Tag Archives: internet forums

New forum: Science for ME

A new ME forum has been launched: Science for ME What it is all about: “Science for ME is an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. Our goal is … Continue reading

Posted in News | Tagged , | Comments Off on New forum: Science for ME

Privacy on long term condition health discussion forums

Research abstract: Background: The ethics of research into online communities is a long-debated issue, with many researchers arguing that open-access discussion groups are publically accessible data and do not require informed consent from participants for their use for research purposes. However, … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on Privacy on long term condition health discussion forums

Negotiating trust on health-related online forums

Research abstract: The internet is increasingly being used as a source of health advice and information by individuals with long term conditions (LTCs). Specifically, online forums allow people to interact with others with similar conditions. However, it is not clear … Continue reading

Posted in News | Tagged , , , , | Comments Off on Negotiating trust on health-related online forums