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CFS/ME in adolescents: Practical guidance & management challenges
Practical guidance and management challenges of ME/CFS in adolescents Australian paediatrician Dr Katherine Rowe has written a paper for practitioners, based on her own experience, which reviews the current understanding of ME/CFS and highlights effective management strategies for adolescents. As … Continue reading
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Tagged adolescents, clinical management, Katherine Rowe, paediatric ME, PEM, Post-exertional malaise, self management, teenagers, young people
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Paediatric long COVID & ME/CFS: overlaps & opportunities
Pediatric long COVID and Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: overlaps and 0pportunities, by Vikram GR Siberry MS and Peter C Rowe MD in The Pediatric Infectious Disease Journal: February 4, 2022 [doi:10.1097/INF.0000000000003477] Extracts from Commentary: Zimmermann et al provide … Continue reading
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Tagged children, Dr Peter Rowe, paediatric long COVID, paediatric ME, Vikram GR Siberry
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Case study: ME/CFS post coronavirus disease
Myalgic encephalomyelitis/chronic fatigue syndrome post coronavirus disease 2019, by Yoshiki Kusama, Sadahiro Fukui, Makiko Maruyama, Katsunori Kamimura, Toshiro Maihara in Paediatrics International Vol 64, no. 1 Feb 2022 [doi.org/10.1111/ped.14976] Coronavirus disease 2019 (COVID-19), an infectious disease caused by severe acute … Continue reading
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Tagged children, Coronavirus, COVID-19, Katsunori Kamimura, long Covid, Makiko Maruyama, paediatric ME, postural orthostatic tachycardia syndrome, POTS, Sadahiro Fukui, Toshiro Maihara, Yoshiki Kusama
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NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient
NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice. The draft NICE guideline is open … Continue reading
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Tagged children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, paediatric ME, severe ME, young people
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Online talk: ME/CFS and long Covid in children & young people with Dr Nigel Speight, 24 Sep 2020
Sheffield ME & FM Group: Online talk: ME/cfs in children and young people – Dr Nigel Speight This talk is especially relevant to families supporting young people and those not getting the support they need from schools and services. It will … Continue reading
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Tagged children, Dr Nigel Speight, long Covid, paediatric ME, Sheffield ME & FM Group, Tymes Trust, young people
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Activity measurement in pediatric CFS
Activity measurement in pediatric chronic fatigue syndrome, by Bernardo Loiacono, Madison Sunnquist, Laura Nicholson, Leonard A Jason in Chronic Illness, August 17, 2020 [doi.org/10.1177/1742395320949613] Research abstract: Objectives: Individuals with myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) experience debilitating … Continue reading
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Tagged activity, Bernardo Loiacono, Laura Nicholson, Madison L Sunnquist, paediatric ME, Prof Leonard Jason
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Severe ME in children
Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS] Guideline abstract The current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the … Continue reading
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Tagged CBT, children, cognitive behavioural therapy, Dr Nigel Speight, Fabricated or Induced Illness, GET, graded exercise therapy, immunoglobulin, paediatric ME, PEM, Pervasive Refusal Syndrome, Post-exertional malaise, severe ME
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The prevalence of pediatric ME/CFS in a community‑based sample
The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a community‑based sample, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler & Shaun Bhatia in Child & Youth Care Forum, 23 January 2020 [doi.org/10.1007/s10566-019-09543-3] Research … Continue reading
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Tagged Ben Z Katz, Chelsea Torres, Chicago, children, diagnosis, Joseph Cotler, Madison L Sunnquist, paediatric ME, prevalence, Prof Leonard Jason, Shaun Bhatia, young people
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Paediatric patients with ME/CFS value understanding & help to move on with their lives
Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054] Abstract: Aim: The aim of this study was to document … Continue reading
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Tagged children, education support, Katherine Rowe, paediatric ME, self management, teenagers, young people
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