Tag Archives: paediatric ME

Medically documenting disability in ME/CFS cases [US]

Medically Documenting Disability in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases, by Barbara Comerford and Richard Podell in Front. Pediatr. 7:231, 2 July 2019 [doi: 10.3389/fped.2019.00231]   Article introduction: Patients with severe myalgic encephalomyelitis/Chronic fatigue syndrome (ME/CFS) experience debilitating physical and … Continue reading

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Meeting the educational needs of young ME/CFS patients: role of the treating physician

Meeting the educational needs of young, ME/CFS patients: role of the treating physician, by Faith R. Newton in Front. Pediatr., 02 April 2019 https://doi.org/10.3389/fped.2019.00104   Article introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling, chronic disease characterized by the … Continue reading

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The importance of accurate diagnosis of ME/CFS in children & adolescents: a commentary

The importance of accurate diagnosis of ME/CFS in children and adolescents: a commentary, by Keith J Geraghty and Charles Adeniji in Frontiers in Pediatrics [Preprint December 31, 2018] Article abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic illness that causes … Continue reading

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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME

Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with  adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading

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The development of the DePaul symptom questionnaire: original, expanded, brief & pediatric versions

The development of the DePaul symptom questionnaire: Original, expanded, brief and pediatric versions, by Leonard A Jason, Madison Sunnquist in Frontiers in Pediatrics, 6 Nov 2018 One of the key requirements of a reliable case definition is the use of standardized procedures for assessing … Continue reading

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Understanding ME & CFS symptoms in children – take part in research project!

Symptomatology of pediatric ME & CFS – research project The Center for Community Research at DePaul University in the USA, led by Prof Leonard Jason says: There is currently little research on children with myalgic encephalomyelitis (ME) and chronic fatigue … Continue reading

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School functioning in adolescents with CFS [Australia]

School functioning in adolescents with Chronic Fatigue Syndrome, by Sarah Jenette Knight,  Jennifer Politis,  Christine Garnham,  Adam Scheinberg and  Michelle Anne Tollit in Front. Pediatr., 16 October 2018 Background:  It is well known that adolescents with chronic fatigue syndrome (CFS) experience greater … Continue reading

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Videos: Prof Peter Rowe & Dr Nigel Speight, discuss paediatric ME/CFS

Paediatric ME/CFS (from Voices from shadows website)  Two world renown ME/CFS paediatricians, Prof Peter Rowe and Dr Nigel Speight, discuss paediatric ME/CFS diagnosis and management in two short videos for medical professionals, following publication of the comprehensive manual Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome … Continue reading

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Pediatric CFS: Dr Crawley’s perspective

Article abstract: Pediatric chronic fatigue syndrome: current perspectives, by Esther Crawley in Dove Press  Vol 9, #4, pp 27—33 [Published March 29, 2018] Pediatric chronic fatigue syndrome is an important illness as it is relatively common and also very disabling with … Continue reading

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