Category Archives: News

Pillow writers: International ME/CFS writers’ group

Writing from our ME lives – the Pillow writers   An international group of writers with ME and long COVID invite you to join them. Pillow writers is a friendly, supportive encouraging space where we share our thoughts on chronic … Continue reading

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Social research: The circuit of symbolic violence in CFS/ME

The circuit of symbolic violence in chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) (I): A preliminary study, by Xavier Gimeno Torrent in Health Care for Women International Volume 43, 2022 – Issue 1-3   Research abstract:  Objective How can it be … Continue reading

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Lessons from ME/CFS for Long COVID: Physiological characteristics… are abnormal in people with Postexertional Symptom Exacerbation (aka PEM)

Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID Part 2: Physiological characteristics during acute exercise are abnormal in people with Postexertional Symptom Exacerbation, by Todd E Davenport, Staci R Stevens, Jared Stevens, Christopher R Snell, J Mark Van Ness in JOSPT, … Continue reading

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Case study: ME/CFS post coronavirus disease

Myalgic encephalomyelitis/chronic fatigue syndrome post coronavirus disease 2019, by Yoshiki Kusama, Sadahiro Fukui, Makiko Maruyama, Katsunori Kamimura, Toshiro Maihara in Paediatrics International Vol 64, no. 1 Feb 2022 [doi.org/10.1111/ped.14976]   Coronavirus disease 2019 (COVID-19), an infectious disease caused by severe acute … Continue reading

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Research: Physiological assessment of orthostatic intolerance in CFS

Physiological assessment of orthostatic intolerance in chronic fatigue syndrome by Benjamin H Natelson, Jin-Mann S Lin, Michelle Blate, Sarah Khan, Yang Chen & Elizabeth R Unger in Journal of Translational Medicine vol 20, no: 95 (2022)   Research abstract: Background Orthostatic … Continue reading

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Doctors with ME survey health professionals- more training on ME/CFS is needed

Survey: Facilitators to better ME Care   The advocacy group Doctors with ME surveyed users of Dr Muirhead’s online ME/CFS training course during 2021. Results include: 96.1% believe more formal education or training is needed for medical professionals on ME/CFS. … Continue reading

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Research: Decreased NO production in endothelial cells… from ME/CFS patients

Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients, by R Bertinat, RVillalobos-Labra, L Hofmann, J Blauensteiner, N Sepúlveda, F Westermeir in Vascular Pharmacology 2022, 106953 [doi.org/10.1016/j.vph.2022.106953]   Highlights ME/CFS-plasma reduced the ability of ECs to produce NO. … Continue reading

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Research review: Cognitive impairment in ME/CFS

Systematic review and meta-analysis of cognitive impairment in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), by Mehdi Aoun Sebaiti, Mathieu Hainselin, Yannick Gounden, Carmen Adella Sirbu, Slobodan Sekulic, Lorenzo Lorusso, Luis Nacul & François Jérôme Authier in Scientific 12: 2157 (2022) [doi.org/10.1038/s41598-021-04764-w] … Continue reading

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Wales prioritises healthcare for post-viral condition Long COVID

Health Minister Eluned Morgan promises more help for people with Long COVID in Wales   Health Minister Eluned Morgan announced the findings of an independent review into Long COVID healthcare in Wales on 8th February 2022 and promised continued support. … Continue reading

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Lessons from ME/CFS for long COVID: Postexertional Symptom Exacerbation (aka PEM)

Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for long COVID: Postexertional Symptom Exacerbation is an abnormal response to exercise/activity, by Todd E Davenport, Staci R Stevens, Jared Stevens, Christopher R Snell, J Mark Van Ness in JOSPT blog, February 2, 2022 … Continue reading

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