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Latest News
- DecodeME DNA Study Management Team webinar video
- Two-Day cardiopulmonary exercise testing in females with a severe grade of ME/CFS: comparison with patients with mild & moderate disease
- “That’s why they don’t believe you, you don’t look sick!”: creating medical credibility & patient visibility for ME/CFS through television
- Dr Anthony Fauci says that post-covid syndrome “is highly suggestive of” ME
- NICE Statement about graded exercise therapy in the context of COVID-19
Archives
Tag Archives: paediatric ME
The prevalence of pediatric ME/CFS in a community‑based sample
The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a community‑based sample, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler & Shaun Bhatia in Child & Youth Care Forum, 23 January 2020 [doi.org/10.1007/s10566-019-09543-3] Research … Continue reading
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Tagged Ben Z Katz, Chelsea Torres, Chicago, children, diagnosis, Joseph Cotler, Madison L Sunnquist, paediatric ME, prevalence, Prof Leonard Jason, Shaun Bhatia, young people
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Paediatric patients with ME/CFS value understanding & help to move on with their lives
Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054] Abstract: Aim: The aim of this study was to document … Continue reading
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Tagged children, education support, Katherine Rowe, paediatric ME, self management, teenagers, young people
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Meeting the educational needs of young ME/CFS patients: role of the treating physician
Meeting the educational needs of young, ME/CFS patients: role of the treating physician, by Faith R. Newton in Front. Pediatr., 02 April 2019 https://doi.org/10.3389/fped.2019.00104 Article introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling, chronic disease characterized by the … Continue reading
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Tagged Dr Faith Newton, education, GPs, paediatric ME, school absence, young people
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Long term follow up of young people with CFS attending a pediatric outpatient service.
Long term follow up of young people with Chronic Fatigue Syndrome attending a pediatric outpatient service, by Katherine S. Rowe in Front. Pediatr. 21 February 2019 Research abstract: Objective: To describe the functional and educational long-term outcomes, predictive factors … Continue reading
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Tagged adolescents, children, functional ability, long-term follow-up, paediatric ME, teenagers
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The importance of accurate diagnosis of ME/CFS in children & adolescents: a commentary
The importance of accurate diagnosis of ME/CFS in children and adolescents: a commentary, by Keith J Geraghty and Charles Adeniji in Frontiers in Pediatrics [Preprint December 31, 2018] Article abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic illness that causes … Continue reading
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Tagged adolescents, Charles Adeniji, children, diagnosis, Dr Keith Geraghty, epidemiology, paediatric ME, teenagers
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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME
Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading
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Tagged adolescents, Alison Shaw, children, Danielle Byrne, Dr Esther Crawley, Kirstie Haywood, Nina Anderson, paediatric ME, payback, relapse, Roxanne Morin Parslow, teenagers
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The development of the DePaul symptom questionnaire: original, expanded, brief & pediatric versions
The development of the DePaul symptom questionnaire: Original, expanded, brief and pediatric versions, by Leonard A Jason, Madison Sunnquist in Frontiers in Pediatrics, 6 Nov 2018 One of the key requirements of a reliable case definition is the use of standardized procedures for assessing … Continue reading
Understanding ME & CFS symptoms in children – take part in research project!
Symptomatology of pediatric ME & CFS – research project The Center for Community Research at DePaul University in the USA, led by Prof Leonard Jason says: There is currently little research on children with myalgic encephalomyelitis (ME) and chronic fatigue … Continue reading
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Tagged children, Madison L Sunnquist, paediatric ME, Prof Leonard Jason, questionnaire, research, young people
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School functioning in adolescents with CFS [Australia]
School functioning in adolescents with Chronic Fatigue Syndrome, by Sarah Jenette Knight, Jennifer Politis, Christine Garnham, Adam Scheinberg and Michelle Anne Tollit in Front. Pediatr., 16 October 2018 Background: It is well known that adolescents with chronic fatigue syndrome (CFS) experience greater … Continue reading
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Tagged academic performance, Adam Scheinberg, adolescents, Christine Garnham, Dr Jennifer Politis, Michelle Anne Tollit, paediatric ME, Sarah Jenette Knight, school absence, school functioning, teenagers
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