Author Archives: wames

Welsh Government responds & asks if NICE is being implemented

Welsh Government replies to WAMES   WAMES wrote to the Health Minister on 8 February asking why an announcement had been made about services for recent patients with long COVID, but not about services for people who have been living … Continue reading

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Perspective: Drawing on findings from critical illness to explain ME/CFS

Perspective: Drawing on findings from critical illness to explain Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Dominic Stanculescu and  Jonas Bergquist in Front. Med., 08 March 2022 [doi.org/10.3389/fmed.2022.818728]   Abstract: We propose an initial explanation for how myalgic encephalomyelitis / chronic fatigue … Continue reading

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Research: Predictors for developing severe ME/CFS following infectious Mononucleosis

Predictors for developing severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome following infectious Mononucleosis, by Leonard A Jason, Joseph Cotler, Mohammed F Islam, Jacob Furst, Ben Z Katz in Journal of Rehabilitation Therapy, 2022;4(1):1-5, February 21, 2022   Research abstract: Background: About 10% … Continue reading

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ME/CFS trigger: tuberculosis

Researchers have identified the mycobacterium tuberculosis infection as a trigger for CFS, particularly amongst men and the over 65s in Taiwan. TB in Wales is in decline and numbers are small, but the NHS considers it still to be a … Continue reading

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Evaluating case diagnostic criteria for ME/CFS

Evaluating case diagnostic criteria for myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS): toward an empirical case definition, by Karl E Conroy, Mohammed F Islam, Leonard A Jason in Disability and Rehabilitation, Mar 2, p 1-8 2022 [doi.org/10.1080/09638288.2022.2043462]   Implications for rehabilitation ME/CFS is … Continue reading

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Research: POTS found in long-haul COVID-19 patients: similarities with ME/CFS

Orthostatic symptoms and reductions in cerebral blood flow in long-haul COVID-19 patients: similarities with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by  C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Medicina 2022, 58(1), 28 [doi.org/10.3390/medicina58010028]  24 December 2021 … Continue reading

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Research review: Unknown aetiology: The case of ME/CFS and beyond

Current insights into complex Post-infection Fatigue Syndromes with unknown Aetiology: The case of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and beyond, by Francisco Westermeier, Eliana Mattos Lacerda,  Carmen Scheibenbogen and  Nuno Sepúlveda in Front. Med., 24 February 2022 [doi.org/10.3389/fmed.2022.862953]   Excerpts from … Continue reading

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Management: Lessons from ME/CFS for long COVID: Heart rate monitoring to manage PESE (PEM)

Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID: Part 4: Heart Rate Monitoring to Manage Postexertional Symptom Exacerbation, by Todd E Davenport, Staci R Stevens, Jared Stevens, Christopher R Snell, J Mark Van Ness in JOSPT February 23, 2022 [doi.org/10.2519/jospt.blog.20220223] … Continue reading

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#LearnFromME – theme for #WorldMEDay

#LearnFromME on #WorldMEday     2022 is set to be another year of a global health crisis that has caused a wave of post-viral disease, specifically the collection of symptoms known as “Long COVID” which overlap with ME. For decades … Continue reading

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Announcing the first ever World ME day – May 12th 2022

#WorldMEday 2022   The World ME Alliance, a collaborative of national organisations from across the globe, is launching World ME Day on 12th May this year. All organisations everywhere are invited to join this effort to raise awareness and campaign … Continue reading

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