Tag Archives: Valerie Eliot Smith

Legal challenge to NICE ME/CFS Guideline delay

Legal challenge to NICE ‘pause in publication’   On the 1st October a legal action was launched against NICE, claiming the failure to publish the final guideline for ME/CFS was unlawful – that NICE failed to follow it’s own rules … Continue reading

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Tribunal orders release of PACE data

ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading

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The cost of fighting PACE trial data-sharing

johnthejack blog post, 29 June 29 2016: Using public money to keep publicly funded data from the public After publication of the PACE trial comparing different interventions (Cognitive Behavioural Therapy [CBT], Graded Exercise Therapy [GET], Adaptive Pacing Therapy and Specialist Medical Care) for … Continue reading

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PACE-Gate: an update for ME Awareness day

Occupy CFS/ME blog post by Jennie Spotila 12 May 2016:  PACE-Gate It is International ME/CFS Awareness Day, and what is most on my mind is the status of PACE-Gate: the controversy over the design, conduct and results of the PACE trial. … Continue reading

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