Category Archives: News
More PACE trial tribunal comments
PACE trial ruling: Respondent Alem Mathees main response The essential daily briefing, 19 August 2016: Chronic Fatigue Syndrome sufferers have just had a small victory Health Rising discussion, 17 August 2016: The PACE Trial’s Big Stumble: UK Tribunal Orders Release of PACE … Continue reading
ME Association challenges Pulse Learning’s classification of ME/CFS as a mental health disorder
ME Association blog post, by Dr Charles Shepherd, 21 August 2016: ME Association challenges Pulse Learning’s classification of ME/CFS as a mental health disorder The ME Association has today asked the medical education website Pulse Learning to remove Chronic Fatigue … Continue reading
New rituximab trial results from Norway
Research abstract: Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) is a disease of unknown etiology. We have previously suggested clinical benefit from B-cell depletion using the monoclonal anti-CD20 antibody rituximab in a randomized and placebo-controlled study. Prolonged responses were then demonstrated in … Continue reading
Reasons given for not releasing PACE trial fitness data
PACE Trial: Reasons Queen Mary University of London gave for not releasing fitness data Tom Kindlon reports that retired mathematics teacher, Graham McPhee, requested the numerical values (for the groups, not individuals) used to create this graph of the fitness … Continue reading
A robot-avatar: easier access to education & reduction in isolation?
Research abstract: This paper presents a qualitative study of deployment and use of a robot as a sick child’s avatar at school. Many children and youth suffer from a range of chronic illnesses that make them, often for long stretches … Continue reading
Selfish mitochondria implicated in a variety of diseases
Vanderbilt University press release, 12 July 2016: Selfish mitochondria implicated in a variety of diseases Mitochondrial disorders are a chameleon-like set of diseases that take many different forms and vary widely from individual to individual. Mitochondria are special organelles found in … Continue reading
Roles of the right dorsolateral prefrontal cortex during physical fatigue: a magnetoencephalographic study
Research abstract: Background: A regulation system in the central nervous system plays an important role in controlling physical performance during physical fatigue. Purpose: To clarify the neural mechanisms of this regulation system during physical fatigue using magnetoencephalography (MEG) and a … Continue reading
Recovering from CFS & FM – The Lerner Way
Health rising blog post, by Cort Johnson, Aug 12, 2016: Recovering from Chronic Fatigue Syndrome and Fibromyalgia – The Lerner Way Recovery Recoveries or near recoveries from chronic fatigue syndrome (ME/CFS) and/or fibromyalgia don’t happen often but they do occur. … Continue reading
Experience what it’s like to suffer from CFS in video game ‘Robin’
Daily Mirror news report, 13 August 2016, by Ryan Brown: Experience what it’s like to suffer from chronic fatigue syndrome in this free video game ‘Robin’ Chronic fatigue syndrome (also known as ME) is a largely misunderstood condition that seriously affects sufferers’ day-to-day … Continue reading
Post Lyme Disease & ME/CFS – are they the same?
Simmaron research blog post, by Cort Johnson, August 6, 2016: Post Lyme Disease and Chronic Fatigue Syndrome (ME/CFS) – Are They The Same? Post treatment Lyme disease syndrome (PTLSD) occurs when someone is treated for Lyme disease but never recovers. … Continue reading
