term conditions, online communities, privacy
Comments Off on Privacy on long term condition health discussion forums
The social media experiences of long-term patients with ME in Norway
Research abstract: The present article investigates the meanings of social media use for long-term patients, focusing on a group of Norwegian bloggers diagnosed with myalgic encephalomyelitis (ME). This severe illness can confine patients to their homes for long periods of … Continue reading
Posted in News
Tagged narrative identity, Norway, online communities, social media
Comments Off on The social media experiences of long-term patients with ME in Norway
An examination of an ME online community discussion
Research abstract: Online communities, created and sustained by people sharing and discussing texts on the internet, play an increasingly important role in social health movements. In this essay, we explore a collective mobilization in miniature through an in-depth analysis of … Continue reading
Posted in News
Tagged online communities, satire
Comments Off on An examination of an ME online community discussion