Tag Archives: #MillionsMissing

If you are living with ME – #YouAreNotAlone #MillionsMissing

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This is International ME Awareness Day – 12 May 2020

May 12th is International ME Awareness Day Myalgic Encephalomyelitis is the most common disease  people have never heard of! Estimated number of people with ME: Wales 13,000 UK 250,000 World 17-24 million Every year, for a week surrounding May 12th, … Continue reading

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In the news: Missing from their lives, missing from healthcare services

ME Awareness week – in the BBC news in Wales “All round the world millions of people are missing from their lives. In Wales people are also missing from the healthcare system.  When we go to the surgery we’re not … Continue reading

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BBC Wales news: ‘Humanitarian crisis’ for ME sufferers in Wales

BBC Wales News article, 11 May 2019: ‘Humanitarian crisis’ for ME sufferers in Wales   “People thought I’d moved away or joined a nunnery”, said Marian Gray, who admits going “missing from life”. She disappeared because she was one of … Continue reading

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Join the #MillionsMissing event in Cardiff, Sat 11 May 2019

Join the#MillionsMissing global campaign for ME health equality Help draw attention to ME on Saturday May 11th by joining a Visibility Action in Cardiff city centre: 11:00 am – 4pm at the Hayes, Cardiff – a pedestrianised shopping street take … Continue reading

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Millions of parents missing millions of moments

Millions of parents Missing millions of moments Missing due to lack of research and care for people with myalgic encephalomyelitis Do not let them miss a moment more #MillionsMissing  

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Join #MillionsMissing virtual & visibility actions, May 2019

#MillionsMissing – a global campaign for health equality A global, grassroots network for people with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Join the virtual action in Wales on ME Awareness day – May 12th Sign up  to show you are … Continue reading

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Cardiff #MillionsMissing 2018 event report

ITV Wales report, 12 May 2018: Campaigners call for more treatment for those living with ME Many sufferers are under the age of 40, bed bound, weak, suffer with extreme tiredness, constant pain and are over sensitive to light and sound … Continue reading

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International #MillionsMissing Visibility action in Geneva, May 12 2018

#MillionsMissing on May 12th a day of global action that calls for health equality for everyone with ME On Saturday 12 May, representatives from around the world will gather at Place des Nations in Geneva at 12pm, at the Broken Chair … Continue reading

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#MillionsMissingWales – join the Cardiff event Sat 12 May 2018

Join the #MillionsMissing Visibility event in Cardiff City Centre Saturday 12 May 2018 between 12 and 4pm in front of the central Library, top end of the Hayes – situated next to John Lewis and St David’s Shopping Centre. About #MillionsMissingWales Accesibility … Continue reading

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