Category Archives: News
PACE trial data assessment: in ME/CFS CBT and GET are ineffective
Research abstract: The PACE trial concluded that Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET) are moderately effective in managing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and yielded a 22% recovery rate. Nonetheless, the recently released individual participant data shows … Continue reading
Inquest into death of person with severe ME in North Wales
Daily Post article, by Gareth Hughes, 12 January 2017: Coroner questions bed-blocking at Maelor Hospital after woman accidentally killed herself in A&E A coroner is to ask what steps are being taken to tackle the problem of bed-blocking at the Maelor … Continue reading
Narratives of parents living with a child affected by CFS/ME
Research abstract: Background and Aims: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) remains a poorly understood condition, shrouded by debate, stigma, and uncertainty. Unsurprisingly, the little available research suggests that caring for a Child or Young Person (CYP) affected by the condition can be extremely challenging. … Continue reading
The Brain Initiative: FM & ME/CFS perspective
Health rising blog post, by Cort Johnson, 8 Jan 2017: The Brain Initiative: a Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS) perspective In the third of three blogs looking at the research efforts of tomorrow and their potential impact on fibromyalgia and … Continue reading
The great NIH exercise initiative: a boon for ME/CFS & FM?
Health rising forum post, by Cort Johnson, 3 January 2017: The Great NIH Exercise Initiative: A Boon for Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia? “This physical activity initiative aims to fundamentally change our understanding of what happens to the body … Continue reading
Twins needed for ME/CFS research
National ME/FM Action Network announcement: A senior Canadian researcher has been looking for genetic factors in people with ME/CFS for several years. His studies have already yielded promising results. The next stage of his study involves looking at identical twins … Continue reading
Differing case definitions point to the need for an accurate diagnosis of ME/CFS
Research article: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is characterised by unexplained and persistent or recurrent incapacitating fatigue accompanied by a variety of symptoms and substantial reductions in previous levels of occupational, educational, social and/or personal activity [1,2]. Given the absence … Continue reading
Making drugs obsolete: the electroceutical revolution – FM & ME/CFS perspective
Health rising blog post, by Cort Johnson, 2 Jan 2017: Making Drugs Obsolete: The Electroceutical Revolution – A Fibromyalgia and ME/CFS Perspective This is the first of three blogs looking at major NIH projects which, while not being aimed at … Continue reading
