Tag Archives: online communities

Privacy on long term condition health discussion forums

Posted on 10/21/2016 by wames

Research abstract: Background: The ethics of research into online communities is a long-debated issue, with many researchers arguing that open-access discussion groups are publically accessible data and do not require informed consent from participants for their use for research purposes. However, … Continue reading →

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The social media experiences of long-term patients with ME in Norway

Posted on 06/06/2016 by wames

Research abstract: The present article investigates the meanings of social media use for long-term patients, focusing on a group of Norwegian bloggers diagnosed with myalgic encephalomyelitis (ME). This severe illness can confine patients to their homes for long periods of … Continue reading →

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An examination of an ME online community discussion

Posted on 04/20/2016 by wames

Research abstract: Online communities, created and sustained by people sharing and discussing texts on the internet, play an increasingly important role in social health movements. In this essay, we explore a collective mobilization in miniature through an in-depth analysis of … Continue reading →

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