Author Archives: wames
ME/CFS has significant impact on Quality of Life for people with ME/CFS & their families
Impact of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) on the quality of life of people with ME/CFS and their partners and family members: an online cross-sectional survey, by Jui Vyas, Nina Muirhead, Ravinder Singh, Rachel Ephgrave, Andrew Y Finlay in BMJ Open … Continue reading
WAMES website needs an overhaul – can you help?
WAMES urgently needs a new website! Can you help? Our website is old, but worse still it looks old and needs to be brought up to date so we can communicate more effectively about ME ! WAMES is looking … Continue reading
Are you good with figures? WAMES treasurer vacancy
Are you good with figures? WAMES is looking for a Treasurer The Treasurer is critical to our work of raising awareness of ME and influencing service improvement, and will be a key member of the Finance & Fundraising Team. … Continue reading
WAMES news from the AGM 2022
WAMES AGM news: 2022 and beyond… Our annual business meeting on 11th April 2022 was short and to the point as we are working hard calling for the NHS in Wales to #ImplementNICEmecfs and preparing to share key facts … Continue reading
WMEA campaign film: Tell us what the world can #LearnFromME?
World ME Alliance campaign film – take part On May 12th 2022, WAMES is joining with other groups around the world as the World ME Alliance to launch the first World ME Day, and we’re asking “what can the world … Continue reading
What should health professionals #LearnFromME?
ME is a global health crisis Health professionals can #LearnFromME Up to 30 million people are living with this disease worldwide, and when we take into account the effect on families, carers and friends too, the impact of this … Continue reading
Research: Cardiopulmonary, metabolic, & perceptual responses during exercise in ME/CFS
Cardiopulmonary, metabolic, and perceptual responses during exercise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Multi-site Clinical Assessment of ME/CFS (MCAM) sub-study by Dane B Cook, Stephanie VanRiper, Ryan J Dougherty, Jacob B Lindheimer, Michael J Falvo, Yang Chen, Jin-Mann S … Continue reading
ME services in Wales can learn from Long COVID Adferiad programme says Health Minister
Welsh Government wants Long COVID community model to also treat and support ME, CFS and MS On 31st March 2022 the Health Minister Eluned Morgan announced further funding for the Adferiad programme for Long COVID recovery: “today I am … Continue reading
Research: Genetic association study in ME/CFS
Genetic association study in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) identifies several potential risk loci, by Riad Hajdarevic, Asgeir Lande, Jesper Mehlsen, Anne Rydland, Daisy D Sosa, Elin B Strand, Olav Mella, Flemming Pociot, Øystein Fluge, Benedict A Lie, Marte K … Continue reading
