Category Archives: News
A tool for making sense of health studies
Understanding Health Research: a tool for making sense of health studies Can I trust the findings of health research? This online tool aims to guide you through a series of questions to help you review health research. The website also contains introductions to … Continue reading
PACE trial shows patients need to scrutinise studies about their health,
BMJ blog post by Simon McGrath, 22 Sep 2016: PACE trial shows why medicine needs patients to scrutinise studies about their health Like all patients, what I want most from clinical research is treatments that work, not ones that merely … Continue reading
Potential new way to sway the immune system
ME Global Chronicle article, by Madeline McCurry-Schmidt, Aug 2016 Found: A Potential New Way to Sway the Immune System (not specifically about ME) A new international collaboration involving scientists at The Scripps Research Institute (TSRI) opens a door to influencing … Continue reading
Manualised protocol of integrated CBT and GET
Research abstract: BACKGROUND: Medically-unexplained chronic fatigue states are prevalent, and challenging to manage. Cognitive behavioural therapy (CBT) and graded exercise therapy (GET) are effective in clinical trials. Evaluation of delivery in a standard health care setting is rare. An integrated … Continue reading
PACE trial results were grossly exaggerated
Occupy ME blog post, by Jennie Spotila, 21 Sep 2016: PACE: Grossly Exaggerated On September 9, 2016, Queen Mary University of London released data from the PACE trial in compliance with a First Tier Tribunal decision on a Freedom of … Continue reading
Patient perceptions regarding possible changes to the name & criteria for CFS & ME
Research article abstract: For decades, researchers and patients have been debating the terms and criteria for chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME). This has led to considerable difficulties in clearly communicating to the public the nature of these … Continue reading
Get your MillionsMissing twibbon
Download the #MillionsMissing twibbon. Add the #MillionsMissing filter to your photo on Facebook and Twitter! All it takes is the click of a button. The page also provides: easy-to-use tweets and Facebook posts announcing your support for the #MillionsMissing protest … Continue reading
ME/CFS history, diagnostic criteria & prevalence – new e-book
E-book by Mary Gloria C. Njoku, 1 Sep 2016: Myalgic, Encephalomyelitis/Chronic Fatigue Syndrome: History, Diagnostic Criteria and Prevalence ISBN: 978-1-4689-7326-6 Foreword by Prof Leonard Jason Overview: This work is a comprehensive review of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) studies that were … Continue reading
Choosing wisely Wales: patients in Wales urged to take more control
BBC news article, by Owain Clarke, 16 September 2016: Choosing Wisely aims for doctor-patient ‘culture shift’ Patients in Wales are being urged to take more control of decisions about the care and treatments they receive, as part of a new … Continue reading
