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Latest News
- Webinar 3 March 2021: Introduction to sensory apps
- Dysregulated provision of oxidisable substrates to the mitochondria in ME/CFS lymphoblasts
- Sex-based differences in plasma autoantibodies to CNS proteins in Gulf War veterans versus healthy & symptomatic controls
- Sick of the sick role: narratives of what ‘recovery’ means to people with CFS/ME
- Plasma proteomics publication shows disrupted cell-to-cell signaling in ME/CFS
Archives
Tag Archives: paediatric ME
NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient
NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice. The draft NICE guideline is open … Continue reading
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Tagged children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, paediatric ME, severe ME, young people
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Online talk: ME/CFS and long Covid in children & young people with Dr Nigel Speight, 24 Sep 2020
Sheffield ME & FM Group: Online talk: ME/cfs in children and young people – Dr Nigel Speight This talk is especially relevant to families supporting young people and those not getting the support they need from schools and services. It will … Continue reading
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Tagged children, Dr Nigel Speight, long Covid, paediatric ME, Sheffield ME & FM Group, Tymes Trust, young people
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Activity measurement in pediatric CFS
Activity measurement in pediatric chronic fatigue syndrome, by Bernardo Loiacono, Madison Sunnquist, Laura Nicholson, Leonard A Jason in Chronic Illness, August 17, 2020 [doi.org/10.1177/1742395320949613] Research abstract: Objectives: Individuals with myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) experience debilitating … Continue reading
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Tagged activity, Bernardo Loiacono, Laura Nicholson, Madison L Sunnquist, paediatric ME, Prof Leonard Jason
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Severe ME in children
Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS] Guideline abstract current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the large … Continue reading
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Tagged CBT, children, cognitive behavioural therapy, Dr Nigel Speight, Fabricated or Induced Illness, GET, graded exercise therapy, immunoglobulin, paediatric ME, PEM, Pervasive Refusal Syndrome, Post-exertional malaise, severe ME
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The prevalence of pediatric ME/CFS in a community‑based sample
The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a community‑based sample, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler & Shaun Bhatia in Child & Youth Care Forum, 23 January 2020 [doi.org/10.1007/s10566-019-09543-3] Research … Continue reading
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Tagged Ben Z Katz, Chelsea Torres, Chicago, children, diagnosis, Joseph Cotler, Madison L Sunnquist, paediatric ME, prevalence, Prof Leonard Jason, Shaun Bhatia, young people
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Paediatric patients with ME/CFS value understanding & help to move on with their lives
Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054] Abstract: Aim: The aim of this study was to document … Continue reading
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Tagged children, education support, Katherine Rowe, paediatric ME, self management, teenagers, young people
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Meeting the educational needs of young ME/CFS patients: role of the treating physician
Meeting the educational needs of young, ME/CFS patients: role of the treating physician, by Faith R. Newton in Front. Pediatr., 02 April 2019 https://doi.org/10.3389/fped.2019.00104 Article introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling, chronic disease characterized by the … Continue reading
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Tagged Dr Faith Newton, education, GPs, paediatric ME, school absence, young people
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Long term follow up of young people with CFS attending a pediatric outpatient service.
Long term follow up of young people with Chronic Fatigue Syndrome attending a pediatric outpatient service, by Katherine S. Rowe in Front. Pediatr. 21 February 2019 Research abstract: Objective: To describe the functional and educational long-term outcomes, predictive factors … Continue reading
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Tagged adolescents, children, functional ability, long-term follow-up, paediatric ME, teenagers
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The importance of accurate diagnosis of ME/CFS in children & adolescents: a commentary
The importance of accurate diagnosis of ME/CFS in children and adolescents: a commentary, by Keith J Geraghty and Charles Adeniji in Frontiers in Pediatrics [Preprint December 31, 2018] Article abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic illness that causes … Continue reading
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Tagged adolescents, Charles Adeniji, children, diagnosis, Dr Keith Geraghty, epidemiology, paediatric ME, teenagers
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