Tag Archives: NHS Wales

Do I need a formal diagnosis of ME/CFS?

Do you have a diagnosis of ME or CFS from the NHS?   For decades many people with suspected ME have not been able to find an NHS professional to confirm their diagnosis. As the NHS has had nothing to … Continue reading

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Survey: NHS Wales wants to hear from women

Women in Wales survey 2022   Judith Paget, Chief Executive of NHS Wales asks women in Wales:  tell us what is important to you, your life, your health and your family Fifty one percent (51%) of our population in Wales are … Continue reading

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#WomensHealthWales Report highlights gender related health inequalities for ME

Women’s Health Wales Quality Statement calls for improved care for women with ME    On Saturday 28th May, International Day of Action for Women’s Health, a report has been published by a coalition of charities and health organisations, which discusses … Continue reading

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Welsh Government responds & asks if NICE is being implemented

Welsh Government replies to WAMES   WAMES wrote to the Health Minister on 8 February asking why an announcement had been made about services for recent patients with long COVID, but not about services for people who have been living … Continue reading

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Health Minister delegates reply re ME/CFS

Welsh Government replies re ME/CFS and long COVID   WAMES wrote to the Health Minister, Eluned Morgan MS, on 7th June about ME and long COVID. She is the first Health Minister to fail to reply herself. Instead she delegated … Continue reading

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The Health Minister, Covid-19, ME, rehabilitation & NICE

The Health Minister comments on Covid-19, ME, rehabilitation & NICE   The Health Minister Vaughan Gething has replied to the letter WAMES sent to him on International ME Awareness Day highlighting the links between Covid-19, PVFS and ME, and requesting … Continue reading

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ME, Covid-19 & self-isolating

What do people with ME need to know about Covid-19 and self-isolating?              updated 10 April 2020   The Health Minister for Wales has confirmed that people over 70 and people with a range of health conditions, including  neurological conditions, should … Continue reading

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One Simple Thing’ survey to improve NHS communication in Wales

One Simple Thing – Communication with the NHS “Tell us One Simple Thing that could be done to make communication with the NHS easier and better?” Community Health Councils in Wales want to hear about your experience around communication with … Continue reading

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GPs in Wales will soon classify ME & CFS as neurological

SNOMED now classifies ME and CFS as neurological NHS Wales uses the SNOMED CT electronic terminology system for recording and sharing symptoms, diagnoses, clinical findings, procedures etc. in primary and secondary care and across other health care settings. This replaced the READ … Continue reading

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#TimeForUnrestWales – the Cabinet Secretary for Health’s plans for ME & CFS

#TimeForUnrestWales  the Cabinet Secretary for Health’s plans for ME & CFS In early May WAMES wrote to the Cabinet Secretary for Health, Vaughan Gething, expressing concern for the slow progress in implementing the Task & Finish Group Report’s Recommendations and … Continue reading

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