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New forum: Science for ME
A new ME forum has been launched: Science for ME What it is all about: “Science for ME is an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. Our goal is … Continue reading
Privacy on long term condition health discussion forums
Research abstract: Background: The ethics of research into online communities is a long-debated issue, with many researchers arguing that open-access discussion groups are publically accessible data and do not require informed consent from participants for their use for research purposes. However, … Continue reading
Posted in News
Tagged Caroline Sanders, Ellen Brady, internet forums, Julia Segar, long term conditions, online communities, privacy
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Negotiating trust on health-related online forums
Research abstract: The internet is increasingly being used as a source of health advice and information by individuals with long term conditions (LTCs). Specifically, online forums allow people to interact with others with similar conditions. However, it is not clear … Continue reading
Posted in News
Tagged digital literacy, internet forums, long term conditions, LTCs, online peer support
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